Comments on: Ophthalmic registries for rare eye diseases

被引:1
|
作者
Farrall, Alexandra L. [1 ]
Radford, Mark H. B. [2 ,3 ,4 ,5 ]
Smith, Justine R. [1 ,2 ,6 ]
机构
[1] Flinders Univ S Australia, Coll Med & Publ Hlth, Adelaide, Australia
[2] Queensland Eye Inst, Brisbane, Australia
[3] George E Palade Univ Med Pharm & Technol, Fac Med, Targu Mures, Romania
[4] Queensland Univ Technol, Fac Hlth, Brisbane, Australia
[5] Univ Queensland, Fac Med, Brisbane, Australia
[6] Flinders Univ S Australia, Coll Med & Publ Hlth, Flinders Med Ctr, Rm 4E-431, Bedford Pk, SA 5042, Australia
关键词
D O I
10.4103/IJO.IJO_2606_22
中图分类号
R77 [眼科学];
学科分类号
100212 ;
摘要
引用
收藏
页码:1055 / 1056
页数:2
相关论文
共 50 条
  • [31] The Value of Registries for Rare Diseases Bacterial or Mycotic Aortic Aneurysm
    Hinchliffe, Robert J.
    Powell, Janet T.
    CIRCULATION, 2014, 130 (24) : 2129 - 2130
  • [32] Trials and tribulations of rare eye diseases
    Shetty, Rohit
    Sethu, Swaminathan
    Jayadev, Chaitra
    INDIAN JOURNAL OF OPHTHALMOLOGY, 2022, 70 (07) : 2216 - 2217
  • [33] The Importance of Rare Eye Disease Patient Registries for Social Science Research
    del Alamo Martin, Ma Teresa
    ARAUCARIA-REVISTA IBEROAMERICANA DE FILOSOFIA POLITICA Y HUMANIDADES, 2021, 23 (46): : 391 - 408
  • [34] National rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)
    Verónica Alonso
    Ignacio Abaitua
    Óscar Zurriaga
    Jenaro Astray
    Manuel Errezola
    Josefa M Aldana-Espinal
    Mario J Margolles
    Josep Jiménez
    Joaquín A Palomar
    Milagrosa Santana
    Enrique Ramalle-Gomarra
    Julián M Ramos
    Federico E Arribas
    Rufino Álamo
    Gonzalo Gutiérrez-Ávila
    Antònia Galmés
    Miguel García-Ribes
    Carmen Navarro
    Eva Ardanaz
    Manuel Posada de la Paz
    Orphanet Journal of Rare Diseases, 9 (Suppl 1)
  • [35] Quality of life impact of eye diseases: a Save Sight Registries study
    Kandel, Himal
    Vuong Nguyen
    Gillies, Mark C.
    Watson, Stephanie L.
    INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, 2021, 62 (08)
  • [36] Quality of life impact of eye diseases: a Save Sight Registries study
    Kandel, Himal
    Nguyen, Vuong
    Piermarocchi, Stefano
    Ceklic, Lala
    Teo, Kelvin
    Arnalich-Montiel, Francisco
    Miotto, Stefania
    Daien, Vincent
    Gillies, Mark C.
    Watson, Stephanie L.
    CLINICAL AND EXPERIMENTAL OPHTHALMOLOGY, 2022, 50 (04): : 386 - 397
  • [37] Commentary: Rare eye diseases: More than meets the eye!
    Jayadev, Chaitra
    Sanjay, Srinivasan
    INDIAN JOURNAL OF OPHTHALMOLOGY, 2022, 70 (07) : 2230 - 2231
  • [38] Prognosis of Pulmonary Arterial Hypertension The Power of Clinical Registries of Rare Diseases
    McLaughlin, Vallerie V.
    Suissa, Samy
    CIRCULATION, 2010, 122 (02) : 106 - 108
  • [39] Tuberous Sclerosis: a disease systematically monitored by the Rare Diseases Registries in Spain
    Cavero Carbonell, C.
    De La Natividad Palomares, M.
    Botella, P.
    Zurriaga, O.
    Guardiola Vilarroig, S.
    EUROPEAN JOURNAL OF PUBLIC HEALTH, 2020, 30
  • [40] National Registries of Rare Diseases in Europe: An Overview of the Current Situation and Experiences
    Taruscio, Domenica
    Vittozzi, Luciano
    Choquet, Remy
    Heimdal, Ketil
    Iskrov, Georgi
    Kodra, Yllka
    Landais, Paul
    Posada, Manuel
    Stefanov, Rumen
    Steinmueller, Christiane
    Swinnen, Elfriede
    Van Oyen, Herman
    PUBLIC HEALTH GENOMICS, 2015, 18 (01) : 20 - 25