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- [4] REGISTRIES, RARE DISEASES, AND RESULTS QUARTERLY JOURNAL OF MEDICINE, 1989, 73 (271): : 983 - 985
- [5] Data Quality in Rare Diseases Registries RARE DISEASES EPIDEMIOLOGY: UPDATE AND OVERVIEW, 2ND EDITION, 2017, 1031 : 149 - 164
- [6] The importance of patient registries for rare diseases EXPERT OPINION ON ORPHAN DRUGS, 2013, 1 (10): : 769 - 772
- [8] Respiratory Diseases Registries in the National Registry of Rare Diseases ARCHIVOS DE BRONCONEUMOLOGIA, 2014, 50 (09): : 397 - 403