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Report of the Skin Research Workgroups From the IDEOM Breakout at the GRAPPA 2022 Annual Meeting
被引:2
|作者:
Zundell, Melissa P.
[1
]
Woodbury, Michael J.
[2
]
Lee, Kathryn
[3
]
Perez-Chada, Lourdes M.
[2
]
Armstrong, April W.
[4
]
Strand, Vibeke
[5
]
Merola, Joseph F.
[6
]
Gottlieb, Alice B.
[1
]
机构:
[1] Icahn Sch Med Mt Sinai, Dept Dermatol, New York, NY 10029 USA
[2] Harvard Med Sch, Dept Dermatol, Brigham & Womens Hosp, Boston, MA 02115 USA
[3] St Louis Univ, Sch Med, St Louis, MO USA
[4] Univ Southern Calif, Keck Sch Med, Dept Dermatol, Los Angeles, CA USA
[5] Stanford Univ, Sch Med, Div Immunol & Rheumatol, Palo Alto, CA 94304 USA
[6] Harvard Med Sch, Brigham & Womens Hosp, Dept Dermatol & Med, Div Rheumatol, Boston, MA 02115 USA
关键词:
arthritis;
GRAPPA;
outcome assessment;
psoriasis;
psoriatic arthritis;
dermatology;
INTERNATIONAL DERMATOLOGY;
PSORIATIC-ARTHRITIS;
OUTCOME MEASURES;
D O I:
10.3899/jrheum.2023-0528
中图分类号:
R5 [内科学];
学科分类号:
1002 ;
100201 ;
摘要:
The International Dermatology Outcome Measures (IDEOM) organization presented an update on its progress related to patient-centered outcome measures for psoriasis (PsO) and psoriatic arthritis (PsA) at the 2022 annual meeting of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA). The Musculoskeletal (MSK) Symptoms working group presented an update on the development of the IDEOM Musculoskeletal Questionnaire (IDEOM MSK-Q). The IDEOM MSK-Q is a patient-reported outcome measure intended to capture MSK symptoms and describe their intensity and impact on health-related quality of life in patients with psoriatic disease. IDEOM also presented the progress of the integration of the Psoriasis Epidemiology Screening Tool (PEST) and Psoriatic Arthritis Impact of Disease (PsAID) questionnaires into the Epic electronic health record system. This will allow for automated PsA screening and symptom measurement in the hopes of improving disease detection and treat-to-target strategies. The Treatment Satisfaction working group discussed the development of the DermSat-7, a 7-item treatment satisfaction questionnaire specific for dermatological conditions. The DermSat-7 is currently being validated in a multicenter study of patients with PsO.
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页码:47 / 50
页数:4
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