Expectations and Concerns Towards New Extended Half-Life (EHL) Products - Results of Surveys Among Haemophilia Patients from the Dach Region

被引:0
|
作者
von Mackensen, Sylvia [1 ]
Kalnins, Werner [2 ]
Lino, Hostettler [3 ]
Joerg, Krucker [3 ]
Albisetti, Manuela [4 ,5 ]
Weiss, Josef [6 ]
Pabinger, Ingrid [7 ]
Oldenburg, Johannes [8 ]
机构
[1] Univ Med Ctr Hamburg Eppendorf, Inst Med Psychol, Hamburg-Eppendorf, Germany
[2] German Haemophilia Soc DHG, Hamburg, Germany
[3] Swiss Hemophilia Assoc SHG, Altstatten, Switzerland
[4] Swiss Hemophilia Network SHN, Zurich, Switzerland
[5] Univ Childrens Hosp, Dept Hematol, Zurich, Switzerland
[6] Austrian Hemophilia Soc OHG, Vienna, Austria
[7] Med Univ Vienna, Dept Med I, Vienna, Austria
[8] Univ Clin Bonn, Inst Expt Haematol & Transfus Med, Bonn, Germany
关键词
D O I
暂无
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
引用
收藏
页数:4
相关论文
共 46 条
  • [21] Real World Analysis of Coagulation Factor IX Utilization and Costs in Hemophilia B Patients Switching From Standard Half-Life To Extended Half-Life Products
    Tortella, B. J.
    Fogarty, P. F.
    Alvir, J.
    Mcdonald, M.
    Spurden, D.
    Pleil, A. M.
    HAEMOPHILIA, 2017, 23 : 41 - 42
  • [22] Measuring the impact of changing from standard half-life (SHL) to extended half-life (EHL) FVIII prophylaxis on health-related quality of life (HRQoL) in boys with moderate/severe haemophilia A: Lessons learned with the CHO-KLAT tool
    Carcao, Manuel
    Zunino, Laura
    Young, Nancy L.
    Dover, Saunya
    Bouskill, Vanessa
    Hilliard, Pamela
    Price, Victoria E.
    Blanchette, Victor S.
    HAEMOPHILIA, 2020, 26 (01) : 73 - 78
  • [23] Real World Data Analysis of Coagulation Factor IX Costs in Specific Patients with Hemophilia B Switching from Standard Half-Life to Extended Half-Life Products
    Tortella, Bartholomew J.
    Fogarty, Patrick F.
    Alvir, Jose
    McDonald, Margaret
    Spurden, Dean
    Pleil, Andreas M.
    BLOOD, 2016, 128 (22)
  • [24] Perception of Actual Factor Concentrates and Expectations Towards Future Treatment with New Long-Lasting Products - Results of a Survey Among Haemophilia Patients in Germany
    von Mackensen, Sylvia
    Heinrich, Struck
    Kalnins, Werner
    Oldenburg, Johannes
    BLOOD, 2015, 126 (23)
  • [25] Improvement in health-related quality of life in patients with haemophilia B treated with nonacog beta pegol, a new extended half-life recombinant FIX product
    Chowdary, P.
    Kearney, S.
    Regnault, A.
    Hoxer, C. S.
    Yee, D. L.
    HAEMOPHILIA, 2016, 22 (04) : E267 - E274
  • [26] HOw Patients view Extended half-life products: Impressions from real-world experience (The HOPE study)
    Khair, Kate
    Pollard, Debra
    Harrison, Catherine
    Hook, Susan
    O'Driscoll, Mike
    Holland, Michael
    HAEMOPHILIA, 2019, 25 (05) : 814 - 820
  • [27] FACTOR DISPENSATION AND EXPENDITURES IN HEMOPHILIA B PATIENTS SWITCHING FROM STANDARD HALF-LIFE TO EXTENDED HALF-LIFE RECOMBINANT FACTOR IX REPLACEMENT PRODUCTS: REAL-WORLD ANALYSIS IN JAPAN
    Karumori, T.
    Chhabra, A.
    Alvir, J.
    Fogarty, P. F.
    Spurden, D.
    Tortella, B. J.
    Rubinstein, E.
    Pleil, A.
    VALUE IN HEALTH, 2018, 21 : S111 - S111
  • [28] Perception of Actual Factor Concentrates and Expectations Towards Future Treatment with New Long-Lasting Products - Results of a Survey Among Haemophilia Patients in Germany - Analysis of Open Questions
    Kalnins, Werner
    Miesbach, Wolfgang A.
    von Mackensen, Sylvia
    BLOOD, 2015, 126 (23)
  • [29] FVIII post infusion monitoring global study: Results and analysis of newer and extended half-life (EHL) FVIII products across external quality assessment programmes of ECAT, UK NEQAS BC and RCPAQAP
    Williams, Anna
    Meijer, Piet
    Dean, Elysse
    Reily-Stitt, Chris
    Jennings, Ian
    Kitchen, Steve
    Walker, Isobel
    HAEMOPHILIA, 2024, 30 : 83 - 83
  • [30] Long-term real-world health care comparison of expenditures and international units dispensed for haemophilia A patients switching to extended from standard half-life recombinant factor VIII products
    Tortella, B. J.
    Chhabra, A.
    Fogarty, P.
    Rubinstein, E.
    Young, L.
    Alvir, J.
    HAEMOPHILIA, 2019, 25 : 56 - 56