Patient survey on cancer genomic medicine in Japan under the national health insurance system

被引：3

作者：

Kage, Hidenori ^{[2
,3
]}

Akiyama, Nana ^{[2
]}

Chang, Hyangri ^{[2
]}

Shinozaki-Ushiku, Aya ^{[2
,4
,5
]}

Ka, Mirei ^{[4
]}

Kawata, Junichi ^{[6
]}

Muto, Manabu ^{[7
]}

Okuma, Yusuke ^{[8
]}

Okita, Natsuko ^{[8
]}

Tsuchihara, Katsuya ^{[9
]}

Kikuchi, Junko ^{[10
]}

Shirota, Hidekazu ^{[11
]}

Hayashi, Hideyuki ^{[12
]}

Kokuryo, Toshio ^{[13
]}

Yachida, Shinichi ^{[14
]}

Hirasawa, Akira ^{[15
]}

Kubo, Makoto ^{[16
]}

Kenmotsu, Hirotsugu ^{[17
]}

Tanabe, Masahiko ^{[18
]}

Ushiku, Tetsuo ^{[5
]}

Muto, Kaori ^{[6
]}

Seto, Yasuyuki ^{[19
]}

Oda, Katsutoshi ^{[1
,2
,4
]}

机构：

[1] 7-3-1 Hongo,Bunkyo Ku, Tokyo 1138655, Japan

[2] Univ Tokyo Hosp, Dept Clin Genom, Tokyo, Japan

[3] Univ Tokyo, Grad Sch Med, Next Generat Precis Med Dev Lab, Tokyo, Japan

[4] Univ Tokyo, Grad Sch Med, Div Integrat Genom, Tokyo, Japan

[5] Univ Tokyo, Grad Sch Med, Dept Pathol, Tokyo, Japan

[6] Univ Tokyo, Inst Med Sci, Dept Publ Policy, Tokyo, Japan

[7] Kyoto Univ, Grad Sch Med, Dept Therapeut Oncol, Kyoto, Japan

[8] Natl Canc Ctr, Ctr Canc Genom & Adv Therapeut, Tokyo, Japan

[9] Natl Canc Ctr Hosp East, Dept Genet Med & Serv, Chiba, Japan

[10] Hokkaido Univ Hosp, Div Clin Canc Genom, Sapporo, Japan

[11] Tohoku Univ Hosp, Dept Clin Oncol, Sendai, Japan

[12] Keio Univ, Keio Canc Ctr, Sch Med, Genom Unit, Tokyo, Japan

[13] Nagoya Univ, Grad Sch Med, Dept Surg, Div Surg Oncol, Nagoya, Japan

[14] Osaka Univ, Grad Sch Med, Dept Canc Genome Informat, Osaka, Japan

[15] Okayama Univ, Grad Sch Med Dent & Pharmaceut Sci, Dept Clin Genom Med, Okayama, Japan

[16] Kyushu Univ Hosp, Dept Breast Surg Oncol, Fukuoka, Japan

[17] Shizuoka Canc Ctr, Div Thorac Oncol, Shizuoka, Japan

[18] Univ Tokyo, Grad Sch Med, Dept Breast & Endocrine Surg, Tokyo, Japan

[19] Univ Tokyo, Grad Sch Med, Dept Gastrointestinal Surg, Tokyo, Japan

来源：

CANCER SCIENCE | 2024年 / 115卷 / 03期

关键词：

cancer genomic medicine; comprehensive genomic profiling; national health care system; patient satisfaction; survey;

D O I：

10.1111/cas.16065

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

In Japan, comprehensive genomic profiling (CGP) tests have been reimbursed under the national health care system for solid cancer patients who have finished standard treatment. More than 50,000 patients have taken the test since June 2019. We performed a nation-wide questionnaire survey between March 2021 and July 2022. Questionnaires were sent to 80 designated Cancer Genomic Medicine Hospitals. Of the 933 responses received, 370 (39.7%) were web based and 563 (60.3%) were paper based. Most patients (784, 84%) first learned about CGP tests from healthcare professionals, and 775 (83.1%) gave informed consent to their treating physician. At the time of informed consent, they were most worried about test results not leading to novel treatment (536, 57.4%). On a scale of 0-10, 702 respondents (75.2%) felt that the explanations of the test result were easy to understand (7 or higher). Ninety-one patients (9.8%) started their recommended treatment. Many patients could not receive recommended treatment because no approved drugs or clinical trials were available (102/177, 57.6%). Ninety-eight patients (10.5%) did not wish their findings to be disclosed. Overall satisfaction with the CGP test process was high, with 602 respondents (64.5%) giving a score of 7-10. The major reason for choosing 0-6 was that the CGP test result did not lead to new treatment (217/277, 78.3%). In conclusion, satisfaction with the CGP test process was high. Patients and family members need better access to information. More patients need to be treated with genomically matched therapy. In Japan, where comprehensive genomic profiling tests are given as part of the national healthcare system, patient satisfaction of the test process was high. More patients need to be treated with genomically matched therapy.image

引用

页码：954 / 962

页数：9

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