Developing and evaluating a cancer communication picture book for children, families, and health care professionals: A mixed-methods feasibility study

被引:1
|
作者
Yamaji, Noyuri [1 ,2 ,3 ]
Kobayashi, Kyoko [4 ]
Hasegawa, Daisuke [5 ]
Ota, Erika [3 ,6 ]
机构
[1] Univ Tokyo, Global Nursing Res Ctr, Grad Sch Med, Bunkyo Ku, Tokyo, Japan
[2] Univ Tokyo, Grad Sch Med, Dept Family Nursing, Div Hlth Sci & Nursing, Bunkyo Ku, Tokyo, Japan
[3] St Lukes Int Univ, Grad Sch Nursing, Global Hlth Nursing, Chuo Ku, Tokyo, Japan
[4] St Lukes Int Univ, Grad Sch Nursing, Child Hlth Nursing, Chuo Ku, Tokyo, Japan
[5] St Lukes Int Hosp, Dept Pediat, Chuo Ku, Tokyo, Japan
[6] Tokyo Fdn Policy Res, Minato Ku, Tokyo, Japan
关键词
Cancer; Children; Childhood cancer; Communication; Picture book; Mixed methods; PEDIATRIC CANCER; PARENTS; STRESS; PARTICIPATION; ADOLESCENTS; CHALLENGES; DIAGNOSIS; LIFE;
D O I
10.1016/j.apjon.2023.100345
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Objective: Effective communication about cancer with children is a significant challenge for healthcare professionals and families. This study aimed to create a picture book as a tool for facilitating communication about cancer and to assess its feasibility. It also demonstrated the use of mixed methods and convergent designs for intervention development.Methods: The study included healthcare professionals (n = 14), children without cancer (aged 4-8 years; n = 21) and their families (n = 18), as well as children with various types of cancer, undergoing maintenance therapy or follow-up (aged 4-12 years; n = 3) and their families (n = 3). Quantitative and qualitative data were separately analyzed, and meta-inferences were made using a joint display. The picture book was refined based on feedback from healthcare professionals, and a similar iterative process was carried out with children and their families.Results: Over 85% of the participants considered the picture book, along with a side book, feasible. The picture book was found to be helpful for discussing the topic of cancer with children. It also significantly improved the knowledge of children without cancer (P < 0.01). Most children expressed interest in reading it and believed it was useful for talking to others about cancer. However, some concerns were raised regarding the context and expressions in the picture book.Conclusions: This study successfully assessed the feasibility of the developed picture book using a mixed methods approach, offering valuable insights into its implementation and refinement. Further research is needed to evaluate the effectiveness of its use and gather user feedback.
引用
收藏
页数:15
相关论文
共 50 条
  • [41] The importance of compassion and respectful care for the health workforce: a mixed-methods study
    Kemal Jemal
    Dejene Hailu
    Mathewos Mekonnen
    Bikila Tesfa
    Kumera Bekele
    Tadele Kinati
    Journal of Public Health, 2023, 31 : 167 - 178
  • [42] The importance of compassion and respectful care for the health workforce: a mixed-methods study
    Jemal, Kemal
    Hailu, Dejene
    Mekonnen, Mathewos
    Tesfa, Bikila
    Bekele, Kumera
    Kinati, Tadele
    JOURNAL OF PUBLIC HEALTH-HEIDELBERG, 2023, 31 (02): : 167 - 178
  • [43] Perceptions of Weight and Health Practices in Hispanic Children: A Mixed-Methods Study
    Foster, Byron Alexander
    Hale, Daniel
    INTERNATIONAL JOURNAL OF PEDIATRICS, 2015, 2015
  • [44] Investigating the barriers to cornea donation among the community and health-care professionals in Lagos state - a mixed-methods study
    Bashorun, Sedoten Dagbeyon
    Mtuy, Tara
    Hu, Victor
    INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, 2024, 65 (07)
  • [45] What are the barriers and facilitators for health and social care professionals accessing organizational wellbeing support services? A mixed-methods study
    Johnson, Judith
    Pointon, Lucy
    Kaur, Essie
    Vogt, Katharina Sophie
    Alzahrani, Adnan
    Keyworth, Chris
    JOURNAL OF WORKPLACE BEHAVIORAL HEALTH, 2024,
  • [46] Community Health Workers as Mental Health Paraprofessionals:Protocol for a Mixed-Methods Pilot Feasibility Study
    Moyce, Sally
    Crawford, Cassidy
    JMIR RESEARCH PROTOCOLS, 2024, 13
  • [47] Resilience-based alcohol education: developing an intervention, evaluating feasibility and barriers to implementation using mixed-methods
    de Visser, Richard O.
    Graber, Rebecca
    Abraham, Charles
    Hart, Angie
    Memon, Anjum
    HEALTH EDUCATION RESEARCH, 2020, 35 (02) : 123 - 133
  • [48] Barriers to Providing Lactation Services and Support to Families in Appalachia: A Mixed-Methods Study With Lactation Professionals and Supporters
    Seiger, Emily R.
    Wasser, Heather M.
    Hutchinson, Stephanie A.
    Foster, Grace
    Sideek, Ruwaydah
    Martin, Stephanie L.
    AMERICAN JOURNAL OF PUBLIC HEALTH, 2022, 112 : S797 - S806
  • [49] Evaluating the Feasibility and Acceptability of a GPT-Based Chatbot for Depression Screening: A Mixed-Methods Study
    Guo, Zhijun
    Lai, Alvina
    Deng, Zhouyiyi
    Li, Kezhi
    ARTIFICIAL INTELLIGENCE IN HEALTHCARE, PT I, AIIH 2024, 2024, 14975 : 249 - 263
  • [50] Integrating digital behavioural therapy for insomnia into primary care: A feasibility mixed-methods study
    Gordon, Christopher J.
    Cheung, Janet M. Y.
    Schrire, Zoe Menzel
    Rahimi, Matthew
    Aji, Melissa
    Salomon, Helena
    Doggett, Iliana
    Glozier, Nick
    Wong, Keith K. H.
    Marshall, Nathaniel S.
    Bartlett, Delwyn J.
    Grunstein, Ron R.
    JOURNAL OF SLEEP RESEARCH, 2024,