The Duality of "Goals of Care" Language: A Qualitative Focus Group Study With Frontline Clinicians

被引:3
|
作者
Reif, Michaella M. [1 ]
Secunda, Katharine E. [2 ]
Clapp, Justin T. [3 ]
Viglianti, Elizabeth M. [4 ,5 ]
Mylvaganam, Ruben [6 ]
Peliska, Michael [1 ]
Holl, Jane L. [7 ]
Kruser, Jacqueline M. [8 ]
机构
[1] Univ Wisconsin, Sch Med & Publ Hlth, Dept Med, Madison, WI 53792 USA
[2] Univ Penn, Dept Med, Div Pulm Allergy & Crit Care, Philadelphia, PA USA
[3] Univ Penn, Dept Anesthesiol & Crit Care, Philadelphia, PA USA
[4] Univ Michigan, Div Pulm & Crit Care, Ann Arbor, MI USA
[5] Vet Affairs Ctr Clin Management Res, HSR&D Ctr Innovat, Ann Arbor, MI USA
[6] Northwestern Mem Hosp, Div Pulm & Crit Care, Chicago, IL USA
[7] Univ Chicago, Dept Neurol, Biol Sci Div, Chicago, IL USA
[8] Univ Wisconsin, Dept Med, Div Allergy Pulm & Crit Care, Sch Med & Publ Hlth, 600 Highland Ave, Madison, WI 53792 USA
关键词
Health communication; Palliative care; Medical decision -making; PALLIATIVE CARE; DEFINITIONS;
D O I
10.1016/j.jpainsymman.2023.08.014
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Context. The phrase "goals of care" (GOC) is common in serious illness care, yet it lacks clarity and consistency. Understanding how GOC is used across healthcare contexts is an opportunity to identify and mitigate root causes of serious illness miscommunication. Objectives. We sought to characterize frontline palliative and critical care clinicians' understanding and use of the phrase GOC in clinical practice.Methods. We conducted a secondary qualitative thematic analysis of focus group transcripts (n = 10), gathered as part of a parent study of care delivery for patients with respiratory failure. Participants (n = 59) were members of the palliative and critical care interprofessional teams at two academic medical centers.Results. Clinicians primarily use GOC as a shorthand signal among team members to indicate a patient is nearing the end of life. This signal can also indicate conflict with patients and families when clinicians' expectations-typically an expected "transition" toward a different type of care-are not met. Clinicians distinguish their clinical use of GOC from an "ideal" meaning of the phrase, which is broader than end of life and focused on patients' values. Palliative care specialists encourage other clinicians to shift toward the "ideal" GOC concept in clinical practice.Conclusion. Frontline palliative and critical care clinicians understand a duality in GOC, as an idealized concept and as an expeditious signal for clinical care. Our findings suggest ambiguous phrases like GOC persist because of unmet needs for better ways to discuss and address diverse and complex priorities for patients with serious illness. J Pain Symptom Manage 2023;66: e658-e665.(c) 2023 The Authors. Published by Elsevier Inc. on behalf of American Academy of Hospice and Palliative Medicine. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/)
引用
收藏
页码:e658 / e665
页数:8
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