Implementation of Self-Directed Supports for People With Intellectual and Developmental Disabilities in the United States

被引:9
|
作者
DeCarlo, M. P. [1 ]
Bogenschutz, M. D. [2 ]
Hall-Lande, J. A. [3 ]
Hewitt, A. S. [3 ]
机构
[1] Radford Univ, Radford, VA 24142 USA
[2] Virginia Commonwealth Univ, Richmond, VA USA
[3] Univ Minnesota, Minneapolis, MN USA
关键词
self-direction; consumer direction; intellectual and developmental disability; HCBS waiver services; qualitative research; EXPERIENCES; SERVICES; PROGRAM; ADULTS; PERCEPTIONS; CAREGIVERS; RELATIVES;
D O I
10.1177/1044207318790061
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Self-direction is an approach to human service delivery within long-term services and supports that aims to provide greater control for individuals with disabilities and their closest supporters. The purpose of this study was to understand the implementation of self-directed supports for individuals with intellectual and developmental disabilities. Researchers interviewed state developmental disabilities administrators in 34 of 42 states that currently operate self-directed service options and used qualitative analysis to arrive at a thematic map of the strengths and challenges currently experienced by state administrators. Common strengths identified by state administrators were increased opportunities for participant self-determination and improved relationships with support staff. Common challenges included restructuring case management relationships, as well as rulemaking and enforcement. Administrators' suggestions for the future of self-direction focused on increasing program size and streamlining services using technology.
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页码:11 / 21
页数:11
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