Health related quality of life in children, adolescents and young adults with differences of sex development (DSD) and their relatives after participating in a modular DSD- specific education programme (Empower-DSD)

被引：0

作者：

Neumann, Uta ^{[1
]}

Schilling, Ralph ^{[2
]}

Stockigt, Barbara ^{[2
]}

Wiegmann, Sabine ^{[2
]}

Ernst, Martina ^{[1
]}

Winter, Mirja ^{[1
]}

Wechsung, Katja ^{[1
]}

Marshall, Louise ^{[3
]}

Dohnert, Ulla ^{[3
]}

Hiort, Olaf ^{[3
]}

Rohayem, Julia ^{[4
]}

Liesenkotter, Klaus-Peter ^{[5
]}

Richter-Unruh, Annette ^{[6
]}

Herrmann, Gloria ^{[6
]}

Wabitsch, Martin ^{[6
]}

Roll, Stephanie ^{[2
]}

Keil, Thomas ^{[2
,7
,8
]}

机构：

[1] Charite Univ Med Berlin, Clin Paediat Endocrinol & Diabetol, Ctr Chron Sick Children, D-13353 Berlin, Germany

[2] Charite Univ Med Berlin, Inst Social Med Epidemiol & Hlth Econ, Berlin, Germany

[3] Univ Lubeck, Div Paediat Endocrinol & Diabet, Dept Paediat & Adolescent Med, Lubeck, Germany

[4] Ostschweizer Sauglings & Kinderspital, Endocrinol, St Gallen, Switzerland

[5] Endokrinologikum Berlin, Ctr Hormonal & Metab Disorders, Berlin, Germany

[6] Univ Klinikum Ulm, Klin Kinder & Jugendmed, Sekt Padiatr Endokrinol & Diabetol, Hormonzentrum Kinder & Jugendl, Ulm, Germany

[7] Wurzburg Univ, Inst Clin Epidemiol & Biometry, Wurzburg, Germany

[8] State Inst Hlth, Bavarian Hlth & Food Safety Author, Erlangen, Germany

来源：

SEXUAL DEVELOPMENT | 2024年 / 17卷

关键词：

D O I：

暂无

中图分类号：

Q [生物科学];

学科分类号：

07 ; 0710 ; 09 ;

