moral experience;
moral distress;
ethics;
end-of-life care;
palliative care;
PALLIATIVE CARE;
FRAMEWORK;
D O I:
10.1891/RTNP-D-19-00114
中图分类号:
R47 [护理学];
学科分类号:
1011 ;
摘要:
Background: Moral distress, the phenomenon in which an agent is constrained in acting on their ethical choice, is a reoccurring theme in the literature on nurses' experiences of end-of-life care (EOLC). Understanding moral engagement solely through a lens of moral distress can be limiting-as such, we sought to explore the diverse experiences nurses consider ethically meaningful in their palliative and EOLC practice. Purpose and Methods: This article presents an exploration and analysis of stories told to us, within an interpretive description study, by five nurses practicing in EOLC in diverse settings across Canada. Although these stories were told to us in a research context, the purpose of this theory article is to explore what these stories demonstrate about the moral engagement of nurses caring for dying patients. Findings: Our analysis suggests that while moral distress is a feature of nursing stories, so too are many other dimensions of moral experience, including resilience, responsibility, and care. Implications for Practice: Expanding how we understand nurses' moral engagement in the care of dying patients has implications for how we account for the many responsibilities that nurses shoulder in striving to provide "good" care to people at the end of life.
机构:
Univ Calif San Francisco, Dept Family Med, San Francisco, CA 94143 USAUniv Calif San Francisco, Dept Family Med, San Francisco, CA 94143 USA
Rosenwohl-Mack, Sarah
Dohan, Daniel
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机构:
Univ Calif San Francisco, Inst Hlth Policy Studies, San Francisco, CA 94143 USAUniv Calif San Francisco, Dept Family Med, San Francisco, CA 94143 USA
Dohan, Daniel
Matthews, Thea
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机构:
Univ Calif San Francisco, Inst Hlth Policy Studies, San Francisco, CA 94143 USAUniv Calif San Francisco, Dept Family Med, San Francisco, CA 94143 USA
Matthews, Thea
Batten, Jason Neil
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机构:
Stanford Univ, Dept Med, Stanford, CA 94305 USAUniv Calif San Francisco, Dept Family Med, San Francisco, CA 94143 USA
Batten, Jason Neil
Dzeng, Elizabeth
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h-index: 0
机构:
Univ Calif San Francisco, Inst Hlth Policy Studies, San Francisco, CA 94143 USA
Univ Calif San Francisco, Dept Med, Div Hosp Med, San Francisco, CA 94143 USAUniv Calif San Francisco, Dept Family Med, San Francisco, CA 94143 USA
机构:
Univ Witwatersrand, Dept Nursing Educ, Fac Hlth Sci, 7 York Rd, ZA-2193 Johannesburg, South AfricaUniv Witwatersrand, Dept Nursing Educ, Fac Hlth Sci, 7 York Rd, ZA-2193 Johannesburg, South Africa
Kisorio, Leah C.
Langley, Gayle C.
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Univ Witwatersrand, Dept Nursing Educ, Fac Hlth Sci, 7 York Rd, ZA-2193 Johannesburg, South AfricaUniv Witwatersrand, Dept Nursing Educ, Fac Hlth Sci, 7 York Rd, ZA-2193 Johannesburg, South Africa
机构:
Univ Lancaster, Int Observ End Of Life Care, Inst Hlth Res, Lancaster LA1 4YT, EnglandUniv Lancaster, Int Observ End Of Life Care, Inst Hlth Res, Lancaster LA1 4YT, England
Payne, Sheila
Hawker, Sheila
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机构:Univ Lancaster, Int Observ End Of Life Care, Inst Hlth Res, Lancaster LA1 4YT, England
Hawker, Sheila
Kerr, Chris
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机构:Univ Lancaster, Int Observ End Of Life Care, Inst Hlth Res, Lancaster LA1 4YT, England
Kerr, Chris
Seamark, David
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机构:Univ Lancaster, Int Observ End Of Life Care, Inst Hlth Res, Lancaster LA1 4YT, England
Seamark, David
Roberts, Helen
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机构:Univ Lancaster, Int Observ End Of Life Care, Inst Hlth Res, Lancaster LA1 4YT, England
Roberts, Helen
Jarrett, Nikki
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机构:Univ Lancaster, Int Observ End Of Life Care, Inst Hlth Res, Lancaster LA1 4YT, England
Jarrett, Nikki
Smith, Helen
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机构:Univ Lancaster, Int Observ End Of Life Care, Inst Hlth Res, Lancaster LA1 4YT, England
机构:
Indiana Univ, Sch Nursing, 1800 N Capitol Ave,MH Noyes E 600, Indianapolis, IN 46202 USA
Indiana Univ Hlth, Fairbanks Ctr Med Eth, Indianapolis, IN USAIndiana Univ, Sch Nursing, 1800 N Capitol Ave,MH Noyes E 600, Indianapolis, IN 46202 USA