Digitally-enabled, patient-centred care in rhinitis and asthma multimorbidity: The ARIA-MASK-air® approach

被引:28
|
作者
Bousquet, Jean [1 ,2 ,3 ,4 ,5 ,6 ]
Anto, Josep M. [7 ,8 ,9 ,10 ]
Sousa-Pinto, Bernardo [11 ,12 ,13 ]
Czarlewski, Wienczyslawa [14 ,15 ]
Bedbrook, Anna [15 ]
Haahtela, Tari [16 ]
Klimek, Ludger [17 ,18 ]
Pfaar, Oliver [19 ]
Kuna, Piotr [20 ]
Kupczyk, Maciej [20 ]
Regateiro, Frederico S. [21 ,22 ,23 ]
Samolinski, Boleslaw [24 ]
Valiulis, Arunas [25 ,26 ,27 ]
Yorgancioglu, Arzu [28 ]
Arnavielhe, Sylvie [29 ]
Basagana, Xavier [7 ,8 ,9 ,10 ]
Bergmann, Karl C. [1 ,2 ,3 ,4 ]
Bosnic-Anticevich, Sinthia [30 ,31 ]
Brussino, Luisa [32 ,33 ]
Canonica, G. Walter [34 ,35 ]
Cardona, Victoria [36 ,37 ]
Cecchi, Lorenzo [38 ]
Chaves-Loureiro, Claudia [39 ]
Costa, Elisio [40 ,41 ]
Cruz, Alvaro A. [42 ,43 ]
Gemicioglu, Bilun [44 ]
Fokkens, Wytske J. [45 ]
Ivancevich, Juan Carlos [46 ]
Kraxner, Helga [47 ]
Kvedariene, Violeta [48 ,49 ]
Larenas-Linnemann, Desiree E. [50 ]
Laune, Daniel [51 ]
Louis, Renaud [52 ,53 ]
Makris, Michael [54 ]
Maurer, Marcus [1 ,2 ,3 ,4 ]
Melen, Erik [55 ,56 ]
Micheli, Yann [51 ]
Morais-Almeida, Mario [57 ]
Mullol, Joaquim [58 ,59 ,60 ]
Niedoszytko, Marek [61 ]
Okamoto, Yoshitaka [62 ,63 ]
Papadopoulos, Nikolaos G. [64 ]
Patella, Vincenzo [65 ,66 ]
Nhan Pham-Thi [67 ]
Rouadi, Philip W. [68 ,69 ]
Sastre, Joaquin [70 ]
Scichilone, Nicola [71 ]
Sheikh, Aziz [72 ]
Sofiev, Mikhail [73 ]
Taborda-Barata, Luis [74 ,75 ,76 ]
机构
[1] Charite Univ Med Berlin, Inst Allergol, Berlin, Germany
[2] Free Univ Berlin, Berlin, Germany
[3] Humboldt Univ, Berlin, Germany
[4] Fraunhofer Inst Translat Med & Pharmacol ITMP, Allergol & Immunol, Berlin, Germany
[5] Univ Hosp Montpellier, Montpellier, France
[6] CESP, Equipe Epidemiol Resp Integrat, INSERM, Villejuif, France
[7] Barcelona Inst Global Hlth, ISGlobal, Barcelona, Spain
[8] IMIM Hosp del Mar Med Res Inst, Barcelona, Spain
[9] Univ Pompeu Fabra UPF, Barcelona, Spain
[10] CIBER Epidemiolog & Salud Publ CIBERESP, Barcelona, Spain
[11] Univ Porto, Fac Med, MEDCIDS Dept Community Med Informat & Hlth Decis, Porto, Portugal
[12] Univ Porto, Fac Med, CINTESIS Hlth Res Network, Porto, Portugal
[13] Univ Porto, Fac Med, MEDCIDS, RISE Hlth Res Network, Porto, Portugal
[14] Med Consulting Czarlewski, Levallois Perret, France
[15] MASK Air, Montpellier, France
[16] Univ Helsinki, Helsinki Univ Hosp, Skin & Allergy Hosp, Helsinki, Finland
[17] Univ Med Mainz, Dept Otolaryngol Head & Neck Surg, Mainz, Germany
[18] Ctr Rhinol & Allergol, Wiesbaden, Germany
[19] Philipps Univ Marburg, Dept Otorhinolaryngol Head & Neck Surg, Sect Rhinol & Allergy, Univ Hosp Marburg, Marburg, Germany
[20] Med Univ Lodz, Barlicki Univ Hosp, Div Internal Med Asthma & Allergy, Lodz, Poland
[21] Ctr Hosp & Univ Coimbra, Allergy & Clin Immunol Unit, Coimbra, Portugal
[22] Univ Coimbra, Fac Med, Coimbra Inst Clin & Biomed Res, CIBB,ICBR, Coimbra, Portugal
[23] Univ Coimbra, Fac Med, Inst Immunol, Coimbra, Portugal
[24] Med Univ Warsaw, Dept Prevent Environm Hazards Allergol & Immunol, Warsaw, Poland
[25] Inst Clin Med, Vilnius, Lithuania
[26] Inst Hlth Sci, Vilnius, Lithuania
[27] Vilnius Univ, Med Fac, Vilnius, Lithuania
