Consensus meetings and the resulting recommendations shape treatment choices in rare diseases such as hereditary angioedema (HAE) because they combine the experience of prescribing physicians and the patients who are receiving therapy. Self-administration of HAE therapy was recognised as a potential treatment option in the first consensus publication in 2003. Recent studies have confirmed that self-administration of therapy resolves attacks quickly, safely and minimises burden of disease; however, the discovery of inconsistent treatment approaches is a concern and warrants investigation into the barriers that prevent adherence with current recommendations. Copyright (C) 2013 S. Karger AG, Basel
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HARVARD UNIV,MCLEAN HOSP,SCH MED,ALCOHOL & DRUG ABUSE RES CTR,BELMONT,MA 02178HARVARD UNIV,MCLEAN HOSP,SCH MED,ALCOHOL & DRUG ABUSE RES CTR,BELMONT,MA 02178
BALSTER, RL
LUKAS, SE
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HARVARD UNIV,MCLEAN HOSP,SCH MED,ALCOHOL & DRUG ABUSE RES CTR,BELMONT,MA 02178HARVARD UNIV,MCLEAN HOSP,SCH MED,ALCOHOL & DRUG ABUSE RES CTR,BELMONT,MA 02178
机构:
Advanced Techniques in Health Services Research (TAISS), MadridAdvanced Techniques in Health Services Research (TAISS), Madrid
Blasco A.J.
Lázaro P.
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Advanced Techniques in Health Services Research (TAISS), MadridAdvanced Techniques in Health Services Research (TAISS), Madrid
Lázaro P.
Caballero T.
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Allergy Service, Hospital La Paz Health Research Center (IdiPaz), Biomedical Research Network on Rare Diseases-U754 (CIBERER), MadridAdvanced Techniques in Health Services Research (TAISS), Madrid
Caballero T.
Guilarte M.
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Allergy Section, Department of Internal Medicine, Hospital Universitario Vall d́Hebron, Universitat Autònoma de Barcelona, BarcelonaAdvanced Techniques in Health Services Research (TAISS), Madrid