bereavement care;
children;
end of life care;
nursing;
palliative care;
PEDIATRIC ONCOLOGY;
EXPERIENCES;
STRATEGIES;
FAMILIES;
GOALS;
D O I:
10.1055/s-0043-1769081
中图分类号:
R5 [内科学];
学科分类号:
1002 ;
100201 ;
摘要:
Introduction Palliative care of children (PCC) is a philosophical and a structured approach to providing tailored care to children with life-threatening diseases. Understanding the role of nurses and empowering them to take up the role of palliative care nurse are imperative to strengthen these services and make the palliative care services more accessible to the patients.Method The literature search was done in two database, PubMed and Scopus, using keyword and Medical Subject Headings (MeSH) terms such as children, palliative care, end of life, hospice, bereavement, and nursing. Records were screened by authors and relevant articles were included in the review.Discussion PCC should start with the diagnosis of the illness continue through all the phases of illness. Bereavement support to the family is also a part of palliative care. Nurses are in a key position to play important role in the PCC team. Nurses play various roles such as direct care provider, communicator, patient advocate, respite nurse, and counselor.Conclusion PCC is aimed to improve the quality of life of the child and family. It is crucial to achieving universal health coverage. Role of nurse is vital in providing PCC.
机构:
Johns Hopkins Univ, Sch Med, Johns Hopkins Bayview Med Ctr, Div Gen Internal Med, Baltimore, MD USAJohns Hopkins Univ, Sch Med, Johns Hopkins Bayview Med Ctr, Div Gen Internal Med, Baltimore, MD USA
Laskow, Thomas
Small, Lauren
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机构:
Johns Hopkins Univ, Sch Med, Dept Pediat, Baltimore, MD 21205 USAJohns Hopkins Univ, Sch Med, Johns Hopkins Bayview Med Ctr, Div Gen Internal Med, Baltimore, MD USA
Small, Lauren
Wu, David S.
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机构:
Johns Hopkins Univ, Sch Med, Johns Hopkins Bayview Med Ctr, Palliat Care Program, Baltimore, MD USAJohns Hopkins Univ, Sch Med, Johns Hopkins Bayview Med Ctr, Div Gen Internal Med, Baltimore, MD USA
机构:
Brown Univ, Rhode Isl Hosp, Alpert Med Sch, Dept Med,Div Hematol Oncol, Providence, RI 02903 USABrown Univ, Rhode Isl Hosp, Alpert Med Sch, Dept Med,Div Hematol Oncol, Providence, RI 02903 USA
Guyer, Dana L.
Almhanna, Khaldoun
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机构:
Brown Univ, Rhode Isl Hosp, Alpert Med Sch, Dept Med,Div Hematol Oncol, Providence, RI 02903 USABrown Univ, Rhode Isl Hosp, Alpert Med Sch, Dept Med,Div Hematol Oncol, Providence, RI 02903 USA
Almhanna, Khaldoun
McKee, Kanako Y.
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h-index: 0
机构:
Univ Calif San Francisco, Dept Med, San Francisco Vet Affairs Hlth Care Syst, San Francisco, CA 94143 USABrown Univ, Rhode Isl Hosp, Alpert Med Sch, Dept Med,Div Hematol Oncol, Providence, RI 02903 USA
机构:
Shahid Sadoughi Univ Med Sci, Dept Pediat, Growth Disorders Children Res Ctr, Yazd, IranShahid Sadoughi Univ Med Sci, Dept Pediat, Growth Disorders Children Res Ctr, Yazd, Iran
Fallah, R.
Ferdosian, F.
论文数: 0引用数: 0
h-index: 0
机构:
Shahid Sadoughi Univ Med Sci, Dept Pediat, Subspecialty Pediat Infect Dis, Yazd, IranShahid Sadoughi Univ Med Sci, Dept Pediat, Growth Disorders Children Res Ctr, Yazd, Iran
Ferdosian, F.
Shajari, A.
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机构:
Islamic Azad Univ, Yazd Branch, Ali Ebn Abitaleb Sch Med, Dept Pediat, Yazd, IranShahid Sadoughi Univ Med Sci, Dept Pediat, Growth Disorders Children Res Ctr, Yazd, Iran