The needs of family caregivers of persons living with dementia cared for in primary care practices

被引:1
|
作者
Vetter, Michael [1 ]
Donelan, Karen [1 ,2 ]
Guzikowski, Sophia [2 ]
Michael, Carie [1 ]
Ritchie, Christine S. [3 ,4 ,5 ]
Vogeli, Christine [2 ,6 ]
Forester, Brent P. [7 ,8 ]
机构
[1] Brandeis Univ, Inst Healthcare Syst, Heller Sch Social Policy & Management, Waltham, MA 02453 USA
[2] Massachusetts Gen Hosp, Mongan Inst, Hlth Policy Res Ctr, Boston, MA USA
[3] Harvard Med Sch, Dept Med, Boston, MA USA
[4] Massachusetts Gen Hosp, Mongan Inst, Ctr Aging & Serious Illness, Boston, MA USA
[5] Massachusetts Gen Hosp, Dept Med, Div Palliat Care & Geriatr Med, Boston, MA USA
[6] Harvard Med Sch, Mass Gen Res Inst, Boston, MA USA
[7] Tufts Univ, Sch Med, Dept Psychiat, Boston, MA USA
[8] Tufts Med Ctr, Dept Psychiat, Boston, MA USA
基金
美国国家卫生研究院;
关键词
care delivery; caregivers; dementia; primary care;
D O I
10.1111/jep.13919
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
RationaleThe informal caregivers who provide unpaid support for persons living with dementia (PLWD) are often unprepared to appropriately manage symptoms and navigate health services to support themselves or the PLWD. AimTo understand informal caregivers' perceived capabilities of handling dementia symptomology and perceived support from providers. MethodsWe identified and surveyed caregivers of primary care patients in the Mass General Brigham health system. We included a self-efficacy questionnaire to assess caregivers' ability and confidence in access to dementia care, symptom management, and provider support. ResultsRespondents indicated that although their provider had knowledge of dementia and memory care, they were least likely to agree (39.2%) that their provider helped them with these challenging symptoms. Those who live with the care recipient were least likely to receive advice about common symptoms (43.6%) and to access community services (63.8%), and in general felt moderately knowledgeable about the progression of the disease (47.9%). ConclusionsThe findings imply that caregivers are aware of disease progression, dementia symptoms, and do not feel supported by their providers in managing care or accessing support services. There is opportunity to support informal caregivers in a primary care setting by appropriately uptraining providers in dementia care.
引用
收藏
页码:1243 / 1246
页数:4
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