Prioritizing Sexual and Reproductive Health Research and Care for People with Cystic Fibrosis: A 2023 Workshop Report From the Cystic Fibrosis Foundation Sexual Health, Reproduction, and Gender Research (SHARING) Working Group

被引：0
|
作者：
Leitner, D. [1 ]
Moy, C. [2 ]
Jain, R. [3 ]
Jessica, H. [2 ]
Wright, B. [2 ]
Poranski, M. [2 ]
Sjoberg, J. [2 ]
Taylor-Cousar, J. [4 ]
Georgeopoulis, A. [5 ]
Ladores, S. [6 ]
Trimble, A. [7 ]
Tangpricha, V [8 ]
Naz-Khan, F. [9 ]
Ramasamy, R. [10 ]
West, N. [11 ]
Delos Santos, R. [12 ]
Stansky, O. [13 ]
Wilson, A. [4 ]
Keller, A. [3 ]
Kazmerski, T. [14 ]
机构：
[1] Rutgers Robert Wood Johnson Med Sch, New Brunswick, NJ USA
[2] Cyst Fibrosis Fdn, Bethesda, MD USA
[3] Univ Texas Southwestern, Dallas, TX USA
[4] Natl Jewish Hlth, Denver, CO USA
[5] Massachusetts Gen Hosp, Boston, MA USA
[6] Univ Alabama, Tuscaloosa, AL USA
[7] Oregon Hlth & Sci Univ, Portland, OR USA
[8] Emory Univ, Atlanta, GA USA
[9] Univ Washington, Seattle, WA USA
[10] Univ Miami, Coral Gables, FL USA
[11] Johns Hopkins Univ, Sch Med, Baltimore, MD USA
[12] Seattle Childrens, Seattle, WA USA
[13] Univ Pittsburgh, Med Ctr, Pittsburgh, PA USA
[14] Univ Pittsburgh, Pediat, Pittsburgh, PA USA
来源：
JOURNAL OF SEXUAL MEDICINE | 2024年 / 21卷
关键词：
D O I：
10.1093/jsxmed/qdae001.252
中图分类号：
R5 [内科学]; R69 [泌尿科学（泌尿生殖系疾病）];
学科分类号：
1002 ; 100201 ;
摘要：
264
引用
下载
收藏
页数：2
相关论文
共 50 条
  • [41] Communication of information about reproductive and sexual health in cystic fibrosis. Patients, parents and caregivers' experience
    Havermans, Trudy
    Abbott, Janice
    Colpaert, Kristine
    De Boeck, Kris
    JOURNAL OF CYSTIC FIBROSIS, 2011, 10 (04) : 221 - 227
  • [42] What Deficits in Sexual and Reproductive Health Knowledge Exist among Women with Cystic Fibrosis? A Systematic Review
    Gage, L. Ashley
    HEALTH & SOCIAL WORK, 2012, 37 (01) : 29 - 36
  • [43] CF PROGRAM DIRECTORS' ATTITUDES TOWARD REPRODUCTIVE AND SEXUAL HEALTH IN ADOLESCENTS AND YOUNG WOMEN WITH CYSTIC FIBROSIS
    Kazmerski, T.
    Tuchman, L. K.
    Weiner, D.
    Borrero, S.
    Orenstein, D.
    Pilewski, J. M.
    Miller, E.
    PEDIATRIC PULMONOLOGY, 2014, 49 : 433 - 434
  • [44] CF PROGRAM DIRECTORS' ATTITUDES TOWARD REPRODUCTIVE AND SEXUAL HEALTH IN ADOLESCENTS AND YOUNG WOMEN WITH CYSTIC FIBROSIS
    Kazmerski, Traci M.
    Tuchman, Lisa
    Weiner, Daniel
    Borrero, Sonya
    Pilewski, Joseph
    Orenstein, David
    Miller, Elizabeth
    JOURNAL OF ADOLESCENT HEALTH, 2015, 56 (02) : S66 - S66
  • [45] Perspectives of adolescent girls with cystic fibrosis and parents on disease-specific sexual and reproductive health education
    Kazmerski, Traci M.
    Hill, Kelsey
    Prushinskaya, Olga
    Nelson, Eliza
    Greenberg, Jonathan
    Pitts, Sarah A. B.
    Borrero, Sonya
    Miller, Elizabeth
    Sawicki, Gregory S.
    PEDIATRIC PULMONOLOGY, 2018, 53 (08) : 1027 - 1034
  • [46] Reproductive and sexual health (RSH) in Irish males with cystic fibrosis (CF): attitudes and awareness. A prospective study
    Power, R. F.
    O'Connell, O. J.
    O'Brien, M. E.
    Shortt, C.
    Fleming, C.
    Murphy, D. M.
    Plant, B. J.
    IRISH JOURNAL OF MEDICAL SCIENCE, 2010, 179 : S464 - S464
  • [47] Developing Sexual and Reproductive Health Educational Resources for Young Women with Cystic Fibrosis: A Structured Approach to Stakeholder Engagement
    Traci M. Kazmerski
    Elizabeth Miller
    Gregory S. Sawicki
    Phaedra Thomas
    Olga Prushinskaya
    Eliza Nelson
    Kelsey Hill
    Anna Miller
    S. Jean Emans
    The Patient - Patient-Centered Outcomes Research, 2019, 12 : 267 - 276
  • [48] Developing Sexual and Reproductive Health Educational Resources for Young Women with Cystic Fibrosis: A Structured Approach to Stakeholder Engagement
    Kazmerski, Traci M.
    Miller, Elizabeth
    Sawicki, Gregory S.
    Thomas, Phaedra
    Prushinskaya, Olga
    Nelson, Eliza
    Hill, Kelsey
    Miller, Anna
    Emans, S. Jean
    PATIENT-PATIENT CENTERED OUTCOMES RESEARCH, 2019, 12 (02): : 267 - 276
  • [49] EXPLORING THE INCIDENCE OF SEXUAL AND REPRODUCTIVE HEALTH CONCERN IN MEN WITH CYSTIC FIBROSIS AND CBAVD: AN ANALYSIS OF A MULTI-INSTITUTIONAL DATABASE
    Campbell, K.
    Deebel, N.
    Kohn, T.
    Passarelli, R.
    Ghomeshi, A.
    Samuels, R.
    Velez, D.
    Ramasamy, R.
    JOURNAL OF SEXUAL MEDICINE, 2024, 21
  • [50] Men's sexual and reproductive health in cystic fibrosis in the era of highly effective modulator therapies-A qualitative study
    Clarke, Alison R.
    Stransky, Olivia M.
    Bernard, Miriam
    Hughan, Kara S.
    Ladores, Sigrid
    Sawicki, Gregory S.
    Stalvey, Michael S.
    Kazmerski, Traci M.
    JOURNAL OF CYSTIC FIBROSIS, 2022, 21 (04) : 657 - 661
12345