Quality of life measurement in rosacea. Position statement of the European Academy of Dermatology and Venereology Task Forces on Quality of Life and Patient Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa

被引：13

作者：

Chernyshov, P. V. ^{[1
]}

Finlay, A. Y. ^{[2
]}

Tomas-Aragones, L. ^{[3
,10
]}

Steinhoff, M. ^{[4
,5
,6
,7
,8
,9
]}

Manolache, L.

Pustisek, N. ^{[11
]}

Dessinioti, C. ^{[12
]}

Svensson, A. ^{[13
]}

Marron, S. E. ^{[14
]}

Bewley, A. ^{[15
,16
]}

Salavastru, C. ^{[17
]}

Dreno, B. ^{[18
]}

Suru, A. ^{[17
]}

Koumaki, D. ^{[19
]}

Linder, D. ^{[20
]}

Evers, A. W. M. ^{[21
]}

Abeni, D. ^{[22
]}

Augustin, M. ^{[23
]}

Salek, S. S. ^{[24
]}

Nassif, A. ^{[25
]}

Bettoli, V. ^{[26
]}

Szepietowski, J. C. ^{[27
]}

Zouboulis, C. C. ^{[28
,29
]}

机构：

[1] Natl Med Univ, Dept Dermatol & Venereol, Kiev, Ukraine

[2] Cardiff Univ, Sch Med, Div Infect & Immun, Cardiff, Wales

[3] Univ Zaragoza, Dept Psychol, Zaragoza, Spain

[4] Hamad Med Corp, Dept Dermatol & Venereol, Doha, Qatar

[5] Hamad Med Corp, Acad Hlth Syst, Dermatol Inst, Doha, Qatar

[6] Hamad Med Corp, Acad Hlth Syst, Translat Res Inst, Doha, Qatar

[7] Weill Cornell Med Qatar, Doha, Qatar

[8] Qatar Univ, Med Sch, Doha, Qatar

[9] Weill Cornell Univ, Sch Med, New York, NY USA

[10] Fac Hlth Sci Brandenburg, Dermatol, Bucharest, Romania

[11] Childrens Hosp Zagreb, Kiev, Croatia

[12] Univ Athens, Andreas Syggros Hosp, Dept Dermatol, Athens, Greece

[13] Skane Univ Hosp, Dept Dermatol & Venereol, Malmo, Sweden

[14] Royo Villanova Hosp, Aragon Psychodermatol Res Grp GAI PD, Dept Dermatol, Zaragoza, Spain

[15] Whipps Cross Univ Hosp, London, England

[16] Royal London Hosp, London, England

[17] Carol Davila Univ Med & Pharm, Colentina Clin Hosp, Dept Paediat Dermatol, Bucharest, Romania

[18] Univ Angers, Nantes Univ, INSERM, Immunol & New Concepts ImmunoTherapy,INCIT, Nantes, France

[19] Univ Hosp Heraklion, Dept Dermatol & Venereol, Iraklion, Greece

[20] Med Univ Graz, Univ Clin Med Psychol & Psychotherapy, Graz, Austria

[21] Leiden Univ, Inst Psychol, Hlth Med Neuropsychol Unit, Leiden, Netherlands

[22] IDI IRCCS, Clin Epidemiol Unit, Rome, Italy

[23] Univ Med Ctr Hamburg Eppendorf, Inst Hlth Serv Res Dermatol & Nursing IVDP, Hamburg, Germany

[24] Univ Hertfordshire, Sch Life & Med Sci, Hatfield, Hertfordshire, England

[25] Inst Pasteur, Paris, France

[26] Univ Ferrara, Dept Med Sci, Sect Dermatol, Ferrara, Italy

[27] Wroclaw Med Univ, Dept Dermatol, Wroclaw, Poland

[28] Dessau Med Ctr, Brandenburg Med Sch Theodor Fontane, Dept Dermatol Venereol Allergol & Immunol, Dessau, Germany

[29] Fac Hlth Sci Brandenburg, Dessau, Germany

来源：

JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY | 2023年 / 37卷 / 05期

关键词：

PULSED DYE-LASER; WILLINGNESS-TO-PAY; IVERMECTIN 1-PERCENT CREAM; BENEFIT-COST-ANALYSIS; AZELAIC ACID FOAM; DOUBLE-BLIND; PAPULOPUSTULAR ROSACEA; ATOPIC-DERMATITIS; CLINICAL-PRACTICE; TOPICAL TREATMENT;

D O I：

10.1111/jdv.18918

中图分类号：

R75 [皮肤病学与性病学];

学科分类号：

100206 ;

摘要：

The European Academy of Dermatology and Venereology (EADV) Task Forces (TFs) on Quality of Life (QoL) and Patient-Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa (ARHS) do not recommend the use of any generic instrument as a single method of Health Related (HR) QoL assessment in rosacea, except when comparing quimp (quality of life impairment) in rosacea patients with that in other non-dermatologic skin diseases and/or healthy controls. The EADV TFs on QoL and Patient-Oriented Outcomes and ARHS recommend the use of the dermatology-specific HRQoL instrument the Dermatology Life Quality Index (DLQI) and the rosacea-specific HRQoL instrument RosaQoL in rosacea patients. The DLQI minimal clinically important difference may be used as a marker of clinical efficacy of the treatment and DLQI score banding of 0 or 1 corresponding to no effect on patients' HRQoL could be an important treatment goal. This information may be added to consensuses and guidelines for rosacea.

引用

页码：954 / 964

页数：11

共 21 条

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Zouboulis, C. C.
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Linder, D.
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Szepietowski, J. C.
Augustin, M.
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[2] Quality of life measurement in acne. Position Paper of the European Academy of Dermatology and Venereology Task Forces on Quality of Life and Patient Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa
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Manolache, L.
Tzellos, T.
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