[28] Celal Bayar Univ, Fac Med, Dept Pulm Dis, Manisa, Turkiye
[29] GRADeS Occitanie, Toulouse, France
[30] Univ Sydney, Woolcock Inst Med Res, Qual Use Resp Med Grp, Sydney, NSW, Australia
[31] Sydney Local Hlth Dist, Sydney, NSW, Australia
[32] Univ Torino, Dept Med Sci, Allergy & Clin Immunol Unit, Turin, Italy
[33] Mauriziano Hosp, Turin, Italy
[34] Humanitas Univ, Dept Biomed Sci, Milan, Italy
[35] Humanitas Clin & Res Ctr IRCCS, Personalized Med Asthma & Allergy, Rozzano, Italy
[36] Hosp Valle De Hebron, Dept Internal Med, Allergy Sect, Barcelona, Spain
[37] ARADyAL Res Network, Barcelona, Spain
[38] USL Toscana Ctr, Sos Allergol & Clin Immunol, Prato, Italy
[39] Ctr Hosp & Univ Coimbra, Hosp Univ Coimbra, Pneumol Unit, Coimbra, Portugal
[40] Univ Porto Porto4Ageing, Fac Pharm, REQUINTE, UCIBIO, Porto, Portugal
[41] Univ Porto Porto4Ageing, Competence Ctr Act & Hlth Ageing, Porto, Portugal
[42] Univ Fed Bahia, Fundacao ProAR, Salvador, BA, Brazil
[43] GARD WHO Planning Grp, Salvador, BA, Brazil
[44] Istanbul Univ Cerrahpasa, Cerrahpasa Fac Med, Dept Pulm Dis, Istanbul, Turkiye
[45] Amsterdam Univ Med Ctr, Dept Otorhinolaryngol, Locat AMC, Amsterdam, Netherlands
[46] Clin Santa Isabel, Serv Alergia & Immunol, Buenos Aires, DF, Argentina
[47] Semmelweis Univ, Dept Otorhinolaryngol Head & Neck Surg, Budapest, Hungary
[48] Vilnius Univ, Fac Med, Inst Clin Med, Clin Chest Dis & Allergol, Vilnius, Lithuania
[49] Vilnius Univ, Fac Med, Inst Biomed Sci, Dept Pathol, Vilnius, Lithuania
[50] Med Sur Clin Fdn & Hosp, Ctr Excellence Asthma & Allergy, Mexico City, DF, Mexico
关键词
asthma; digital; MASK-air; mHealth; rhinitis; ALLERGIC RHINITIS; MOBILE TECHNOLOGY; GLOBAL ALLIANCE; WORK PRODUCTIVITY; ARIA; DISEASES; IMPACT; IMMUNOTHERAPY; VALIDATION; MANAGEMENT;
D O I
10.1002/clt2.12215
中图分类号
R392 [医学免疫学];
学科分类号
100102 ;
摘要
MASK-air((R)), a validated mHealth app (Medical Device regulation Class IIa) has enabled large observational implementation studies in over 58,000 people with allergic rhinitis and/or asthma. It can help to address unmet patient needs in rhinitis and asthma care. MASK-air((R)) is a Good Practice of DG Sante on digitally-enabled, patient-centred care. It is also a candidate Good Practice of OECD (Organisation for Economic Co-operation and Development). MASK-air((R)) data has enabled novel phenotype discovery and characterisation, as well as novel insights into the management of allergic rhinitis. MASK-air((R)) data show that most rhinitis patients (i) are not adherent and do not follow guidelines, (ii) use as-needed treatment, (iii) do not take medication when they are well, (iv) increase their treatment based on symptoms and (v) do not use the recommended treatment. The data also show that control (symptoms, work productivity, educational performance) is not always improved by medications. A combined symptom-medication score (ARIA-EAACI-CSMS) has been validated for clinical practice and trials. The implications of the novel MASK-air((R)) results should lead to change management in rhinitis and asthma.
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页数:30
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