Dyadic coping strategies and quality of care experience: An original study of patients living with multiple sclerosis and their caregivers

被引:0
|
作者
Veillard, D. [1 ,2 ]
Baumstarck, K. [2 ]
Hamonic, S. [1 ]
Ousmen, A. [1 ]
Hamidou, Z. [2 ]
Edan, G. [3 ]
Auquier, P. [2 ]
机构
[1] Rennes Univ Hosp, Publ Hlth & Epidemiol Dept, Rennes, France
[2] Aix Marseille Univ, Publ Hlth Qual Life & Chron Dis EA3279, Marseille, France
[3] Rennes Univ Hosp, Clin Neurosci Ctr, INSERM, CIC P 1414, Rennes, France
关键词
Multiple sclerosis; Quality of health care; Patient reported experience; Caregivers; Coping behavior; ADJUSTMENT; CANCER; MODEL;
D O I
10.1016/j.neurol.2023.02.072
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Background and objective. - Multiple sclerosis has a major impact on the lives of patients and their caregivers. Measuring their experience is essential for improving the quality of care. Based on a sample of patient-informal caregiver dyads we examine whether coping strategies they implemented influenced their self-experience of quality of care. Methods. - One hundred and eighty three dyads were involved in this cross-sectional study. Self reported data included experience with the quality of care (Musicare) and coping strategies (Brief Cope) for patients and their caregivers. An actor-partner interdependence model (APIM) analysis was performed to assess the dyadic effects of coping strategies on experience of quality of care. Results. - Positive coping strategies were the most used by patients and caregivers alike. They were associated with a better experience of relationships with healthcare professio-nals, information about the disease and patient reception at the sites providing care. APIM analyses confirmed most of these results and identified one "partner" effect. Conclusion. - The experience of the quality of the care of patients living with MS is related to the use of positive coping strategies. # 2023 Elsevier Masson SAS. All rights reserved.
引用
收藏
页码:1118 / 1127
页数:10
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