The experience of meditation for people with amyotrophic lateral sclerosis and their caregivers - a qualitative analysis

被引:25
|
作者
Marconi, Anna [1 ]
Gragnano, Gaia [1 ]
Lunetta, Christian [1 ]
Gatto, Ramona [1 ]
Fabiani, Viviana [1 ]
Tagliaferri, Aurora [3 ]
Rossi, Gabriella [1 ]
Sansone, Valeria [1 ]
Pagnini, Francesco [2 ,3 ]
机构
[1] Osped Niguarda Ca Granda, Fdn Serena Onlus, NEuroMuscularOmnictr NEMO, Milan, Italy
[2] Catholic Univ Milan, Dept Psychol, Milan, Italy
[3] Osped Niguarda Ca Granda, Milan, Italy
关键词
Amyotrophic lateral sclerosis; meditation; quality of life; caregivers; mindfulness; psychological interventions; OF-LIFE; MINDFULNESS; DEPRESSION; BURDEN; DIAGNOSIS;
D O I
10.1080/13548506.2015.1115110
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
There is a lack of studies about psychological interventions for people with amyotrophic lateral sclerosis (ALS) and their caregivers. We investigated the experience of a meditation training program tailored for ALS needs. People with ALS (pALS) and their caregivers that joined a meditation program for ALS were interviewed at the end of the program. Verbatims were analyzed with a qualitative approach. Both pALS and their caregivers reported a positive impact on their psychological well-being, promoted by an increase in acceptance and non-judgmental attitude. Furthermore, coping strategies seem to improve, with a positive effect on resilience skills. The ALS meditation training program seems to be an effective psychological intervention for the promotion of well-being in pALS and their caregivers.
引用
收藏
页码:762 / 768
页数:7
相关论文
共 50 条
  • [21] Anxiety and Depression in Patients with Amyotrophic Lateral Sclerosis and Their Caregivers
    Pagnini, Francesco
    Lunetta, Christian
    Banfi, Paolo
    Rossi, Gabriella
    Gorni, Ksenija
    Castelnuovo, Gianluca
    Corbo, Massimo
    Molinari, Enrico
    CURRENT PSYCHOLOGY, 2012, 31 (01) : 79 - 87
  • [22] The burden of apathy for caregivers of patients with amyotrophic lateral sclerosis
    Caga, Jashelle
    Hsieh, Sharpley
    Highton-Williamson, Elizabeth
    Zoing, Margaret C.
    Ramsey, Eleanor
    Devenney, Emma
    Ahmed, Rebekah M.
    Hogden, Anne
    Kiernan, Matthew C.
    AMYOTROPHIC LATERAL SCLEROSIS AND FRONTOTEMPORAL DEGENERATION, 2018, 19 (7-8) : 599 - 605
  • [23] Experiences of an Online Palliative Rehabilitation Programme for Spousal Caregivers of People With Amyotrophic Lateral Sclerosis and Cognitive and/or Behavioural Impairments: A Qualitative Interpretive Study
    Olesen, Lene Klem
    la Cour, Karen
    Nimmon, Laura
    With, Heidi
    Handberg, Charlotte
    ADVANCES IN REHABILITATION SCIENCE AND PRACTICE, 2024, 13
  • [24] Control in the absence of choice: A qualitative study on decision-making about gastrostomy in people with amyotrophic lateral sclerosis, caregivers, and healthcare professionals
    van Eenennaam, Remko M.
    Rave, Neele
    Kruithof, Willeke J.
    Kruitwagen-van Reenen, Esther T.
    van den Berg, Leonard H.
    Visser-Meily, Johanna A.
    Beelen, Anita
    PLOS ONE, 2023, 18 (09):
  • [25] QUALITY OF LIFE IN PATIENTS AND CAREGIVERS WITH AMYOTROPHIC LATERAL SCLEROSIS AND MULTIPLE SCLEROSIS
    Gauthier, Augusto
    Cavalla, Paola
    Plano, Federica
    Mutani, Roberto
    Chio, Adriano
    Vercellino, Marco
    QUALITY OF LIFE RESEARCH, 2005, 14 (09) : 2137 - 2137
  • [26] Qualitative Analysis of Initial Palliative Care Consultations in Amyotrophic Lateral Sclerosis
    Watt, Christine L.
    Smith, Ian C.
    Rice, Jill
    Murphy, Rebekah
    Breiner, Ari
    Duff, Maria L. V.
    Nogo, Danica
    Bush, Shirley H.
    Mcneely, Susan
    Buenger, Usha
    Zehrt, Belinda
    Zwicker, Jocelyn
    JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2024, 68 (01) : 43 - 52.e2
  • [27] Factors Influencing Psychosocial Well-Being in Family Caregivers of People with Amyotrophic Lateral Sclerosis
    Chu, Hyeon Sik
    Tak, Young Ran
    Kim, Seung Hyun
    JOURNAL OF KOREAN ACADEMY OF NURSING, 2018, 48 (04) : 454 - 464
  • [28] Mutual support groups for family caregivers of people with amyotrophic lateral sclerosis in Italy: A pilot study
    Cipolletta, Sabrina
    Gammino, Giorgia Rosamaria
    Francescon, Patrizia
    Palmieri, Arianna
    HEALTH & SOCIAL CARE IN THE COMMUNITY, 2018, 26 (04) : 556 - 563
  • [29] Psychosocial interventions for people with amyotrophic lateral sclerosis and motor neuron disease and their caregivers: a scoping review
    Oh, Juyeon
    An, Jiwon
    Park, Kyongok
    Park, Youngok
    BMC NURSING, 2024, 23 (01)
  • [30] Psychosocial interventions for people with amyotrophic lateral sclerosis and motor neuron disease and their caregivers: a scoping review
    Juyeon Oh
    Jiwon An
    Kyongok Park
    Youngok Park
    BMC Nursing, 23