Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors

被引:41
|
作者
Sansom-Daly, Ursula M. [1 ,2 ,3 ]
Wakefield, Claire E. [1 ,2 ]
Bryant, Richard A. [4 ]
Patterson, Pandora [5 ,6 ]
Anazodo, Antoinette [2 ,3 ]
Butow, Phyllis [7 ]
Sawyer, Susan M. [8 ,9 ,10 ]
McGill, Brittany C. [1 ,2 ]
Evans, Holly E. [1 ,2 ]
Cohn, Richard J. [1 ,2 ]
Thompson, Kate
Holland, Lucy
Barton, Belinda
Matigian, Belinda
Gray, Lyndal
Osborn, Michael
Plaster, Meg
Phillips, Marianne
机构
[1] UNSW Sydney, Sch Womens & Childrens Hlth, Sydney, NSW, Australia
[2] Sydney Childrens Hosp, Kids Canc Ctr, Behav Sci Unit, Sydney, NSW, Australia
[3] Prince Wales Hosp, Nelune Comprehens Canc Ctr, Sydney, NSW, Australia
[4] UNSW Sydney, Sch Psychol, Sydney, NSW, Australia
[5] CanTeen, Res Evaluat & Social Policy Unit, Newtown, Tas, Australia
[6] Univ Sydney, Sydney Nursing Sch, Canc Nursing Res Unit, Sydney, NSW, Australia
[7] Univ Sydney, Ctr Med Psychol & Evidence Based Decis Making CeM, Sch Psychol, Sydney, NSW, Australia
[8] Univ Melbourne, Dept Paediat, Melbourne, Vic, Australia
[9] Murdoch Childrens Res Inst, Melbourne, Vic, Australia
[10] Royal Childrens Hosp, Ctr Adolescent Hlth, Melbourne, Vic, Australia
基金
英国医学研究理事会;
关键词
adolescent; feasibility; cancer; psychological interventions; oncology; online videoconferencing; survivorship; young adult; MENTAL-HEALTH PROBLEMS; DISTRESS THERMOMETER; CHILDHOOD-CANCER; RECRUITMENT; PREVALENCE; PREDICTORS; CHALLENGES; SYMPTOMS; CHILDREN; SUPPORT;
D O I
10.1002/pon.4938
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
ObjectiveOnline psychological therapies provide a way to connect adolescent and young adult (AYA) cancer survivors to evidence-based support. We aimed to establish the feasibility, acceptability, and safety of Recapture life, a six-session group-based online cognitive-behavioural intervention, led by a facilitator, for AYAs in the early post-treatment period. MethodsA randomised-controlled trial compared Recapture Life to an online peer-support group control and a waitlist control. Participants could nominate a support person. Acceptability was assessed using study opt-in and retention rates, participant-reported benefits/burdens of participation, and group facilitator burden. We also assessed the feasibility (eg, frequency/impact of technological difficulties) and psychological safety (ie, occurrence of clinically concerning distress) of the program. ResultsSixty-one participants took part (45 AYAs, 51.1% female; 19 support people). The opt-in rate was 30%, the enrolment rate was 87%, and 75% of participants took part in 5/6 sessions. AYAs reported high benefit and low burden of participation. Overall, 95 online group sessions were conducted; few required rescheduling by group facilitators (3%), but many took place outside of office hours (90hours). It took 40days on average to create online groups, but established weekly sessions commenced quickly (M=4.0minutes). Technological difficulties were common but had a low impact on intervention delivery. Although 54% of AYAs returned a clinically concerning distress screen at some point, none reflected acute mental health risks. ConclusionsThe data largely indicate that Recapture Life is an acceptable, feasible, and safe model of evidence-based psychological support for AYAs during early survivorship, which nevertheless experienced common challenges in online/AYA intervention delivery.
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页码:284 / 292
页数:9
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