Background and Objective: Advance care planning (ACP) is a process of communication among patients, health care providers, and relatives regarding end-of-life care. The aim of our study was to determine if a representative sample of the Dutch general public is currently involved or is inclined to be engaged in ACP, and to delineate the factors associated with greater engagement. Methods: An online questionnaire was completed by a representative sample of the Dutch general public, derived from an established Internet panel (CentERdata, University of Tilburg, the Netherlands). Results and Conclusions: Although the majority of the Dutch population seems open to discussions about end-of-life care, our study revealed that discussions with physicians are exceedingly rare. To improve ACP as a joint process among patients, relatives, and physicians, the general public's awareness of the importance of end-of-life discussions with their physicians needs to be increased and physicians need to play a more active role by initiating conversations and dialogue regarding end-of-life care.
机构:
Univ British Columbia, Dept Med, 2329 West Mall, Vancouver, BC V6T 1Z4, Canada
British Columbia Ctr Palliat Care, 300-601 Sixth St, New Westminster, BC V3L 3C1, CanadaUniv British Columbia, Dept Med, 2329 West Mall, Vancouver, BC V6T 1Z4, Canada
Carter, Rachel Z.
Ludwig, Monika
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British Columbia Ctr Palliat Care, 300-601 Sixth St, New Westminster, BC V3L 3C1, CanadaUniv British Columbia, Dept Med, 2329 West Mall, Vancouver, BC V6T 1Z4, Canada
Ludwig, Monika
Gao, Angela
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McMaster Univ, Michael G DeGroote Sch Med, 1280 Main St West, Hamilton, ON L8S 4L8, CanadaUniv British Columbia, Dept Med, 2329 West Mall, Vancouver, BC V6T 1Z4, Canada
Gao, Angela
Tan, Amy
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Univ British Columbia, Dept Med, 2329 West Mall, Vancouver, BC V6T 1Z4, CanadaUniv British Columbia, Dept Med, 2329 West Mall, Vancouver, BC V6T 1Z4, Canada
Tan, Amy
Barwich, Doris
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Univ British Columbia, Dept Med, 2329 West Mall, Vancouver, BC V6T 1Z4, Canada
British Columbia Ctr Palliat Care, 300-601 Sixth St, New Westminster, BC V3L 3C1, CanadaUniv British Columbia, Dept Med, 2329 West Mall, Vancouver, BC V6T 1Z4, Canada
Barwich, Doris
Howard, Michelle
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McMaster Univ, Dept Family Med, 1280 Main St West, Hamilton, ON L8S 4L8, CanadaUniv British Columbia, Dept Med, 2329 West Mall, Vancouver, BC V6T 1Z4, Canada
机构:
Univ New South Wales, Sch Psychol, Randwick, NSW 2031, Australia
Sydney Childrens Hosp, Kids Canc Ctr, Behav Sci Unit, Randwick, NSW, Australia
Univ New South Wales UNSW, Sch Womens & Childrens Hlth, UNSW Med, Sydney, NSW, AustraliaUniv New South Wales, Sch Psychol, Randwick, NSW 2031, Australia
Evans, Holly Elaine
Sansom-Daly, Ursula M.
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Sydney Childrens Hosp, Kids Canc Ctr, Behav Sci Unit, Randwick, NSW, Australia
Univ New South Wales UNSW, Sch Womens & Childrens Hlth, UNSW Med, Sydney, NSW, Australia
Sydney Childrens Hosp, Sydney Youth Canc Serv, Randwick, NSW, Australia
Prince Wales Hosp, Randwick, NSW, AustraliaUniv New South Wales, Sch Psychol, Randwick, NSW 2031, Australia
Sansom-Daly, Ursula M.
