BackgroundHaemophilia A is a rare, hereditary haemorrhagic disease that manifests as induced spontaneous bleeding and leads to disability or premature death in severe cases. Prophylactic treatment is optimal for patients to prevent uncontrolled bleeding and reduce the severity of the injury. However, little is known about the use of prophylactic treatment among patients with haemophilia A in China, especially barriers that predispose them to low or non-adherence. In this study, we explore the barriers to the prophylactic treatment of patients with haemophilia A.MethodWe used personal interviews and focus groups to collect the data and analysed the data through thematic analysis. Purposive sampling was employed to recruit our participants. We continued recruiting participants until data saturation was reached from the thematic analysis. Ultimately, we obtained 37 participants, among whom 19 participated in personal interviews and 18 participated in focus groups (i.e., 3 focus groups with 6 participants each).ResultsThree themes and nine subthemes were identified from the thematic analysis. Nine subthemes (i.e., perceived barriers) emerged from the analysis, which were further clustered into three themes: (1) poor primary health care, (2) inadequate financial support, and (3) a lack of patient-centred care.ConclusionThe findings presented in this descriptive qualitative study offer a unique view of Chinese patients with haemophilia A and their barriers to prophylactic treatment. Our findings not only provide an in-depth understanding of barriers to prophylactic treatment encountered by Chinese patients with haemophilia A but also address the urgent need to strengthen primary care, provide adequate financial support, and establish patient-centred care for these suffering patients.
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Shandong Univ, Sch Publ Hlth, Inst Social Med & Hlth Serv Management, Jinan 250100, Peoples R ChinaShandong Univ, Sch Publ Hlth, Inst Social Med & Hlth Serv Management, Jinan 250100, Peoples R China
Zhou, Chengchao
Chu, Jie
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Shandong Ctr Dis Control & Prevent, Jinan, Peoples R ChinaShandong Univ, Sch Publ Hlth, Inst Social Med & Hlth Serv Management, Jinan 250100, Peoples R China
Chu, Jie
Liu, Jinan
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HealthCore Inc, Wilmington, DE USAShandong Univ, Sch Publ Hlth, Inst Social Med & Hlth Serv Management, Jinan 250100, Peoples R China
Liu, Jinan
Tobe, Ruoyan Gai
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Shandong Univ, Sch Publ Hlth, Inst Social Med & Hlth Serv Management, Jinan 250100, Peoples R ChinaShandong Univ, Sch Publ Hlth, Inst Social Med & Hlth Serv Management, Jinan 250100, Peoples R China
Tobe, Ruoyan Gai
Gen, Hong
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Shandong Ctr TB Prevent & Control, Jinan, Peoples R ChinaShandong Univ, Sch Publ Hlth, Inst Social Med & Hlth Serv Management, Jinan 250100, Peoples R China
Gen, Hong
Wang, Xingzhou
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Shandong Univ, Sch Publ Hlth, Inst Social Med & Hlth Serv Management, Jinan 250100, Peoples R ChinaShandong Univ, Sch Publ Hlth, Inst Social Med & Hlth Serv Management, Jinan 250100, Peoples R China
Wang, Xingzhou
Zheng, Wengui
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Shandong Univ, Sch Publ Hlth, Inst Social Med & Hlth Serv Management, Jinan 250100, Peoples R ChinaShandong Univ, Sch Publ Hlth, Inst Social Med & Hlth Serv Management, Jinan 250100, Peoples R China
Zheng, Wengui
Xu, Lingzhong
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Shandong Univ, Sch Publ Hlth, Inst Social Med & Hlth Serv Management, Jinan 250100, Peoples R ChinaShandong Univ, Sch Publ Hlth, Inst Social Med & Hlth Serv Management, Jinan 250100, Peoples R China
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Univ Paris Saclay, Univ Versailles St Quentin En Yvelines, Dept Maieut, UFR Simone Veil Sante, 2 Ave Source Bievre, F-78180 Montigny Le Bretonneux, France
Univ Paris Saclay, Clin Epidemiol Team, UVSQ, UFR S Veil Sante, F-78180 Montigny Le Bretonneux, France
CHI Poissy St Germain Laye, Dept Obstet, F-78300 Poissy, FranceUniv Paris Saclay, Univ Versailles St Quentin En Yvelines, Dept Maieut, UFR Simone Veil Sante, 2 Ave Source Bievre, F-78180 Montigny Le Bretonneux, France
Rousseau, Anne
Fourmond, Marion
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Univ Paris Saclay, Univ Versailles St Quentin En Yvelines, Dept Maieut, UFR Simone Veil Sante, 2 Ave Source Bievre, F-78180 Montigny Le Bretonneux, France
CHI Poissy St Germain Laye, Dept Obstet, F-78300 Poissy, FranceUniv Paris Saclay, Univ Versailles St Quentin En Yvelines, Dept Maieut, UFR Simone Veil Sante, 2 Ave Source Bievre, F-78180 Montigny Le Bretonneux, France
Fourmond, Marion
Baumann, Sophie
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Univ Paris Saclay, Univ Versailles St Quentin En Yvelines, Dept Maieut, UFR Simone Veil Sante, 2 Ave Source Bievre, F-78180 Montigny Le Bretonneux, FranceUniv Paris Saclay, Univ Versailles St Quentin En Yvelines, Dept Maieut, UFR Simone Veil Sante, 2 Ave Source Bievre, F-78180 Montigny Le Bretonneux, France