Coping Strategies, Psychological Impact, and Support Preferences of Men With Rheumatoid Arthritis: A Multicenter Survey

被引:13
|
作者
Flurey, Caroline A. [1 ]
Hewlett, Sarah [1 ]
Rodham, Karen [2 ]
White, Alan [3 ]
Noddings, Robert [4 ]
Kirwan, John R. [5 ]
机构
[1] Univ West England, Frenchay Campus,Coldharbour Rd, Bristol BS16 1QYR, Avon, England
[2] Staffordshire Univ, Stoke On Trent, Staffs, England
[3] Leeds Beckett Univ, Leeds, W Yorkshire, England
[4] Univ Hosp Bristol NHS Trust, Bristol, Avon, England
[5] Univ Bristol, Bristol, Avon, England
关键词
SELF-MANAGEMENT; HEGEMONIC MASCULINITY; WEIGHT-LOSS; GENDER; INTERVENTIONS; HEALTH; EXPERIENCES; ADJUSTMENT; ANXIETY; STRESS;
D O I
10.1002/acr.23422
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Objective. To investigate the existence and distribution of 2 typologies (termed "factors") of men with rheumatoid arthritis (RA) identified through our previous Q-methodology study (n = 30) in a larger sample of men with RA, and whether differences in psychosocial impact or support preferences exist between the 2 factors, and between men and women with RA. Methods. A postal survey was sent to 620 men with RA from 6 rheumatology units across England, and the support preferences section of the survey was given to 232 women with RA. Results. A total of 295 male patients (47.6%) and 103 female patients (44.4%) responded; 15 male participants had missing data, and thus 280 were included in the analysis. Of these, 61 (22%) were assigned to factor A ("accept and adapt"), 120 (35%) were assigned to factor B ("struggling to match up"), and 99 (35%) were unassigned. The two factors differed significantly, with factor B reporting more severe disease, less effective coping strategies, and poorer psychological status. For support, men favored a question and answer session with a consultant (54%) or specialist nurse (50%), a website for information (69%), a talk by researchers (54%), or a symptom management session (54%). Overall, women reported more interest in support sessions than men, with >= 50% of women reporting interest in nearly every option provided. Conclusion. Some men accept and adapt to their RA, but others (43%) report severe disease, less effective coping, and poor psychological status. Men's preferences for support are practical, with a focus on expanding their knowledge.
引用
收藏
页码:851 / 860
页数:10
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