Bryant, Richard
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Univ New South Wales, Sch Psychol, Randwick, NSW 2031, AustraliaUniv New South Wales, Sch Psychol, Randwick, NSW 2031, Australia
机构:
Kyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, JapanKyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, Japan
Aoki, Takuya
Miyashita, Jun
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Kyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, Japan
Fukushima Med Univ, Shirakawa Satellite Teaching & Res STAR, Dept Gen Med, Fukushima, JapanKyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, Japan
Miyashita, Jun
Yamamoto, Yosuke
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Kyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, JapanKyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, Japan
Yamamoto, Yosuke
Ikenoue, Tatsuyoshi
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Kyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, JapanKyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, Japan
Ikenoue, Tatsuyoshi
Kise, Morito
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Japanese Hlth & Welf Cooperat Federat, Ctr Family Med Dev, Tokyo, JapanKyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, Japan
Kise, Morito
Fujinuma, Yasuki
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Japanese Hlth & Welf Cooperat Federat, Ctr Family Med Dev, Tokyo, JapanKyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, Japan
Fujinuma, Yasuki
Fukuma, Shingo
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Kyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, Japan
Fukushima Med Univ, Ctr Innovat Res Commun & Clin Excellence CIRC2LE, Fukushima, JapanKyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, Japan
Fukuma, Shingo
Kimachi, Miho
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Kyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, JapanKyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, Japan
Kimachi, Miho
Shimizu, Sayaka
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Kyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, JapanKyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, Japan
Shimizu, Sayaka
Fukuhara, Shunichi
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Kyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, Japan
Fukushima Med Univ, Shirakawa Satellite Teaching & Res STAR, Dept Gen Med, Fukushima, Japan
Fukushima Med Univ, Ctr Innovat Res Commun & Clin Excellence CIRC2LE, Fukushima, JapanKyoto Univ, Grad Sch Med, Sch Publ Hlth, Dept Healthcare Epidemiol, Kyoto, Japan
机构:
Univ Med Ctr Freiburg, Dept Internal Med 2, Freiburg, Germany
Univ Med Ctr Freiburg, Palliat Care Res Grp, Freiburg, GermanyUniv Med Ctr Freiburg, Dept Internal Med 2, Freiburg, Germany
Becker, Gerhild
Momm, Felix
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Univ Med Ctr Freiburg, Palliat Care Res Grp, Freiburg, GermanyUniv Med Ctr Freiburg, Dept Internal Med 2, Freiburg, Germany
Momm, Felix
Deibert, Peter
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Univ Med Ctr Freiburg, Palliat Care Res Grp, Freiburg, GermanyUniv Med Ctr Freiburg, Dept Internal Med 2, Freiburg, Germany
Deibert, Peter
Xander, Carola
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Univ Med Ctr Freiburg, Palliat Care Res Grp, Freiburg, GermanyUniv Med Ctr Freiburg, Dept Internal Med 2, Freiburg, Germany
Xander, Carola
Gigl, Annemarie
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Natl Assoc Styria, Graz, AustriaUniv Med Ctr Freiburg, Dept Internal Med 2, Freiburg, Germany
Gigl, Annemarie
Wagner, Brigitte
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机构:Univ Med Ctr Freiburg, Dept Internal Med 2, Freiburg, Germany
Wagner, Brigitte
Baumgartner, Johann
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KAGes Serv Graz, Graz, AustriaUniv Med Ctr Freiburg, Dept Internal Med 2, Freiburg, Germany
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Univ Groningen, Univ Med Ctr Groningen, Dept Gen Practice & Elderly Care Med, Antonius Deusinglaan 1,FA 21, NL-9713 AV Groningen, NetherlandsUniv Groningen, Univ Med Ctr Groningen, Dept Gen Practice & Elderly Care Med, Antonius Deusinglaan 1,FA 21, NL-9713 AV Groningen, Netherlands
Stegmann, Mariken E.
Geerse, Olaf P.
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Univ Groningen, Univ Med Ctr Groningen, Dept Gen Practice & Elderly Care Med, Antonius Deusinglaan 1,FA 21, NL-9713 AV Groningen, Netherlands
Univ Groningen, Univ Med Ctr Groningen, Dept Pulm Dis & TB, Groningen, NetherlandsUniv Groningen, Univ Med Ctr Groningen, Dept Gen Practice & Elderly Care Med, Antonius Deusinglaan 1,FA 21, NL-9713 AV Groningen, Netherlands
Geerse, Olaf P.
Tange, Dorien
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机构:
NFK, Dutch Federat Canc Patients Org, Nederlandse Federat Kankerpatientorganisaties, Utrecht, NetherlandsUniv Groningen, Univ Med Ctr Groningen, Dept Gen Practice & Elderly Care Med, Antonius Deusinglaan 1,FA 21, NL-9713 AV Groningen, Netherlands
Tange, Dorien
Richel, Carol
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BVN, Dutch Breast Canc Assoc, Borstkankervereniging Nederland, Utrecht, NetherlandsUniv Groningen, Univ Med Ctr Groningen, Dept Gen Practice & Elderly Care Med, Antonius Deusinglaan 1,FA 21, NL-9713 AV Groningen, Netherlands
Richel, Carol
Brom, Linda
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Netherlands Comprehens Canc Org, Utrecht, Netherlands
Netherlands Assoc Palliat Care PZNL, Utrecht, NetherlandsUniv Groningen, Univ Med Ctr Groningen, Dept Gen Practice & Elderly Care Med, Antonius Deusinglaan 1,FA 21, NL-9713 AV Groningen, Netherlands
Brom, Linda
Engelen, Vivian
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NFK, Dutch Federat Canc Patients Org, Nederlandse Federat Kankerpatientorganisaties, Utrecht, NetherlandsUniv Groningen, Univ Med Ctr Groningen, Dept Gen Practice & Elderly Care Med, Antonius Deusinglaan 1,FA 21, NL-9713 AV Groningen, Netherlands
Engelen, Vivian
Duijts, Saskia F. A.
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Univ Groningen, Univ Med Ctr Groningen, Dept Gen Practice & Elderly Care Med, Antonius Deusinglaan 1,FA 21, NL-9713 AV Groningen, Netherlands
Netherlands Comprehens Canc Org, Utrecht, Netherlands
Vrije Univ Amsterdam, Amsterdam Publ Hlth Res Inst, Dept Publ & Occupat Hlth, Amsterdam UMC, Amsterdam, NetherlandsUniv Groningen, Univ Med Ctr Groningen, Dept Gen Practice & Elderly Care Med, Antonius Deusinglaan 1,FA 21, NL-9713 AV Groningen, Netherlands