Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma

被引：98

作者：

Bousquet, J. ^{[1
,2
,3
,4
,5
,6
,126
,127
,128
,129
]}

Bedbrook, A. ^{[1
]}

Czarlewski, W. ^{[7
,256
]}

Onorato, G. L. ^{[1
]}

Arnavielhe, S. ^{[8
]}

Laune, D. ^{[8
,147
]}

Mathieu-Dupas, E. ^{[8
,147
]}

Fonseca, J. ^{[9
]}

Costa, E. ^{[10
,244
,245
]}

Lourenco, O. ^{[11
,12
,363
,364
]}

Morais-Almeida, M. ^{[13
,400
]}

Todo-Bom, A. ^{[14
,15
,521
,522
]}

Illario, M. ^{[16
,17
,320
,321
]}

Menditto, E. ^{[18
,386
]}

Canonica, G. W. ^{[19
,155
]}

Cecchi, L. ^{[20
,224
]}

Monti, R. ^{[21
,22
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,398
]}

Napoli, L. ^{[23
,413
]}

Ventura, M. T. ^{[24
,540
]}

De Feo, G. ^{[25
,269
]}

Fokkens, W. J. ^{[26
,291
]}

Chavannes, N. H. ^{[27
,226
]}

Reitsma, S. ^{[26
,291
]}

Cruz, A. A. ^{[28
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,253
]}

da Silva, J. ^{[29
,259
,260
]}

Serpa, F. S. ^{[30
,31
,503
]}

Larenas-Linnemann, D. ^{[32
,348
]}

Perez, J. M. Fuentes ^{[33
]}

Huerta-Villalobos, Y. R. ^{[33
,293
]}

Rivero-Yeverino, D. ^{[34
,476
]}

Rodriguez-Zagal, E. ^{[34
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Valiulis, A. ^{[35
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Dubakiene, R. ^{[37
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]}

Emuzyte, R. ^{[38
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]}

Kvedariene, V. ^{[39
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]}

Annesi-Maesano, I. ^{[40
,140
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]}

Blain, H. ^{[41
,42
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,177
]}

Bonniaud, P. ^{[43
]}

Bosse, I. ^{[44
,189
]}

Dauvilliers, Y. ^{[45
,46
,261
]}

Devillier, P. ^{[47
,274
]}

Fontaine, J. F. ^{[48
]}

Pepin, J. L. ^{[49
,50
,446
,447
]}

Pham-Thi, N. ^{[51
]}

Portejoie, F. ^{[1
]}

Picard, R. ^{[52
,453
]}

Roche, N. ^{[53
]}

Rolland, C. ^{[54
,483
]}

Schmidt-Grendelmeier, P. ^{[55
]}

Kuna, P. ^{[56
,180
]}

机构：

[1] CHRU Arnaud Villeneuve, Fdn Partenariale FMC VIA LR, MACVIA France, 371 Ave Doyen Gaston Giraud, F-34295 Montpellier 5, France

[2] INSERM, U 1168, VIMA Ageing Chron Dis Epidemiol Publ Hlth App, Villejuif, France

[3] Univ Versailles St Quentin En Yvelines, UMRS 1168, Montigny Le Bretonneux, France

[4] Euforea, Brussels, Belgium

[5] Humboldt Univ, Berlin Inst Hlth, Comprehens Allergy Ctr, Berlin, Germany

[6] Charite Univ Med Berlin, Dept Dermatol & Allergy, Berlin, Germany

[7] Med Consulting Czarlewski, Levallois Perret, France

[8] KYomed INNOV, Montpellier, France

[9] Univ Porto, Ctr Res Hlth Technol & Informat Syst, Faculdade Medicina, Medida, Lda Porto, Portugal

[10] Univ Porto, Fac Pharm & Competence Ctr Active & Healthy Agein, UCIBIO, REQUINTE, Porto, Portugal

[11] Univ Beira Interior, Fac Hlth Sci, Covilha, Portugal

[12] Univ Beira Interior, CICS UBI, Hlth Sci Res Ctr, Covilha, Portugal

[13] CUF Descobertas Hosp, Allergy Ctr, Lisbon, Portugal

[14] Ctr Hosp Univ Coimbra, Imunoalergol, Coimbra, Portugal

[15] Univ Coimbra, Fac Med, Coimbra, Portugal

[16] Campania Region, Div Hlth Innovat, Naples, Italy

[17] Federico II Univ Hosp Naples R & D DISMET, Naples, Italy

[18] Univ Naples Federico II, CIRFF, Naples, Italy

[19] Humanitas Univ, Humanitas Res Hosp, Personalized Med Clin Asthma & Allergy, Rozzano, Milan, Italy

[20] USL Toscana Ctr, SOS Allergol & Clin Immunol, Prato, Italy

[21] Univ Torino, Dept Med Sci, Allergy & Clin Immunol Unit, Turin, Italy

[22] Mauriziano Hosp, Turin, Italy

[23] Consortium Pharmacies & Serv COSAFER, Salerno, Italy

[24] Univ Bari Med Sch, Unit Geriatr Immunoallergol, Bari, Italy

[25] Univ Salerno, Dept Med, Surg & Dent Scuola Medica Salernitana, Salerno, Italy

