Empower-DSD: Development of a patient education programme for children, adolescents, and young adults with differences of sex development (DSD) and their parents

被引:0
|
作者
Wiegmann, Sabine [1 ]
Ernst, Martina [1 ]
Ihme, Loretta [1 ]
Wechsung, Katja [1 ]
Kalender, Ute [1 ]
Stoeckigt, Barbara [1 ]
Richter-Unruh, Annette [2 ]
Voegler, Sander [2 ]
Hiort, Olaf [3 ]
Juergensen, Martina [3 ]
Marshall, Louise [3 ]
Menrath, Ingo [3 ]
Schneidewind, Julia [3 ]
Wagner, Isabel [3 ]
Rohayem, Julia [4 ]
Liesenkoetter, Klaus-Peter [5 ]
Wabitsch, Martin [6 ]
Fuchs, Malaika [6 ]
Herrmann, Gloria [6 ]
Luther, Henriette [6 ]
Ernst, Gundula [7 ]
Lehmann, Christine [8 ]
Haase, Martina [9 ]
Roll, Stephanie [1 ]
Schilling, Ralph [1 ]
Keil, Thomas [1 ,9 ,10 ]
Neumann, Uta [1 ]
机构
[1] Charite Univ Med Berlin, Berlin, Germany
[2] Klinikum Ruhr Univ Bochum, Bochum, Germany
[3] Univ Lubeck, Lubeck, Germany
[4] Univ Hosp Munster, Munster, Germany
[5] Endokrinologikum Berlin, Berlin, Germany
[6] Univ Klinikum Ulm, Ulm, Germany
[7] Hannover Med Sch, Hannover, Germany
[8] Forderkreis Schulung Chronisch Kranker Kinder & J, Berlin, Germany
[9] Wurzburg Univ, Wurzburg, Germany
[10] Bavarian Hlth & Food Safety Author, State Inst Hlth, Erlangen, Germany
来源
HORMONE RESEARCH IN PAEDIATRICS | 2022年 / 95卷 / SUPPL 2期
关键词
D O I
暂无
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
P1-177
引用
收藏
页码:380 / 380
页数:1
相关论文
共 50 条
  • [1] Results of Empower-DSD: a patient education programme for children, adolescents, and young adults with differences of sex development (DSD) and their parents
    Neumann, Uta
    Wiegmann, Sabine
    Ernst, Martina
    Wechsung, Katja
    Kalender, Ute
    Stoeckigt, Barbara
    Richter-Unruh, Annette
    Holland, Cindy
    Hiort, Olaf
    Juergensen, Martina
    Marshall, Louise
    Doehnert, Ulla
    Schneidewind, Julia
    Wagner, Isabel
    Liesenkoetter, Klaus-Peter
    Wabitsch, Martin
    Fuchs, Malaika
    Herrmann, Gloria
    Bauer, Agnes
    Haase, Martina
    Grau, Anna
    Klose, Torben
    Roll, Stephanie
    Schilling, Ralph
    Keil, Thomas
    HORMONE RESEARCH IN PAEDIATRICS, 2023, 96 : 408 - 408
  • [2] Development and evaluation of a patient education programme for children, adolescents, and young adults with differences of sex development (DSD) and their parents: study protocol of Empower-DSD
    Sabine Wiegmann
    Martina Ernst
    Loretta Ihme
    Katja Wechsung
    Ute Kalender
    Barbara Stöckigt
    Annette Richter-Unruh
    Sander Vögler
    Olaf Hiort
    Martina Jürgensen
    Louise Marshall
    Ingo Menrath
    Julia Schneidewind
    Isabel Wagner
    Julia Rohayem
    Klaus-Peter Liesenkötter
    Martin Wabitsch
    Malaika Fuchs
    Gloria Herrmann
    Henriette Lutter
    Gundula Ernst
    Christine Lehmann
    Martina Haase
    Stephanie Roll
    Ralph Schilling
    Thomas Keil
    Uta Neumann
    BMC Endocrine Disorders, 22
  • [3] Development and evaluation of a patient education programme for children, adolescents, and young adults with differences of sex development (DSD) and their parents: study protocol of Empower-DSD
    Wiegmann, Sabine
    Ernst, Martina
    Ihme, Loretta
    Wechsung, Katja
    Kalender, Ute
    Stoeckigt, Barbara
    Richter-Unruh, Annette
