LGBTQ plus inequity in crowdfunding cancer costs: The influence of online reach and LGBTQ plus state policy

被引:1
|
作者
Waters, Austin R. [1 ,2 ]
Easterly, Caleb W. [1 ]
Turner, Cindy [3 ]
Ghazal, Lauren [4 ,5 ]
Tovar, Ida [3 ]
Mulvaney, Megan [4 ,6 ]
Poquadeck, Matt [4 ,7 ]
Rains, Stephen A. [8 ]
Cloyes, Kristin G. [9 ]
Kirchhoff, Anne C. [2 ,10 ]
Kent, Erin E. [1 ]
Warner, Echo L. [2 ,3 ]
机构
[1] Univ N Carolina, Gillings Sch Global Publ Hlth, Dept Hlth Policy & Management, Chapel Hill, NC 27599 USA
[2] Univ Utah, Huntsman Canc Inst, Canc Control & Populat Sci, Salt Lake City, UT USA
[3] Univ Utah, Coll Nursing, Salt Lake City, UT USA
[4] Univ Utah, Crowdfunding Canc Costs LGBTQ Study Advisory Board, Huntsman Canc Inst, Salt Lake City, UT USA
[5] Univ Rochester, Sch Nursing, Rochester, NY USA
[6] Indiana Univ Bloomington, Sch Publ Hlth, Bloomington, IN USA
[7] Univ Rochester Med Ctr, Wilmot Canc Inst, Rochester, NY USA
[8] Univ Arizona, Dept Commun, Tucson, AZ USA
[9] Oregon Hlth & Sci Univ, Sch Nursing, Portland, OR USA
[10] Univ Utah, Dept Pediat, Sch Med, Salt Lake City, UT USA
来源
CANCER MEDICINE | 2024年 / 13卷 / 03期
关键词
cost of care; crowdfunding; financial burden; financial hardship; financial toxicity; gender expansive; gender identity; sexual and gender minority; sexual minority; sexual orientation; transgender;
D O I
10.1002/cam4.6926
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Background Emerging literature suggests that LGBTQ+ cancer survivors are more likely to experience financial burden than non-LGBTQ+ survivors. However, LGBTQ+ cancer survivors experience with cost-coping behaviors such as crowdfunding is understudied. Methods We aimed to assess LGBTQ+ inequity in cancer crowdfunding by combining community-engaged and technology-based methods. Crowdfunding campaigns were web-scraped from GoFundMe and classified as cancer-related and LGBTQ+ or non-LGBTQ+ using term dictionaries. Bivariate analyses and generalized linear models were used to assess differential effects in total goal amount raised by LGBTQ+ status. Stratified models were run by online reach and LGBTQ+ inclusivity of state policy. Results A total of N = 188,342 active cancer-related crowdfunding campaigns were web-scraped from GoFundMe in November 2022, of which N = 535 were LGBTQ+ and ranged from 2014 to 2022. In multivariable models of recent campaigns (2019-2022), LGBTQ+ campaigns raised $1608 (95% CI: -2139, -1077) less than non-LGBTQ+ campaigns. LGBTQ+ campaigns with low (26-45 donors), moderate (46-87 donors), and high (88-240 donors) online reach raised on average $1152 (95% CI: -$1589, -$716), $1050 (95% CI: -$1737, -$364), and $2655 (95% CI: -$4312, -$998) less than non-LGBTQ+ campaigns respectively. When stratified by LGBTQ+ inclusivity of state level policy states with anti-LGBTQ+ policy/lacking equitable policy raised on average $1910 (95% CI: -2640, -1182) less than non-LGBTQ+ campaigns from the same states. Conclusions and Relevance Our findings revealed LGBTQ+ inequity in cancer-related crowdfunding, suggesting that LGBTQ+ cancer survivors may be less able to address financial burden via crowdfunding in comparison to non-LGBTQ+ cancer survivors-potentially widening existing economic inequities.
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页数:12
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