[26] Amsterdam Univ Med Ctr AMC, Dept Otorhinolaryngol, Amsterdam, Netherlands

[27] Leiden Univ Med Ctr, Dept Publ Hlth & Primary Care, Leiden, Netherlands

[28] Univ Fed Bahia, ProAR Nucleo Excelencia Asma, Vitoria, Brazil

[29] WHO GARD Planning Grp, Salvador, BA, Brazil

[30] Fed Univ Santa Catarina UFSC, Thiago Univ Hosp, Dept Internal Med & Allerg Clin, Prof Polydoro Ernani Sao, Florianopolis, SC, Brazil

[31] Escola Super Ciencias Santa Casa Misericor Vitoria, Asthma Reference Ctr, Escola Super Ciencias, Vitoria, Spain

[32] Medica Clin Fdn & Hosp, Ctr Excellence Asthma & Allergy, Mexico City, DF, Mexico

[33] Hosp Gen Reg 1 Dr Carlos Mc Gregor Sanchez Navarr, Mexico City, DF, Mexico

[34] Allergist, Mexico City, DF, Mexico

[35] Vilnius Univ Inst Clin Med, Inst Hlth Sci Dept Publ Hlth, Clin Childrens Dis, Vilnius, Lithuania

[36] European Acad Paediat EAP UEMS SP, Brussels, Belgium

[37] Vilnius Univ, Clin Infect Chest Dis Dermatol & Allergol, Vilnius, Lithuania

[38] Vilnius Univ, Clin Childrens Dis, Fac Med, Vilnius, Lithuania

[39] Vilnius Univ, Fac Med, Vilnius, Lithuania

[40] Sorbonne Univ, Med Sch St Antoine, Dept Inst Pierre Louis Epidemiol & Publ Hlth, Epidemiol Allerg & Resp Dis,INSERM, Paris, France

[41] Montpellier Univ Hosp, Dept Geriatr, Montpellier, France

[42] Univ Montpellier, EA 2991, Euromov, Montpellier, France

[43] CHU Dijon, Dijon, France

[44] Allergist, La Rochelle, France

[45] Hop Gui Chauliac Montpellier, Dept Neurol, Sleep Unit, Montpellier, France

[46] INSERM, U1061, Montpellier, France

[47] Univ Paris Saclay, Hop Foch, Pole Malad Voies Resp, UPRES EA220, Suresnes, France

[48] Allergist, Reims, France

[49] Univ Grenoble Alpes, Lab HP2, Grenoble, INSERM U1042, Grenoble, France

[50] CHU Grenoble, Grenoble, France

来源：

CLINICAL AND TRANSLATIONAL ALLERGY | 2019年 / 9卷

关键词：

App; Asthma; Care pathways; MASK; mHealth; Rhinitis; DG Sante; CHRONIC RESPIRATORY-DISEASES; QUALITY-OF-LIFE; CLINICAL-PRACTICE GUIDELINES; WORLD-HEALTH-ORGANIZATION; ALLERGIC RHINITIS; PRECISION MEDICINE; EUROPEAN SYMPOSIUM; MOBILE TECHNOLOGY; SENTINEL NETWORK; GRADING QUALITY;

D O I：

10.1186/s13601-019-0252-0

中图分类号：

R392 [医学免疫学];

学科分类号：

100102 ;

摘要：

AimsMobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases.MethodsMASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients.StakeholdersInclude patients, health care professionals (pharmacists and physicians), authorities, patient's associations, private and public sectors.ResultsMASK is deployed in 23 countries and 17 languages. 26,000 users have registered.EU grants (2018)MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour).Lessons learnt(i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases.

引用

页数：19

共 12 条

[1] Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma (vol 9, 16, 2019)
Bousquet, J.
CLINICAL AND TRANSLATIONAL ALLERGY, 2019, 9 (01)
[2] MASK 2017: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma multimorbidity using real-world-evidence
Bousquet, J.
Arnavielhe, S.
Bedbrook, A.
Bewick, M.
Laune, D.
Mathieu-Dupas, E.
Murray, R.
Onorato, G. L.
Pepin, J. L.
Picard, R.
Portejoie, F.
Costa, E.
Fonseca, J.
Lourenco, O.
Morais-Almeida, M.
Todo-Bom, A.
Cruz, A. A.
da Silva, J.
Serpa, F. S.
Illario, M.
Menditto, E.
Cecchi, L.
Monti, R.
Napoli, L.
Ventura, M. T.
De Feo, G.
Larenas-Linnemann, D.
Fuentes Perez, M.
Huerta Villabolos, Y. R.
Rivero-Yeverino, D.
Rodriguez-Zagal, E.
Amat, F.
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Ryan, D.
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[3] MASK 2017: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma multimorbidity using real-world-evidence (vol 8, 45, 2018)
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