Optimizing Health and Health Care Systems for Children with Special Health Care Needs Using the Life Course Perspective

被引:46
|
作者
Bethell, Christina D. [1 ]
Newacheck, Paul W. [2 ]
Fine, Amy [3 ]
Strickland, Bonnie B. [4 ]
Antonelli, Richard C. [5 ]
Wilhelm, Cambria L. [1 ]
Honberg, Lynda E. [4 ]
Wells, Nora [6 ]
机构
[1] Oregon Hlth & Sci Univ, Child & Adolescent Hlth Measurement Initiat, Portland, OR 97201 USA
[2] Univ Calif San Francisco, Dept Pediat, Philip R Lee Inst Hlth Policy Studies, San Francisco, CA USA
[3] Ctr Study Social Policy, Washington, DC USA
[4] Hlth Resources & Serv Adm, Maternal & Child Hlth Bur, Rockville, MD USA
[5] Harvard Univ, Sch Med, Div Gen Pediat, Childrens Hosp Boston, Boston, MA USA
[6] Family Voices, Lexington, MA USA
关键词
Life course; Children; Children with special health care needs; Health care quality; Medical home; CHILDHOOD HEALTH; DISPARITIES; RESILIENCE; CONSEQUENCES; NEUROBIOLOGY; EXPERIENCES; SERVICES; ORIGINS; DISEASE; POLICY;
D O I
10.1007/s10995-013-1371-1
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
To date, life course research in maternal and child health has largely focused on elucidating fetal and early life influences on adult health and less on promoting the health of children with special health care needs (CSHCN). Consideration of life course theory (LCT) for CSHCN is especially important given their increasing prevalence and comorbidity, their disproportionate vulnerability to weaknesses or instability in the health care system, and the growing evidence linking child and adult health and quality of life. In this commentary we seek to advance the consideration of LCT for CSHCN. We (1) briefly summarize key issues and the importance of a life course approach for CSHCN; (2) present illustrative findings from population-based cross-sectional data that serve to generate hypotheses that can be more rigorously examined when population-based longitudinal data become available; and (3) discuss the application of life course principles as a driving force in the continued implementation and improvement of integrated systems of care for CSHCN.
引用
收藏
页码:467 / 477
页数:11
相关论文
共 50 条
  • [11] Health care access for children with special health care needs in California
    Inkelas, M
    Smith, KA
    Kuo, AA
    Rudolph, L
    Igdaloff, S
    [J]. MATERNAL AND CHILD HEALTH JOURNAL, 2005, 9 (02) : S109 - S116
  • [12] Differentiating Subgroups of Children with Special Health Care Needs by Health Status and Complexity of Health Care Needs
    Bramlett, Matthew D.
    Read, Debra
    Bethell, Christina
    Blumberg, Stephen J.
    [J]. MATERNAL AND CHILD HEALTH JOURNAL, 2009, 13 (02) : 151 - 163
  • [13] Differentiating Subgroups of Children with Special Health Care Needs by Health Status and Complexity of Health Care Needs
    Matthew D. Bramlett
    Debra Read
    Christina Bethell
    Stephen J. Blumberg
    [J]. Maternal and Child Health Journal, 2009, 13 : 151 - 163
  • [14] Measuring parents' perspective on continuity of care in children with special health care needs
    Rucci, Paola
    Latour, Jos
    Zanello, Elisa
    Calugi, Simona
    Vandini, Silvia
    Faldella, Giacomo
    Fantini, Maria Pia
    [J]. INTERNATIONAL JOURNAL OF INTEGRATED CARE, 2015, 15
  • [15] Care coordination in the medical home: Integrating health and related systems of care for children with special health care needs
    Alexander, J
    Cartwright, JD
    Desch, LW
    Duby, JC
    Edwards, DR
    Elias, ER
    Johnson, CP
    Levey, EB
    Murphy, NA
    Myers, S
    Tilton, AH
    [J]. PEDIATRICS, 2005, 116 (05) : 1238 - 1244
  • [16] Transition Care for Children With Special Health Care Needs
    Davis, Alaina M.
    Brown, Rebekah F.
    Taylor, Julie Lounds
    Epstein, Richard A.
    McPheeters, Melissa L.
    [J]. PEDIATRICS, 2014, 134 (05) : 900 - 908
  • [17] The Prehospital Care of Children With Special Health Care Needs
    Kaziny, Brent D.
    [J]. CLINICAL PEDIATRIC EMERGENCY MEDICINE, 2014, 15 (01) : 89 - 95
  • [18] Children with special health care needs and managed care
    Obrinsky, D
    Girling, L
    Kieschnick, M
    Miller, PM
    Steinman, PA
    Wilson, F
    Wilson, MJ
    Young, J
    [J]. PEDIATRICS, 2005, 116 (02) : 520 - 521
  • [19] Respite Care for Children With Special Health Care Needs
    Nageswaran, Savithri
    [J]. ARCHIVES OF PEDIATRICS & ADOLESCENT MEDICINE, 2009, 163 (01): : 49 - 54
  • [20] Emergency Care of Children With Special Health Care Needs
    Abramo, Thomas J.
    [J]. CLINICAL PEDIATRIC EMERGENCY MEDICINE, 2012, 13 (02) : 63 - 64