A Framework for System-level Health Data Sharing

Circle of care is the term that has been used to provide context for health data sharing that is allowed by privacy regulation that occurs when a diverse team is collaborating to provide care to a patient. We introduce the concept of system-level health data sharing to capture the totality of health data that exists for a patient in a healthcare system across multiple health care organizations. MyPHR is a system-level health data-sharing framework that guides any healthcare system to set up interoperable, patient-centred health data sharing. We briefly introduce the components of MyPHR framework and then discuss its evaluation by a panel of experts who reviewed a demonstration walkthrough of the interfaces and data sharing that the framework supports.