REGISTRY TO ENROLL-HD: TRANSITION IN EUROPE AND THE FOUNDING OF A NEW RESEARCH PLATFORM

被引:0
|
作者
Fullam, R. [1 ]
Giuliano, J. [2 ]
Knipe, C. [2 ]
机构
[1] European Huntingtons Dis Network, Cardiff, S Glam, Wales
[2] CHDI Management CHDI Fdn Inc, Princeton, NJ USA
关键词
D O I
10.1136/jnnp-2014-309032.205
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
J22
引用
收藏
页码:A72 / A73
页数:3
相关论文
共 36 条
  • [31] ERS is founding member of a new Alliance for Biomedical Research in Europe
    Nicod, L. P.
    Kamel, N.
    Ward, B.
    Decramer, M.
    Sibille, Y.
    Lambrecht, B.
    Dive, C.
    Smith, U.
    Sipido, K. R.
    EUROPEAN RESPIRATORY JOURNAL, 2011, 38 (02) : 237 - 238
  • [32] Use of the Enroll-HD Observational Study as a Platform for Enriching Data Collection in a 12-month Nested Randomized Controlled Feasibility Study of a Physical Activity Intervention in People with Huntington's Disease (PACE-HD)
    Drew, Cheney J.
    Handley, Olivia
    Townhill, Jenny
    Williams-Thomas, Rhys
    Busse, Monica
    Quinn, Lori
    NEUROTHERAPEUTICS, 2019, 16 (04) : 1374 - 1374
  • [33] Association Between Functional Endpoints and Quality-of-Life Outcomes in Huntington's Disease Gene Carriers: Results From a Real-World Data Analysis of the Enroll-HD Global Registry
    Risson, V
    Bezlyak, V
    Zou, M.
    Smieszek, T.
    Malepati, A.
    Tiwari, S.
    VALUE IN HEALTH, 2022, 25 (12) : S465 - S466
  • [34] The CERTAIN Registry: A Novel, Web-Based Registry and Research Platform for Pediatric Renal Transplantation in Europe
    Plotnicki, L.
    Kohl, C. D.
    Hoecker, B.
    Krupka, K.
    Rahmel, A.
    Pape, L.
    Hoyer, P.
    Marks, S. D.
    Webb, N. J. A.
    Soeylemezoglu, O.
    Topaloglu, R.
    Szabo, A. J.
    Seeman, T.
    Cornelissen, E. A. Marlies
    Knops, N.
    Grenda, R.
    Toenshoff, B.
    TRANSPLANTATION PROCEEDINGS, 2013, 45 (04) : 1414 - 1417
  • [35] The CERTAIN Registry: A Novel, Web-Based Registry and Research Platform for Paediatric Renal Transplantation in Europe
    Plotnicki, L.
    Hoecker, B.
    Krupka, K.
    Kohl, C.
    Rahmel, A.
    Pape, L.
    Hoyer, P.
    Marks, S. D.
    Webb, N.
    Soeylemezoglu, O.
    Topaloglu, R.
    Szabo, A.
    Seeman, T.
    Cornelissen, E. A. M.
    Knops, N.
    Grenda, R.
    Toenshoff, B.
    TRANSPLANTATION, 2012, 94 (10) : 1210 - 1210
  • [36] Cooperative and interdisciplinary research platform for paediatric renal transplantation in Europe: the web-based CERTAIN Registry
    Plotnicki, Lukasz
    Hoecker, Britta
    Krupka, Kai
    Kohl, Christian D.
    Rahmel, Axel
    Pape, Lars
    Hoyer, Peter
    Marks, Stephen D.
    Webb, Nick
    Soylemezoglu, Oguz
    Topaloglu, Rezan
    Attila, Szabo
    Seeman, Tomas
    Cornelissen, E. A. Marlies
    Knops, Noel
    Grenda, Ryszard
    Toenshoff, Burkhard
    PEDIATRIC NEPHROLOGY, 2012, 27 (09) : 1828 - 1828