Patient-reported outcomes in vasculitis

被引：1
|
作者：
Crawshaw, Helena [1 ]
Janagan, Shalini [2 ]
Austin, Keziah [2 ,3 ]
Baker, Charlotte [2 ]
Day, Julia [2 ]
Robson, Joanna C. [4 ]
机构：
[1] Gloucestershire Royal Hosp NHS Trust, Rheumatol Dept, Great Western Rd, Gloucester GL1 3NN, England
[2] Univ Hosp Bristol & Weston NHS Fdn Trust, Rheumatol Dept, Bristol Royal Infirmary, Marlborough St, Bristol BS1 3NU, England
[3] Royal Natl Hosp Rheumat Dis, Rheumatol Dept, Combe Pk, Bath BA1 3NG, England
[4] Univ West England, Ctr Hlth & Clin Res, Bristol Royal Infirmary, Room 5-054,Rheumatol Res B502, Bristol BS2 8HW, England
来源：
BEST PRACTICE & RESEARCH IN CLINICAL RHEUMATOLOGY | 2023年 / 37卷 / 01期
关键词：
Patient-reported outcomes (PRO); Patient-reported outcome measures; (PROMs); Patient-reported experience measures; (PREMs); Systemic vasculitis; Giant cell arteritis (GCA); Takayasu's arteritis (TAK); IgA vasculitis; Behcet's disease; Urticarial vasculitis; ANCA-Associated vasculitis (AAVs); QUALITY-OF-LIFE; ANCA-ASSOCIATED VASCULITIS; PATIENTS PERSPECTIVE; BEHCETS-DISEASE; RHEUMATOID-ARTHRITIS; TAKAYASUS-ARTERITIS; HEALTH; VALIDATION; TRIALS; CARE;
D O I：
10.1016/j.berh.2023.101829
中图分类号：
R5 [内科学];
学科分类号：
1002 ; 100201 ;
摘要：
Systemic vasculitis encompasses a group of multisystem disorders; both the diseases and the treatment strategies can have a significant impact on a patient's health-related quality of life (HRQoL). Using patient-reported outcome measures (PROMs) and patientreported experience measures (PREMs) to evaluate the patient's view of their condition, treatments, and healthcare journey is essential to the patient-centered care approach. In this paper, we discuss the use of generic, disease-specific, and treatment-specific PROMs and PREMs in systemic vasculitis and future research goals. (c) 2023 Elsevier Ltd. All rights reserved.
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页数：10
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