No ordinary adult life: Living conditions from the perspective of adults with intellectual disabilities

被引:2
|
作者
Carlsson, Oie Umb [1 ]
Adolfsson, Paivi [2 ,3 ]
机构
[1] Uppsala Univ, Dept Publ Hlth & Caring Sci, Disabil & Habilitat, Uppsala, Sweden
[2] Uppsala Univ, Dept Publ Hlth & Caring Sci, Hlth Equ & Working Life HEAL, Uppsala, Sweden
[3] Uppsala Univ, Ctr Disabil Res, Dept Publ Hlth & Caring Sci, Uppsala, Sweden
关键词
intellectual disabilities; living conditions; quality of life; self-report; SOCIAL INCLUSION; YOUNG-ADULTS; PEOPLE; QUALITY; CHOICE; NETWORKS; AUTONOMY; OUTCOMES;
D O I
10.1177/17446295221107284
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
This study focuses on the subjective experience of the living conditions of adults with intellectual disabilities as related to the Uppsala Quality of Life model (UQoL2). Eleven semi-structured interviews were conducted to study issues raised by people with intellectual disabilities. Study participants had their own home, either in an ordinary dwelling or group home. The findings show that the dependence on support in daily life infringes on the sense of adult social status and control of life. Staff and family had a mandate to define Quality of Life, which countered the possibilities of a life based on the preferences of those with intellectual disabilities. Knowledge about factors that affect living conditions, one of the social determinants of health, has implications for public health in general and the development of society's efforts for people who are in lifelong dependence on support and service from others.
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页码:944 / 963
页数:20
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