Assessment of a Structured Self-Management Support Intervention by Nurses for Patients With Incurable Cancer

被引:6
|
作者
de Veer, Anke J. E. [1 ]
Slev, Vina N. [2 ,3 ]
Pasman, H. Roeline [2 ,3 ]
Verdonck-de Leeuw, Irma M. [4 ,5 ,6 ]
Francke, Anneke L. [1 ,7 ,8 ]
van Uden-Kraan, Cornelia F. [4 ,5 ]
机构
[1] Netherlands Inst Hlth Serv Res Nivel, Utrecht, Netherlands
[2] Vrije Univ Amsterdam, Amsterdam Univ Med Ctr UMC, Dept Publ & Occupat Hlth, Amsterdam Publ Hlth Res Inst, Amsterdam, Netherlands
[3] Vrije Univ Amsterdam, Amsterdam Univ Med Ctr UMC, Expertise Ctr Palliat Care, Amsterdam, Netherlands
[4] Vrije Univ Amsterdam Publ Hlth, Fac Behav & Movement Sci, Dept Clin Neuro & Dev Psychol, Amsterdam, Netherlands
[5] Canc Ctr Amsterdam, Amsterdam, Netherlands
[6] Vrije Univ Amsterdam, Amsterdam UMC, Dept Otolaryngol Head & Neck Surg, Amsterdam, Netherlands
[7] Vrije Univ Amsterdam, Amsterdam UMC, Dept Publ & Occupat Hlth, Amsterdam Publ Hlth Res Inst, Amsterdam, Netherlands
[8] Expertise Ctr Palliat Care, Amsterdam, Netherlands
关键词
self-management; palliative care; patient activation; quality of life; eHealth; EORTC QLQ-C15-PAL QUESTIONNAIRE; SHORT-FORM; ACTIVATION; VERSION; PEOPLE; VALIDATION; OUTCOMES; CARE;
D O I
10.1188/20.ONF.305-317
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
OBJECTIVES: To gain an understanding of the perceptions of patients with incurable cancer regarding a new nurse-led self-management support intervention with an integrated eHealth application (Oncokompas) and its potential effectiveness. SAMPLE& SETTING: 36 patients receiving support in the home setting. METHODS & VARIABLES: A pre- and post-test mixed-methods design was used with a period of 12 weeks between the tests and qualitative interviews. Outcome measures were the perceived application of the intervention, patient satisfaction, patient activation, and quality of life. RESULTS: 85% of patients were satisfied with the assessment of their needs and the advice received. They valued nurses' expertise and the assistance provided in their homes. Twenty-five percent of the patients used Oncokompas. However, no statistically significant changes in patient activation and quality of life were found. IMPLICATIONS FOR NURSING: This intervention can be used for encouraging self-management by patients with incurable cancer. Additional refinement and tailoring is desirable. Offering the intervention as early in the palliative phase as possible is recommended.
引用
收藏
页码:305 / 317
页数:13
相关论文
共 50 条
  • [31] Can models of self-management support be adapted across cancer types? A comparison of unmet self-management needs for patients with breast or colorectal cancer
    Mansfield, Elise
    Mackenzie, Lisa
    Carey, Mariko
    Peek, Kerry
    Shepherd, Jan
    Evans, Tiffany-Jane
    SUPPORTIVE CARE IN CANCER, 2018, 26 (03) : 823 - 831
  • [32] Self-management support and eHealth for patients and informal caregivers confronted with advanced cancer: an online focus group study among nurses
    Slev, Vina N.
    Pasman, H. Roeline W.
    Eeltink, Corien M.
    van Uden-Kraan, Cornelia F.
    Verdonck-de Leeuw, Irma M.
    Francke, Anneke L.
    BMC PALLIATIVE CARE, 2017, 16
  • [33] Self-management support and eHealth for patients and informal caregivers confronted with advanced cancer: an online focus group study among nurses
    Vina N. Slev
    H. Roeline W. Pasman
    Corien M. Eeltink
    Cornelia F. van Uden-Kraan
    Irma M. Verdonck-de Leeuw
    Anneke L. Francke
    BMC Palliative Care, 16
  • [34] Feasibility of a mobile and web-based intervention to support self-management in outpatients with cancer pain
    Hochstenbach, Laura M. J.
    Zwakhalen, Sandra M. G.
    Courtens, Annernie M.
    van Kleef, Maarten
    de Witte, Luc P.
    EUROPEAN JOURNAL OF ONCOLOGY NURSING, 2016, 23 : 97 - 105
  • [35] Validation of the Primacy Care Resources and Support for Chronic Disease Self-Management (PCRS): An assessment tool for the quality of self-management support
    Voorhaar, Maarten
    Bischoff, E. W. M. A.
    Visser, A.
    Asijee, G. M.
    Muris, J. W. M.
    Van Schayck, C. P.
    INTERNATIONAL JOURNAL OF INTEGRATED CARE, 2015, 15
  • [36] The need for quality self-management support in cancer care
    Foster, Claire
    BMJ QUALITY & SAFETY, 2022, 31 (01) : 1 - 4
  • [37] The Process of Self-Management: A Qualitative Case Study Reporting on Cancer Survivors' and Program Staff's Experiences Within One Self-Management Support Intervention
    Brunet, Jennifer
    Wurz, Amanda
    Srivastava, Deeksha
    HEALTH EDUCATION & BEHAVIOR, 2020, 47 (04) : 592 - 601
  • [38] Potential for Self-Management in Chronic Care Nurses' Assessments of Patients
    Bos-Touwen, Irene
    Dijkkamp, Evelien
    Kars, Marijke
    Trappenburg, Jaap
    De Wit, Niek
    Schuurmans, Marieke
    NURSING RESEARCH, 2015, 64 (04) : 282 - 290
  • [39] Career self-management: A quasiexperimental assessment of the effects of a training intervention
    Kossek, EE
    Roberts, K
    Fisher, S
    Demarr, B
    PERSONNEL PSYCHOLOGY, 1998, 51 (04) : 935 - 962
  • [40] An Expanded View of Self-Management: Patients' Perceptions of Education and Support in an Intervention for Chronic Musculoskeletal Pain
    Matthias, Marianne S.
    Miech, Edward J.
    Myers, Laura J.
    Sargent, Christy
    Bair, Matthew J.
    PAIN MEDICINE, 2012, 13 (08) : 1018 - 1028