Multiple sclerosis;
Quality of health care;
Patient reported experience;
Caregivers;
Coping behavior;
ADJUSTMENT;
CANCER;
MODEL;
D O I:
10.1016/j.neurol.2023.02.072
中图分类号:
R74 [神经病学与精神病学];
学科分类号:
摘要:
Background and objective. - Multiple sclerosis has a major impact on the lives of patients and their caregivers. Measuring their experience is essential for improving the quality of care. Based on a sample of patient-informal caregiver dyads we examine whether coping strategies they implemented influenced their self-experience of quality of care. Methods. - One hundred and eighty three dyads were involved in this cross-sectional study. Self reported data included experience with the quality of care (Musicare) and coping strategies (Brief Cope) for patients and their caregivers. An actor-partner interdependence model (APIM) analysis was performed to assess the dyadic effects of coping strategies on experience of quality of care. Results. - Positive coping strategies were the most used by patients and caregivers alike. They were associated with a better experience of relationships with healthcare professio-nals, information about the disease and patient reception at the sites providing care. APIM analyses confirmed most of these results and identified one "partner" effect. Conclusion. - The experience of the quality of the care of patients living with MS is related to the use of positive coping strategies. # 2023 Elsevier Masson SAS. All rights reserved.
机构:
Fujian Med Univ, Sch Nursing, Fuzhou, Peoples R China
Fujian Med Univ, Fujian Canc Hosp, Clin Oncol Sch, Fuzhou, Peoples R ChinaFujian Med Univ, Sch Nursing, Fuzhou, Peoples R China
Ke, Jianfan
Lin, Jialing
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机构:
Fujian Med Univ, Sch Nursing, Fuzhou, Peoples R ChinaFujian Med Univ, Sch Nursing, Fuzhou, Peoples R China
Lin, Jialing
Lin, Xiujing
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机构:
Fujian Med Univ, Sch Nursing, Fuzhou, Peoples R ChinaFujian Med Univ, Sch Nursing, Fuzhou, Peoples R China
Lin, Xiujing
Chen, Wei-ti
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机构:
Univ Calif Los Angeles, Sch Nursing, Los Angeles, CA USAFujian Med Univ, Sch Nursing, Fuzhou, Peoples R China
Chen, Wei-ti
Huang, Feifei
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机构:
Fujian Med Univ, Sch Nursing, Fuzhou, Peoples R China
Fujian Med Univ, Sch Nursing, 1 Xueyuan Rd, Fuzhou 350108, Fujian, Peoples R ChinaFujian Med Univ, Sch Nursing, Fuzhou, Peoples R China