Developing and evaluating a cancer communication picture book for children, families, and health care professionals: A mixed-methods feasibility study

被引:1
|
作者
Yamaji, Noyuri [1 ,2 ,3 ]
Kobayashi, Kyoko [4 ]
Hasegawa, Daisuke [5 ]
Ota, Erika [3 ,6 ]
机构
[1] Univ Tokyo, Global Nursing Res Ctr, Grad Sch Med, Bunkyo Ku, Tokyo, Japan
[2] Univ Tokyo, Grad Sch Med, Dept Family Nursing, Div Hlth Sci & Nursing, Bunkyo Ku, Tokyo, Japan
[3] St Lukes Int Univ, Grad Sch Nursing, Global Hlth Nursing, Chuo Ku, Tokyo, Japan
[4] St Lukes Int Univ, Grad Sch Nursing, Child Hlth Nursing, Chuo Ku, Tokyo, Japan
[5] St Lukes Int Hosp, Dept Pediat, Chuo Ku, Tokyo, Japan
[6] Tokyo Fdn Policy Res, Minato Ku, Tokyo, Japan
关键词
Cancer; Children; Childhood cancer; Communication; Picture book; Mixed methods; PEDIATRIC CANCER; PARENTS; STRESS; PARTICIPATION; ADOLESCENTS; CHALLENGES; DIAGNOSIS; LIFE;
D O I
10.1016/j.apjon.2023.100345
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Objective: Effective communication about cancer with children is a significant challenge for healthcare professionals and families. This study aimed to create a picture book as a tool for facilitating communication about cancer and to assess its feasibility. It also demonstrated the use of mixed methods and convergent designs for intervention development.Methods: The study included healthcare professionals (n = 14), children without cancer (aged 4-8 years; n = 21) and their families (n = 18), as well as children with various types of cancer, undergoing maintenance therapy or follow-up (aged 4-12 years; n = 3) and their families (n = 3). Quantitative and qualitative data were separately analyzed, and meta-inferences were made using a joint display. The picture book was refined based on feedback from healthcare professionals, and a similar iterative process was carried out with children and their families.Results: Over 85% of the participants considered the picture book, along with a side book, feasible. The picture book was found to be helpful for discussing the topic of cancer with children. It also significantly improved the knowledge of children without cancer (P < 0.01). Most children expressed interest in reading it and believed it was useful for talking to others about cancer. However, some concerns were raised regarding the context and expressions in the picture book.Conclusions: This study successfully assessed the feasibility of the developed picture book using a mixed methods approach, offering valuable insights into its implementation and refinement. Further research is needed to evaluate the effectiveness of its use and gather user feedback.
引用
收藏
页数:15
相关论文
共 50 条
  • [1] Developing a program to enhance health professionals′ readiness to evidence utilization in diabetes care: A mixed-methods protocol study
    Ghahfarokhi, Raheleh Javanbakhtian
    Alavi, Mousa
    Soleymani, Mohammad Reza
    JOURNAL OF EDUCATION AND HEALTH PROMOTION, 2021, 10 (01)
  • [2] Health Care Professionals' Perspectives on Universal Screening of Social Determinants of Health: A Mixed-Methods Study
    Kostelanetz, Sophia
    Pettapiece-Phillips, Mariah
    Weems, Jacy
    Spalding, Tamarra
    Roumie, Christianne
    Wilkins, Consuelo H.
    Kripalani, Sunil
    POPULATION HEALTH MANAGEMENT, 2022, 25 (03) : 367 - 374
  • [3] Legal Relief for Children in Immigrant Families: A Mixed-Methods Study
    Wichelt, Natalie
    Torres, Kenny
    de la Vega, Gabriela
    Linton, Julie M.
    Montez, Kimberly
    INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2022, 19 (07)
  • [4] Health professionals' and families' understanding of the role of individualised homeopathy in asthma management for children requiring secondary care: Qualitative findings from a mixed methods feasibility study
    Nichol, James
    Thompson, Elizabeth A.
    Shaw, Alison
    EUROPEAN JOURNAL OF INTEGRATIVE MEDICINE, 2013, 5 (05) : 418 - 426
  • [5] Evaluating perceived barriers to optimal care in head and neck cancer: A mixed-methods study
    Powell, Steven Francis
    Beadle, Beth Michelle
    Watts, Tammara L.
    Maxwell, Jessica H.
    Hutkin-Slade, Linda
    Haynes-Lewis, Hilda
    Demirhan, Kimberly
    Plotkin, Elana
    Rush, Angie
    Dibble, Jacqueline
    Kim, Joseph
    JOURNAL OF CLINICAL ONCOLOGY, 2024, 42 (16)
  • [6] An eHealth Capabilities Framework for Graduates and Health Professionals: Mixed-Methods Study
    Brunner, Melissa
    McGregor, Deborah
    Keep, Melanie
    Janssen, Anna
    Spallek, Heiko
    Quinn, Deleana
    Jones, Aaron
    Tseris, Emma
    Yeung, Wilson
    Togher, Leanne
    Solman, Annette
    Shaw, Tim
    JOURNAL OF MEDICAL INTERNET RESEARCH, 2018, 20 (05)
  • [7] Proactive cancer care in primary care: a mixed-methods study
    Kendall, Marilyn
    Mason, Bruce
    Momen, Natalie
    Barclay, Stephen
    Munday, Dan
    Lovick, Roberta
    MacPherson, Stella
    Paterson, Euan
    Baughan, Paul
    Cormie, Paul
    Kiehlmann, Peter
    Free, Amanda
    Murray, Scott A.
    FAMILY PRACTICE, 2013, 30 (03) : 302 - 312
  • [8] Exploring the supportive care needs of families affected by pancreatic cancer: a mixed-methods study protocol
    Anderson, Tara
    Prue, Gillian
    Graham-Wisener, Lisa
    Mclaughlin, Susan
    Mitchell, Gary
    BMC CANCER, 2024, 24 (01)
  • [9] Critical care providers' support of families in bereavement: a mixed-methods study
    Kalocsai, Csilla
    des Ordons, Amanda Roze
    Sinuff, Tasnim
    Koo, Ellen
    Smith, Orla
    Cook, Deborah
    Golan, Eyal
    Hales, Sarah
    Tomlinson, George
    Strachan, Derek
    MacKinnon, Christopher J.
    Downar, James
    CANADIAN JOURNAL OF ANESTHESIA-JOURNAL CANADIEN D ANESTHESIE, 2020, 67 (07): : 857 - 865
  • [10] Evaluating the Feasibility and Potential Impacts of a Recovery-Oriented Psychosocial Rehabilitation Toolkit in a Health Care Setting in Kenya: A Mixed-Methods Study
    Casey, Regina
    Wiener, Joshua C.
    Krupa, Terry
    Lysaght, Rosemary
    Le Ber, Marlene Janzen
    Ruhara, Ruth
    Price, Elizabeth
    Pervez, Romaisa
    Kidd, Sean
    Mutiso, Victoria
    Ndetei, David M.
    MacDougall, Arlene G.
    PSYCHIATRIC REHABILITATION JOURNAL, 2023, 46 (01) : 55 - 64