摘要：

OC 1.3

引用

页码：18 / 19

页数：2

共 19 条

[1] Empower-DSD: Development of a patient education programme for children, adolescents, and young adults with differences of sex development (DSD) and their parents
Wiegmann, Sabine
Ernst, Martina
Ihme, Loretta
Wechsung, Katja
Kalender, Ute
Stoeckigt, Barbara
Richter-Unruh, Annette
Voegler, Sander
Hiort, Olaf
Juergensen, Martina
Marshall, Louise
Menrath, Ingo
Schneidewind, Julia
Wagner, Isabel
Rohayem, Julia
Liesenkoetter, Klaus-Peter
Wabitsch, Martin
Fuchs, Malaika
Herrmann, Gloria
Luther, Henriette
Ernst, Gundula
Lehmann, Christine
Haase, Martina
Roll, Stephanie
Schilling, Ralph
Keil, Thomas
Neumann, Uta
HORMONE RESEARCH IN PAEDIATRICS, 2022, 95 (SUPPL 2): : 380 - 380
[2] Results of Empower-DSD: a patient education programme for children, adolescents, and young adults with differences of sex development (DSD) and their parents
Neumann, Uta
Wiegmann, Sabine
Ernst, Martina
Wechsung, Katja
Kalender, Ute
Stoeckigt, Barbara
Richter-Unruh, Annette
Holland, Cindy
Hiort, Olaf
Juergensen, Martina
Marshall, Louise
Doehnert, Ulla
Schneidewind, Julia
Wagner, Isabel
Liesenkoetter, Klaus-Peter
Wabitsch, Martin
Fuchs, Malaika
Herrmann, Gloria
Bauer, Agnes
Haase, Martina
Grau, Anna
Klose, Torben
Roll, Stephanie
Schilling, Ralph
Keil, Thomas
HORMONE RESEARCH IN PAEDIATRICS, 2023, 96 : 408 - 408
[3] Development and evaluation of a patient education programme for children, adolescents, and young adults with differences of sex development (DSD) and their parents: study protocol of Empower-DSD
Sabine Wiegmann
Martina Ernst
Loretta Ihme
Katja Wechsung
Ute Kalender
Barbara Stöckigt
Annette Richter-Unruh
Sander Vögler
Olaf Hiort
Martina Jürgensen
Louise Marshall
Ingo Menrath
Julia Schneidewind
Isabel Wagner
Julia Rohayem
Klaus-Peter Liesenkötter
Martin Wabitsch
Malaika Fuchs
Gloria Herrmann
Henriette Lutter
Gundula Ernst
Christine Lehmann
Martina Haase
Stephanie Roll
Ralph Schilling
Thomas Keil
Uta Neumann
BMC Endocrine Disorders, 22
[4] Development and evaluation of a patient education programme for children, adolescents, and young adults with differences of sex development (DSD) and their parents: study protocol of Empower-DSD
Wiegmann, Sabine
Ernst, Martina
Ihme, Loretta
Wechsung, Katja
Kalender, Ute
Stoeckigt, Barbara
Richter-Unruh, Annette
Voegler, Sander
Hiort, Olaf
Juergensen, Martina
Marshall, Louise
Menrath, Ingo
Schneidewind, Julia
Wagner, Isabel
Rohayem, Julia
Liesenkoetter, Klaus-Peter
Wabitsch, Martin
Fuchs, Malaika
Herrmann, Gloria
Lutter, Henriette
Ernst, Gundula
Lehmann, Christine
Haase, Martina
Roll, Stephanie
Schilling, Ralph
Keil, Thomas
Neumann, Uta
BMC ENDOCRINE DISORDERS, 2022, 22 (01)
[5] Quality of health care in adolescents and adults with disorders/differences of sex development (DSD) in six European countries (dsd-LIFE)
Ute Thyen
Till Ittermann
Steffen Flessa
Holger Muehlan
Wiebke Birnbaum
Marion Rapp
Louise Marshall
Maria Szarras-Capnik
Claire Bouvattier
Baudewijntje P. C. Kreukels
Anna Nordenstroem
Robert Roehle
Birgit Koehler
BMC Health Services Research, 18
[6] Quality of health care in adolescents and adults with disorders/differences of sex development (DSD) in six European countries (dsd-LIFE)
Thyen, Ute
Ittermann, Till
Flessa, Steffen
Muehlan, Holger
Birnbaum, Wiebke
Rapp, Marion
Marshall, Louise
Szarras-Capnik, Maria
Bouvattier, Claire
Kreukels, Baudewijntje P. C.
Nordenstroem, Anna
Roehle, Robert
Koehler, Birgit
BMC HEALTH SERVICES RESEARCH, 2018, 18
[7] Health-related quality of life in children with disorders of sex development (DSD)
Juergensen, Martina
Lux, Anke
Wien, Sebastian Benedikt
Kleinemeier, Eva
Hiort, Olaf
Thyen, Ute
EUROPEAN JOURNAL OF PEDIATRICS, 2014, 173 (07) : 893 - 903
[8] Health-related quality of life in children with disorders of sex development (DSD)
Martina Jürgensen
Anke Lux
Sebastian Benedikt Wien
Eva Kleinemeier
Olaf Hiort
Ute Thyen
European Journal of Pediatrics, 2014, 173 : 893 - 903
[9] Development and validation of a short version of the Quality of Life DSD questionnaire (QoL-DSD) for parents of young children with disorders/differences of sex development
Ali, Salma
Gardner, Melissa
Xin, Yiqiao
O'Toole, Stuart
Flett, Martyn
Lee, Boma
Steven, Mairi
Sandberg, David E.
Ahmed, S. Faisal
SEXUAL DEVELOPMENT, 2022, 16 (SUPPL 1) : 84 - 85
[10] Development of Health-Related Quality of Life Instruments for Young Children With Disorders of Sex Development (DSD) and Their Parents
Alpern, Adrianne N.
Gardner, Melissa
Kogan, Barry
Sandberg, David E.
Quittner, Alexandra L.
JOURNAL OF PEDIATRIC PSYCHOLOGY, 2017, 42 (05) : 544 - 558

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