Disclosing Results to Genomic Research Participants: Differences That Matter

被引:8
|
作者
Blasimme, Alessandro [1 ]
Soulier, Alexandra [1 ]
Julia, Sophie [1 ]
Leonard, Samantha [1 ]
Cambon-Thomsen, Anne [1 ]
机构
[1] Univ Toulouse 3, Fac Med, INSERM, Dept Epidemiol & Sante Publ,UMR 1027, F-31062 Toulouse, France
来源
AMERICAN JOURNAL OF BIOETHICS | 2012年 / 12卷 / 10期
关键词
D O I
10.1080/15265161.2012.699149
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
引用
收藏
页码:20 / 22
页数:4
相关论文
共 50 条
  • [31] Short-term Psychological Outcomes of Disclosing Amyloid Imaging Results to Research Participants Who Do Not Have Cognitive Impairment
    Grill, Joshua D.
    Raritan, Rema
    Ernstrom, Karin
    Sultzer, David L.
    Bums, Jeffrey M.
    Donohue, Michael C.
    Johnson, Keith A.
    Aisen, Paul S.
    Sperling, Reisa A.
    Karlawish, Jason
    JAMA NEUROLOGY, 2020, 77 (12) : 1504 - 1513
  • [32] Disseminating research results to research participants and their communities
    Mfutso-Bengo, Joseph
    Ndebele, Paul
    Masiye, Francis
    MALAWI MEDICAL JOURNAL, 2008, 20 (02) : 64 - 66
  • [33] Disclosing genetic research results: Examples from practice
    Ormond, Kelly E.
    AMERICAN JOURNAL OF BIOETHICS, 2006, 6 (06): : 30 - 32
  • [34] Legislative Issues in Disclosing Financial Conflicts of Interest to Participants in Biomedical Research: Effectiveness and Methodology
    Kim, Jae Sun
    JOURNAL OF KOREAN MEDICAL SCIENCE, 2017, 32 (12) : 1910 - 1916
  • [35] Policies of academic medical centers for disclosing financial conflicts of interest to potential research participants
    Weinfurt, KP
    Dinan, MA
    Allsbrook, JS
    Friedman, JY
    Hall, MA
    Schulman, KA
    Sugarman, J
    ACADEMIC MEDICINE, 2006, 81 (02) : 113 - 118
  • [36] Disclosure of results to participants in dementia research
    Serge Gauthier
    Pedro Rosa-Neto
    Nature Reviews Neurology, 2013, 9 : 608 - 609
  • [37] The Return of Results of Deceased Research Participants
    Tasse, Anne Marie
    JOURNAL OF LAW MEDICINE & ETHICS, 2011, 39 (04): : 621 - 630
  • [38] Providing Individual Research Results to Participants
    Kaufman, David J.
    Lockhart, Nicole C.
    Brody, Lawrence C.
    JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2018, 320 (24): : 2600 - 2601
  • [39] The return of individual genomic results to research participants: design and pilot study of Tohoku Medical Megabank Project
    Kawame, Hiroshi
    Fukushima, Akimune
    Fuse, Nobuo
    Nagami, Fuji
    Suzuki, Yoichi
    Sakurai-Yageta, Mika
    Yasuda, Jun
    Yamaguchi-Kabata, Yumi
    Kinoshita, Kengo
    Ogishima, Soichi
    Takai, Takako
    Kuriyama, Shinichi
    Hozawa, Atsushi
    Nakaya, Naoki
    Nakamura, Tomohiro
    Minegishi, Naoko
    Sugawara, Junichi
    Suzuki, Kichiya
    Tomita, Hiroaki
    Uruno, Akira
    Kobayashi, Tomoko
    Aizawa, Yayoi
    Tokutomi, Tomoharu
    Yamamoto, Kayono
    Ohneda, Kinuko
    Kure, Shigeo
    Aoki, Yoko
    Katagiri, Hideki
    Ishigaki, Yasushi
    Sawada, Shojiro
    Sasaki, Makoto
    Yamamoto, Masayuki
    JOURNAL OF HUMAN GENETICS, 2022, 67 (01) : 9 - 17
  • [40] Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study
    Isaac Kisiangani
    Shukri F. Mohamed
    Catherine Kyobutungi
    Paulina Tindana
    Anita Ghansah
    Michele Ramsay
    Gershim Asiki
    BMC Medical Ethics, 23