A need for national registries and international collaborative research in multiple sclerosis

被引:7
|
作者
Myhr, K. M. [1 ,2 ,3 ,4 ]
Grytten, N. [3 ,4 ]
Torkildsen, O. [3 ,4 ]
Wergeland, S. [3 ,4 ]
Bo, L. [3 ,4 ]
Pugliatti, M. [5 ]
Aarseth, J. H. [1 ,2 ,4 ]
机构
[1] Haukeland Hosp, Dept Neurol, Norwegian Multiple Sclerosis Registry, N-5020 Bergen, Norway
[2] Haukeland Hosp, Dept Neurol, Biobank, N-5020 Bergen, Norway
[3] Haukeland Hosp, Dept Neurol, Norwegian Multiple Sclerosis Competence Ctr, N-5020 Bergen, Norway
[4] Univ Bergen, Dept Clin Med, Kristian Gerhard Jebsen Ctr MS Res, Bergen, Norway
[5] Univ Sassari, Dept Clin & Expt Med, I-07100 Sassari, Italy
来源
关键词
multiple sclerosis; National Registry; Biobank; collaborative research; NORWAY; RISK;
D O I
10.1111/ane.12039
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Objective - There is a growing need to identify biomarkers for early diagnosis and treatment in multiple sclerosis (MS). Such markers may also be involved in the cause and pathogenesis of the disease. Methods - Established national MS registries have through several decades allowed data collection to facilitate MS research. The European MS Registry (EUReMS) is a recent international collaborative effort to ultimately promote MS research and quality in health care across European countries. International collaborations based on such initiatives can facilitate studies on new biomarkers in MS. Results - Important studies on data from MS registries, as well as national-and international collaboration networks have been conducted. Conclusion - The symposium "National MS Registries - to improve health care and research in Multiple Sclerosis" held in Bergen, Norway, earlier this year aimed to highlight the need and benefit from national MS registries and promote international collaborative research in MS.
引用
收藏
页码:1 / 3
页数:3
相关论文
共 50 条
  • [41] Big Multiple Sclerosis Data network: an international registry research network
    Glaser, Anna
    Butzkueven, Helmut
    van der Walt, Anneke
    Gray, Orla
    Spelman, Tim
    Zhu, Chao
    Trojano, Maria
    Iaffaldano, Pietro
    Battaglia, Mario A.
    Lucisano, Giuseppe
    Vukusic, Sandra
    Vukusic, Irena
    Casey, Romain
    Horakova, Dana
    Drahota, Jiri
    Magyari, Melinda
    Joensen, Hanna
    Pontieri, Luigi
    Elberling, Frederik
    Klyve, Pernilla
    Mouresan, Elena Flavia
    Forsberg, Lars
    Hillert, Jan
    [J]. JOURNAL OF NEUROLOGY, 2024, 271 (06) : 3616 - 3624
  • [42] Multiple Sclerosis and Employment: A Research Review Based on the International Classification of Function
    Frain, Michael P.
    Bishop, Malachy
    Rumrill, Phillip D., Jr.
    Chan, Fong
    Tansey, Timothy N.
    Strauser, David
    Chiu, Chung-Yi
    [J]. REHABILITATION RESEARCH POLICY AND EDUCATION, 2015, 29 (02): : 153 - 164
  • [43] National nephrectomy registries: Reviewing the need for population-based data
    Pearson, John
    Williamson, Timothy
    Ischia, Joseph
    Bolton, Damien M.
    Frydenberg, Mark
    Lawrentschuk, Nathan
    [J]. KOREAN JOURNAL OF UROLOGY, 2015, 56 (09) : 607 - 613
  • [45] Global assessment of characteristics of multiple sclerosis registries; A systematic review
    Ezabadi, Sajjad Ghane
    Sahraian, Mohammad Ali
    Maroufi, Hossein
    Shahrbaf, Mohammad Amin
    Eskandarieh, Sharareh
    [J]. MULTIPLE SCLEROSIS AND RELATED DISORDERS, 2022, 63
  • [46] International Collaborative Navigation Research
    Vinande, E.
    Pujara, N.
    Morton, Y.
    Marcus, R.
    van Graas, F.
    Pelgrum, W.
    [J]. PROCEEDINGS OF THE ION 2013 PACIFIC PNT MEETING, 2013, : 1104 - 1109
  • [47] Guidelines for international collaborative research
    Rosser, WW
    Culpepper, L
    Lam, CLK
    Parkerson, G
    Poon, V
    VanWeel, C
    [J]. FAMILY PRACTICE, 1997, 14 (04) : 330 - 334
  • [48] Contribution of national paediatric cancer registries to survey and research
    Sommelet, D
    Clavel, J
    Lacour, B
    [J]. ARCHIVES DE PEDIATRIE, 2005, 12 (06): : 814 - 816
  • [49] National and international kidney failure registries: characteristics, commonalities, and contrasts
    Ng, Monica S. Y.
    Charu, Vivek
    Johnson, David W.
    O'Shaughnessy, Michelle M.
    Mallett, Andrew J.
    [J]. KIDNEY INTERNATIONAL, 2022, 101 (01) : 23 - 35
  • [50] Collaboration is the new competition: developing sustainable international collaborative research delivered by a National Surgical Trainee Collaborative Group
    Croghan, Stefanie M.
    Mohan, Helen M.
    Bolger, Jarlath C.
    Boland, Michael R.
    Akmenkalne, Liga
    Fleming, Christina A.
    [J]. ANZ JOURNAL OF SURGERY, 2022, 92 (05) : 957 - 963