    Voegler, Sander
    Hiort, Olaf
    Juergensen, Martina
    Marshall, Louise
    Menrath, Ingo
    Schneidewind, Julia
    Wagner, Isabel
    Rohayem, Julia
    Liesenkoetter, Klaus-Peter
    Wabitsch, Martin
    Fuchs, Malaika
    Herrmann, Gloria
    Lutter, Henriette
    Ernst, Gundula
    Lehmann, Christine
    Haase, Martina
    Roll, Stephanie
    Schilling, Ralph
    Keil, Thomas
    Neumann, Uta
    BMC ENDOCRINE DISORDERS, 2022, 22 (01)
  • [4] Health related quality of life in children, adolescents and young adults with differences of sex development (DSD) and their relatives after participating in a modular DSD- specific education programme (Empower-DSD)
    Neumann, Uta
    Schilling, Ralph
    Stockigt, Barbara
    Wiegmann, Sabine
    Ernst, Martina
    Winter, Mirja
    Wechsung, Katja
    Marshall, Louise
    Dohnert, Ulla
    Hiort, Olaf
    Rohayem, Julia
    Liesenkotter, Klaus-Peter
    Richter-Unruh, Annette
    Herrmann, Gloria
    Wabitsch, Martin
    Roll, Stephanie
    Keil, Thomas
    SEXUAL DEVELOPMENT, 2024, 17 : 18 - 19
  • [5] Development and validation of a short version of the Quality of Life DSD questionnaire (QoL-DSD) for parents of young children with disorders/differences of sex development
    Ali, Salma
    Gardner, Melissa
    Xin, Yiqiao
    O'Toole, Stuart
    Flett, Martyn
    Lee, Boma
    Steven, Mairi
    Sandberg, David E.
    Ahmed, S. Faisal
    SEXUAL DEVELOPMENT, 2022, 16 (SUPPL 1) : 84 - 85
  • [6] Diagnosis of DSD in Children-Development of New Tools for a Structured Diagnostic and Information Management Program within the Empower-DSD Study
    Wechsung, Katja
    Marshall, Louise
    Juergensen, Martina
    Neumann, Uta
    JOURNAL OF CLINICAL MEDICINE, 2022, 11 (13)
  • [7] Adolescents with Disorders of Sex Development (DSD)
    Kleinemeier, E.
    Juergensen, M.
    Lux, A.
    Widenka, P. M.
    Thyen, U.
    MONATSSCHRIFT KINDERHEILKUNDE, 2010, 158 (10) : 965 - 971
  • [8] Quality of health care in adolescents and adults with disorders/differences of sex development (DSD) in six European countries (dsd-LIFE)
    Ute Thyen
    Till Ittermann
    Steffen Flessa
    Holger Muehlan
    Wiebke Birnbaum
    Marion Rapp
    Louise Marshall
    Maria Szarras-Capnik
    Claire Bouvattier
    Baudewijntje P. C. Kreukels
    Anna Nordenstroem
    Robert Roehle
    Birgit Koehler
    BMC Health Services Research, 18
  • [9] Quality of health care in adolescents and adults with disorders/differences of sex development (DSD) in six European countries (dsd-LIFE)
    Thyen, Ute
    Ittermann, Till
    Flessa, Steffen
    Muehlan, Holger
    Birnbaum, Wiebke
    Rapp, Marion
    Marshall, Louise
    Szarras-Capnik, Maria
    Bouvattier, Claire
    Kreukels, Baudewijntje P. C.
    Nordenstroem, Anna
    Roehle, Robert
    Koehler, Birgit
    BMC HEALTH SERVICES RESEARCH, 2018, 18
  • [10] Subjective need for psychological support (PsySupp) in parents of children and adolescents with disorders of sex development (dsd)
    Elena Bennecke
    Knut Werner-Rosen
    Ute Thyen
    Eva Kleinemeier
    Anke Lux
    Martina Jürgensen
    Annette Grüters
    Birgit Köhler
    European Journal of Pediatrics, 2015, 174 : 1287 - 1297