Environmental barriers and supports to the health, function, and participation of people with developmental and intellectual disabilities: Report from the State of the Science in Aging with Developmental Disabilities Conference

被引:25
|
作者
Hammel, Joy [1 ,2 ,3 ]
Jones, Robin [1 ,2 ,3 ]
Smith, Janet [1 ,2 ,3 ]
Sanford, Jon [4 ]
Bodine, Cathy [5 ]
Johnson, Mark [6 ]
机构
[1] Univ Illinois, Dept Occupat Therapy & Disabil & Human Dev, Chicago, IL 60608 USA
[2] Univ Illinois, Dept Disabil & Human Dev, Chicago, IL 60608 USA
[3] Univ Illinois, Dept Urban Planning & Policy, Chicago, IL 60608 USA
[4] Georgia Inst Technol, Coll Architecture, RERC Workpl Accommodat, Ctr AT & Environm Access, Atlanta, GA 30318 USA
[5] Univ Colorado, Hlth Sci Ctr, Dept Phys Med & Rehabil, Denver, CO 80203 USA
[6] Shepherd Ctr, Atlanta, GA 30309 USA
基金
美国医疗保健研究与质量局;
关键词
Aging; Intellectual and developmental disabilities; Environmental health; Participation;
D O I
10.1016/j.dhjo.2008.05.001
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: This article summarizes the proceedings of the Environmental Barriers and Supports to Health, Function and Participation Work Group that was part of the "State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Living" symposium. The aim was to provide a research and policy agenda targeting the assessment and evaluation of environmental factors influencing the health, function, and participation of people with developmental and intellectual disabilities (I/DD). Methods: Key environmental areas addressed were (1) the built environment including homes and communities; (2) assistive and information technology design and use; (3) social environment factors and interventions; and (4) environmental access and participation policies, legislation, and system change implications. Results: The group identified gaps in knowledge and priorities for future research, including (1) multivariate analyses of attributes of the built environment; (2) large-scale intervention trials of assistive and information technology use with people with cognitive disabilities; (3) development and testing of social, peer-mentoring, and self-management interventions as applied to people with I/DD; (4) incorporation of environmental health research methodologies, such as GIS mapping into I/DD research; (5) participatory action approaches that actively include people with I/DD in the research process; and (6) rigorous examination of the impact of legislative and policy initiatives related to least restrictive community living and participation with people with I/DD. Conclusion: Future research and policy initiatives should focus on examining how the environment (build, technological, social, and system level) influence community living and participation of people with intellectual disabilities. (C) 2008 Elsevier Inc. All rights reserved.
引用
收藏
页码:143 / 149
页数:7
相关论文
共 50 条
  • [21] Advancing Health Policy and Outcomes for People With Intellectual or Developmental Disabilities
    Pham, Hoangmai H.
    Benevides, Teal W.
    Andresen, May-Lynn
    Bahr, Madelyn
    Nicholson, Joanne
    Corey, Tim
    Jaremski, Jennifer E.
    Faughnan, Kristen
    Edelman, Miriam
    Hernandez-Hons, Alexis
    Langer, Carolyn
    Shore, Stephen
    Ausderau, Karla
    Burstin, Helen
    Hingle, Susan T.
    Kirk, Arethusa S.
    Johnson, Khaliliah
    Siasoco, Vincent
    Budway, Emma
    Kit-Wells, Meelin Dian Chin
    Cifra-Bean, Laura
    Damiani, Marco
    Eisenchenk, Shelby
    Finn, Chester
    Friedman, Merrill
    Onaiwu, Morenike Giwa
    Haythorn, Martha
    Jirikowic, Tracy
    Lo, Margaret C.
    Mackin, Coleen
    Mangrum, Thomas
    Matisse, Zanetha Amani
    Merahn, Steven
    Myers, Adam L.
    Nobbie, Patricia D.
    Siebert, Julie H.
    Skoch, Michael G.
    Smith, Ivanova
    Stasio, B. J.
    Sullivan, Maura K.
    Vuong, Huan
    Wheeler, Max
    Wigington, Tyler G.
    Woodward, Charlotte
    JAMA HEALTH FORUM, 2024, 5 (08):
  • [22] Environmental Barriers and Supports to Everyday Participation: A Qualitative Insider Perspective From People With Disabilities
    Hammel, Joy
    Magasi, Susan
    Heinemann, Allen
    Gray, David B.
    Stark, Susan
    Kisala, Pamela
    Carlozzi, Noelle E.
    Tulsky, David
    Garcia, Sofia F.
    Hahn, Elizabeth A.
    ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2015, 96 (04): : 578 - 588
  • [23] State of Science in Aging With Developmental Disabilities: Recommendations for research and policy
    Heller, Tamar
    Janicki, Matthew
    JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, 2008, 5 (01) : 26 - 26
  • [24] Gaps and Barriers to Sexual Health Education for People With Intellectual and Developmental Disabilities: OT's Role
    Koss, Elizabeth
    Robek, Natalie
    Dougherty, Megan
    Murray, Anna
    Weaver, Lindy
    Darragh, Amy
    AMERICAN JOURNAL OF OCCUPATIONAL THERAPY, 2021, 75
  • [25] EXPERIENCES IN THE EDUCATION OF HEALTHCARE PROFESSIONALS IN THE HEALTH AND HEALTHCARE OF PEOPLE WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES: FACILITATORS AND BARRIERS
    Raemy, S. L.
    Brown, H.
    Ailey, S.
    Miner, D. C.
    Macmillan, S.
    Barras, A. -C. H.
    Rodrigues, S. D. R.
    Velarde, M. R.
    Mayahara, M.
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2024, 68 (07) : 645 - 646
  • [26] Interventions to promote health: Crossing networks Of intellectual and developmental disabilities and aging
    Heller, Tamar
    Fisher, Dora
    Marks, Beth
    Hsieh, Kelly
    DISABILITY AND HEALTH JOURNAL, 2014, 7 : S24 - S32
  • [27] Trauma in People with Intellectual and Developmental Disabilities: Reactions of Parents and Caregivers to Research Participation
    Scotti, Joseph R.
    Stevens, Sarah B.
    Jacoby, Vanessa M.
    Bracken, Magdalene R.
    Freed, Rachel
    Schmidt, Elizabeth
    INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, 2012, 50 (03) : 199 - 206
  • [28] Review of the state of the science on employment and economic self-sufficiency for people with intellectual and developmental disabilities
    Nord, D.
    Kiernan, W.
    Luecking, R.
    Mank, D.
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2012, 56 (7-8) : 814 - 814
  • [29] State of the Field: The Need for Self-Report Measures of Health and Quality of Life for People With Intellectual and Developmental Disabilities
    Shogren, Karrie A.
    Bonardi, Alexandra
    Cobranchi, Chelsea
    Krahn, Gloria
    Murray, Alexa
    Robinson, Ann
    Havercamp, Susan M.
    JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, 2021, 18 (04) : 286 - 295
  • [30] Urbanicity, Health, and Access to Services for People With Intellectual Disability and Developmental Disabilities
    Fortney, Stoni
    Tasse, Marc J.
    AJIDD-AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, 2021, 126 (06): : 492 - 504