The Locked-in Syndrome: Perspectives from Ethics, History, and Phenomenology

被引：0
|
作者：
Vidal, Fernando [1 ,2 ]
机构：
[1] ICREA Catalan Inst Res & Adv Studies, Barcelona, Spain
[2] Univ Rovira & Virgili, DAFITS, Med Anthropol Res Ctr, Ave Catalunya 35, Tarragona 43002, Spain
来源：
NEUROETHICS | 2020年 / 13卷 / 02期
关键词：
Locked-in syndrome (LIS); Amyotrophic lateral sclerosis (ALS); Paralysis; Self; Brain-computer interfaces (BCI); Personhood; Quality of life (QOL); Disorders of consciousness (DOC); Medical anthropology; Phenomenology; Chronic illness; Illness narratives; Disability studies; Biomedical ethics; Neuroethics;
D O I：
10.1007/s12152-019-09420-9
中图分类号：
B82 [伦理学（道德学）];
学科分类号：
摘要：
The existential situation of persons who suffer from the locked-in syndrome (LIS) raises manifold issues significant to medical anthropology, phenomenology, biomedical ethics, and neuroethics that have not yet been systematically explored. The present special issue ofNeuroethicsillustrates the joint effort of a consolidating network of scholars from various disciplines in Europe, North America and Japan to go in that direction, and to explore LIS beyond clinical studies and quality of life assessments.
引用
收藏
页码：115 / 118
页数：4
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