Genomic risk and personal responsibility in health

被引:3
|
作者
Castiel, LD
Guilam, MCR
Vasconcellos-Silva, PR
Sanz-Valero, J
机构
[1] Escola Nacl Saude Publica, Dept Epidemiol & Metodos Quantitat Saude, Fdn Oswaldo Cruz, Rio De Janeiro, Brazil
[2] Inst Nacl Canc, Rio De Janeiro, Brazil
[3] Univ Alicante, Dept Enfermagem Comunitaria Med Prevent & Saude P, E-03080 Alicante, Spain
关键词
ethics; eugenics; genomics; genetic research;
D O I
10.1590/S1020-49892006000300007
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
With the advent of genomic research, a new category of risk has emerged-genetic risk-from which an individual cannot be separated. Among the outcomes of this model is a discussion on personal accountability, according to which an individual may both be exempted from events related to certain states of health ("blame it on the genes") or be blamed for those events ("transmitter of disease"). In addition, the search for genes to explain disease erases the line between what is normal and what is pathological, with a growing tendency towards considering individuals with no or very mild clinical manifestations as being "ill." The great emphasis on genomics may lead to both an exaggerated attention to genetics rather than social and environmental factors and to a reductionism that favors sociobiological explanations for human behavior. In addition, in this scenario, the right to information may paradoxically stimulate some to consume goods and services in order to prevent a hypothetical illness that could occur at some point in time as a result of genetic predisposition-goods and services that may not be available to everyone. It is essential that such issues be considered with the same urgency with which the genomic paradigm is being developed.
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页码:189 / 197
页数:9
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