The MMRF cure cloud research study: a real-world longitudinal investigation of patient treatments and outcomes, including patient reported outcome (PRO) surveys

被引:0
|
作者
Lepisto, Eva [1 ]
Fiala, Mark [1 ]
Cook, April [1 ]
Schulman, Jessica [1 ]
Young, Anne Quinn [1 ]
Mensching, Erin [1 ]
Rogers, Jennifer [1 ]
Akorede, Ibrahim [1 ]
Kane, Elizabeth [1 ]
DeRome, Mary [1 ]
Mulligan, George [1 ]
Cho, Hearn Jay [1 ]
机构
[1] Washington Univ, Sch Med, St Louis, DC USA
来源
关键词
D O I
暂无
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
P-471
引用
收藏
页码:S299 / S299
页数:1
相关论文
共 50 条
  • [41] Assessment of Real-World Patient-Reported Outcomes in Patients Initiating Biologic Agents for the Treatment of Autoimmune Diseases: An Observational Study in Four Patient-Powered Research Networks
    Beukelman, Timothy
    Long, Millie
    Rhee, Rennie L.
    Kappelman, Michael
    Merkel, Peter A.
    Nowell, William Benjamin
    Clinton, Cassie
    Ringold, Sarah
    Del Gaizo, Vincent
    Price, Brian
    Shaw, Dianne G.
    Venkatachalam, Shilpa
    Cuthbertson, David
    Xie, Fenglong
    Zhang, Xian
    Curtis, Jeffrey R.
    PATIENT-RELATED OUTCOME MEASURES, 2023, 14 : 171 - 180
  • [42] Picture This: Presenting Longitudinal Patient-Reported Outcome Research Study Results to Patients
    Tolbert, Elliott
    Brundage, Michael
    Bantug, Elissa
    Blackford, Amanda L.
    Smith, Katherine
    Snyder, Claire
    MEDICAL DECISION MAKING, 2018, 38 (08) : 994 - 1005
  • [43] Characterization of remote symptom alerts generated from patient-reported outcome (PRO) symptom monitoring in a real-world breast cancer population
    Castillo, Marisabel Hurtado
    Rusli, Emelly
    Wujcik, Debra
    Galaznik, Aaron
    Kaufmann, Tara L.
    JOURNAL OF CLINICAL ONCOLOGY, 2024, 42 (16)
  • [44] Patient reported outcomes of patients with Gaucher disease type 1 treated with eliglustat in real-world settings: The ELIPRO study
    Camou, Fabrice
    Lagadec, Audrey
    Coutinho, Angela
    Berger, Marc G.
    Cador-Rousseau, Berengere
    Gaches, Francis
    Belmatoug, Nadia
    MOLECULAR GENETICS AND METABOLISM, 2023, 140 (03)
  • [45] Psoriasis Impact on Patient-Reported Outcomes in Psoriatic Arthritis in a Real-World Setting: Results from the APOPSIS Study
    Athanassiou, Panagiotis
    Theodoridou, Athina
    Koukli, Eftychia Maria
    Georgountzos, Athanasios
    Vlachoyiannopoulos, Panagiotis
    Kallitsakis, Ioannis
    Sakkas, Lazaros
    Dapola, Aikaterini Matsouka
    Gazi, Souzana
    Georgiou, Panagiotis
    Gorecki, Patricia
    Gkamaloutsos, Christos
    ARTHRITIS & RHEUMATOLOGY, 2019, 71
  • [46] Patient-reported outcomes in adults with type 1 diabetes in global real-world clinical practice: The SAGE study
    Wilmot, Emma G.
    Close, Kelly L.
    Jurisic-Erzen, Dubravka
    Bruttomesso, Daniela
    Ampudia-Blasco, F. Javier
    Bosnyak, Zsolt
    Roborel de Climens, Aude
    Bigot, Gregory
    Peters, Anne L.
    Renard, Eric
    Berard, Lori
    Calliari, Luis Eduardo
    Seufert, Jochen
    DIABETES OBESITY & METABOLISM, 2021, 23 (08): : 1892 - 1901
  • [47] The Impact of Rheumatoid Arthritis on Patient-Reported Outcomes: Comparison between Sarilumab Clinical Trials and Real-World Patient Data
    Strand, Vibeke
    Carpinella, Colleen M.
    Lee, Lulu K.
    Boklage, Susan
    Reaney, Matthew
    ARTHRITIS & RHEUMATOLOGY, 2018, 70
  • [48] Real-World Treatment Patterns and Patient-Reported Outcomes in Chronic Obstructive Pulmonary Disease in Japan: The REMIND Study
    Gon, Yasuhiro
    Sorimachi, Ryoko
    Yoshida, Yuri
    Tamai, Yoichi
    Takashima, Ikumi
    Arita, Yoshifumi
    Sugiura, Hisatoshi
    ADVANCES IN THERAPY, 2024, 41 (09) : 3585 - 3597
  • [49] Patient-Reported Outcome Measures in Real-World Atopic Dermatitis Studies in Spain: A Systematic Review
    Armario-Hita, J. C.
    Artime, E.
    Vidal-Vilar, N.
    Huete, T.
    Diaz-Cerezo, S.
    Moro, R. M.
    Lizan, L.
    de Frutos, F. J. Ortiz
    ACTAS DERMO-SIFILIOGRAFICAS, 2022, 113 (07): : 685 - 704
  • [50] REAL-WORLD USE OF PATIENT REPORTED OUTCOME MEASURES AT A LARGE TERTIARY INFLAMMATORY BOWEL DISEASE CENTER
    Sheehan, Jessica L.
    Johnson, Laura
    Cohen-Mekelburg, Shirley
    Higgins, Peter D.
    GASTROENTEROLOGY, 2024, 166 (05) : S533 - S534