Newborn Screening Is on a Collision Course with Public Health Ethics Comment

被引：13
|
作者：
Currier, Robert J. [1 ]
机构：
[1] Univ Calif San Francisco, Dept Pediat, San Francisco, CA 94158 USA
来源：
INTERNATIONAL JOURNAL OF NEONATAL SCREENING | 2022年 / 8卷 / 04期
关键词：
newborn screening; ethics; consent; DNA sequencing; genome; genomic newborn screening; Krabbe disease; Pompe disease; adrenoleukodystrophy; KRABBE DISEASE;
D O I：
10.3390/ijns8040051
中图分类号：
Q3 [遗传学];
学科分类号：
071007 ; 090102 ;
摘要：
Newborn screening was established over 50 years ago to identify cases of disorders that were serious, urgent, and treatable, mirroring the criteria of Wilson and Jungner. In the last decade, conditions have been added to newborn screening that do not strictly meet these criteria, and genomic newborn screening is beginning to be discussed. Some of these new and proposed additions to newborn screening entail serious public health ethical issues that need to be explored.
引用
收藏
页数：9
相关论文
共 50 条
  • [31] Public health and laboratory considerations regarding newborn screening for congenital cytomegalovirus
    Dollard, Sheila C.
    Schleiss, Mark R.
    Grosse, Scott D.
    [J]. JOURNAL OF INHERITED METABOLIC DISEASE, 2010, 33 : S249 - S254
  • [32] Early Check: translational science at the intersection of public health and newborn screening
    Bailey, Donald B., Jr.
    Gehtland, Lisa M.
    Lewis, Megan A.
    Peay, Holly
    Raspa, Melissa
    Shone, Scott M.
    Taylor, Jennifer L.
    Wheeler, Anne C.
    Cotten, Michael
    King, Nancy M. P.
    Powell, Cynthia M.
    Biesecker, Barbara
    Bishop, Christine E.
    Boyea, Beth Lincoln
    Duparc, Martin
    Harper, Blake A.
    Kemper, Alex R.
    Lee, Stacey N.
    Moultrie, Rebecca
    Okoniewski, Katherine C.
    Paquin, Ryan S.
    Pettit, Denise
    Porter, Katherine Ackerman
    Zimmerman, Scott J.
    [J]. BMC PEDIATRICS, 2019, 19 (1)
  • [33] Parental Consent for the Use of Residual Newborn Screening Bloodspots: Respecting Individual Liberty vs Ensuring Public Health EDITORIAL COMMENT
    Bayefsky, Michele J.
    Saylor, Katherine W.
    Berkman, Benjamin E.
    [J]. OBSTETRICAL & GYNECOLOGICAL SURVEY, 2015, 70 (11) : 686 - 688
  • [34] Public health and ethics: the case of prenatal screening and Down's syndrome
    Watson, Lorna
    [J]. JOURNAL OF PUBLIC HEALTH, 2021, 43 (03) : E493 - E494
  • [35] Ethics of health screening
    P. Sjögren
    [J]. British Dental Journal, 2012, 213 (9) : 434 - 434
  • [36] Public health ethics
    Rogers, W
    Brock, D
    [J]. BIOETHICS, 2004, 18 (06) : III - V
  • [37] ETHICS AND PUBLIC HEALTH
    Hurst, Samia A.
    [J]. ATELIERS DE L ETHIQUE-THE ETHICS FORUM, 2012, 7 (03): : 59 - 67
  • [38] Ethics in public health
    Olick, RS
    [J]. JOURNAL OF PUBLIC HEALTH MANAGEMENT AND PRACTICE, 2005, 11 (03): : 259 - 259
  • [39] Ethics and public health
    Lacronique, Jean-Francois
    [J]. ENVIRONNEMENT RISQUES & SANTE, 2011, 10 (06): : 431 - 432
  • [40] Ethics in public health
    Akhter, MN
    Northridge, ME
    [J]. AMERICAN JOURNAL OF PUBLIC HEALTH, 2002, 92 (07) : 1056 - 1056
12345