Ask: a health advocacy program for adolescents with an intellectual disability: a cluster randomised controlled trial

被引:30
|
作者
Lennox, Nicholas [1 ]
Ware, Robert [1 ,2 ]
Carrington, Suzanne [3 ]
O'Callaghan, Michael [1 ]
Williams, Gail [2 ]
McPherson, Lyn [1 ]
Bain, Chris [1 ,4 ]
机构
[1] Univ Queensland, Mater Hosp, Queensland Ctr Intellectual & Dev Disabil, Brisbane, Qld 4101, Australia
[2] Univ Queensland, Sch Populat Hlth, Herston, Qld 4006, Australia
[3] Queensland Univ Technol, Sch Learning & Profess Studies, Kelvin Grove, Qld 4059, Australia
[4] Queensland Inst Med Res, Genet & Populat Hlth Div, Brisbane, Qld 4006, Australia
基金
英国医学研究理事会;
关键词
Intellectual disability; Health advocacy; Adolescent; School-based intervention; Doctor patient relations; Primary health care; General Practitioner; Health diary; Health check; IMPROVE HEALTH; PEOPLE; ADULTS; CARE; COMMUNICATION; INTERVENTIONS; PARTICIPATE; STRATEGIES; DISORDERS; BARRIERS;
D O I
10.1186/1471-2458-12-750
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Background: Adolescents with intellectual disability often have poor health and healthcare. This is partly as a consequence of poor communication and recall difficulties, and the possible loss of specialised paediatric services. Methods/Design: A cluster randomised trial was conducted with adolescents with intellectual disability to investigate a health intervention package to enhance interactions among adolescents with intellectual disability, their parents/carers, and general practitioners (GPs). The trial took place in Queensland, Australia, between February 2007 and September 2010. The intervention package was designed to improve communication with health professionals and families' organisation of health information, and to increase clinical activities beneficial to improved health outcomes. It consisted of the Comprehensive Health Assessment Program (CHAP), a one-off health check, and the Ask Health Diary, designed for on-going use. Participants were drawn from Special Education Schools and Special Education Units. The education component of the intervention was delivered as part of the school curriculum. Educators were surveyed at baseline and followed-up four months later. Carers were surveyed at baseline and after 26 months. Evidence of health promotion, disease prevention and case-finding activities were extracted from GPs clinical records. Qualitative interviews of educators occurred after completion of the educational component of the intervention and with adolescents and carers after the CHAP. Discussion: Adolescents with intellectual disability have difficulty obtaining many health services and often find it difficult to become empowered to improve and protect their health. The health intervention package proposed may aid them by augmenting communication, improving documentation of health encounters, and improving access to, and quality of, GP care. Recruitment strategies to consider for future studies in this population include ensuring potential participants can identify themselves with the individuals used in promotional study material, making direct contact with their families at the start of the study, and closely monitoring the implementation of the educational intervention.
引用
收藏
页数:12
相关论文
共 50 条
  • [31] EXAMINING THE IMPACT OF A SCHOOL-BASED SLEEP EDUCATION PROGRAM ON SLEEP IN SINGAPOREAN ADOLESCENTS: A CLUSTER-RANDOMISED CONTROLLED TRIAL
    Ng, A.
    Van Rijn, E.
    Koh, S.
    Vinogradova, K.
    Chee, N. I. Y. N.
    Lee, S. M.
    Lo, J. C.
    Gooley, J. J.
    Chee, M. W. L.
    SLEEP MEDICINE, 2019, 64 : S278 - S278
  • [32] Adolescents' use of purpose built shade in secondary schools: cluster randomised controlled trial
    Dobbinson, Suzanne J.
    White, Vanessa
    Wakefield, Melanie A.
    Jamsen, Kris M.
    White, Victoria
    Livingston, Patricia M.
    English, Dallas R.
    Simpson, Julie A.
    BMJ-BRITISH MEDICAL JOURNAL, 2009, 338
  • [33] Early intervention for adolescents with Patellofemoral Pain Syndrome - a pragmatic cluster randomised controlled trial
    Michael S Rathleff
    Ewa M Roos
    Jens L Olesen
    Sten Rasmussen
    BMC Musculoskeletal Disorders, 13
  • [34] A cluster randomized controlled trial testing the effectiveness of a school-based dental health education program for adolescents
    Redmond, CA
    Blinkhorn, FA
    Kay, EJ
    Davies, RM
    Worthingon, HV
    Blinkhorn, AS
    JOURNAL OF PUBLIC HEALTH DENTISTRY, 1999, 59 (01) : 12 - 17
  • [35] Effect of peer led programme for asthma education in adolescents: cluster randomised controlled trial
    Shah, S
    Peat, JK
    Mazurski, EJ
    Wang, H
    Sindhusake, D
    Bruce, C
    Henry, RL
    Gibson, PG
    BRITISH MEDICAL JOURNAL, 2001, 322 (7286): : 583 - 585
  • [36] Early intervention for adolescents with Patellofemoral Pain Syndrome - a pragmatic cluster randomised controlled trial
    Rathleff, Michael S.
    Roos, Ewa M.
    Olesen, Jens L.
    Rasmussen, Sten
    BMC MUSCULOSKELETAL DISORDERS, 2012, 13
  • [37] Weight reduction and dietary improvements in a cluster-randomised controlled trial for adults with intellectual disabilities
    Rostad-Tollefsen, Helen K.
    Kolset, Svein O.
    Retterstol, Kjetil
    Hesselberg, Heidi
    Nordstrom, Marianne
    FOOD & NUTRITION RESEARCH, 2023, 67
  • [38] Effectiveness of an adapted physical activity intervention on health-related physical fitness in adolescents with intellectual disability: a randomized controlled trial
    Yan Sun
    Siyue Yu
    Aiwei Wang
    Hardaway Chun-Kwan Chan
    Alison Xiaoting Ou
    Dexing Zhang
    Yaojie Xie
    Shirley S. M. Fong
    Yang Gao
    Scientific Reports, 12
  • [39] Effectiveness of an adapted physical activity intervention on health-related physical fitness in adolescents with intellectual disability: a randomized controlled trial
    Sun, Yan
    Yu, Siyue
    Wang, Aiwei
    Chan, Hardaway Chun-Kwan
    Ou, Alison Xiaoting
    Zhang, Dexing
    Xie, Yaojie
    Fong, Shirley S. M.
    Gao, Yang
    SCIENTIFIC REPORTS, 2022, 12 (01)
  • [40] Stigmatised attitudes towards intellectual disability: a randomised crossover trial
    Varughese, Sabu John
    Luty, Jason
    PSYCHIATRIC BULLETIN, 2010, 34 (08): : 318 - 322