A Prospective Study with Patients and Families on the Usefulness of Accurate Prognosis for Palliative Care Patients

被引:0
|
作者
Piovesan, Manuela [1 ,2 ]
Orr, Pauline [2 ]
Tevyaw, Sarah [2 ]
Roussos, Emily [2 ]
Cherid, Chams [1 ]
Bouchard, Sylvie [1 ,2 ,3 ,4 ]
机构
[1] Montreal Inst Palliat Care, Clin Care Dept, Kirkland, PQ, Canada
[2] Teresa Dellar Palliat Care Residence, Clin Care Dept, Kirkland, PQ, Canada
[3] McGill Univ, Dept Oncol, Montreal, PQ, Canada
[4] 265 Andre Brunet, Kirkland, PQ H9H 3R4, Canada
关键词
Bereavement; cancer; end-of-life planning; Palliative care; prognosis; AWARENESS; CANCER;
D O I
10.1080/15524256.2024.2321330
中图分类号
C916 [社会工作、社会管理、社会规划];
学科分类号
1204 ;
摘要
Prediction of life expectancy in terminally ill patients is an important end-of-life care issue for patients, families and mental health workers during the last days of life. This study was conducted to examine the importance/usefulness for patients/families to have an accurate prognosis and its impact on planning their activities prior to death. All patients admitted during a period of one year were included. Patients' and families' viewpoints on the usefulness of an accurate prognosis was documented at admission. There were 285 patients in the cohort. The median time to death was 8 days. Most families (83%) rated the importance of an accurate prognosis as moderately (13%) to very much useful (70%). A total of 42% of patients were able to complete e the questionnaire. Among these, 58% found it moderately to very much useful. For families, having an accurate prognosis influenced the planning of visits (69%), communication/closure (42%) and spiritual needs/funeral arrangements (31%). Patients identified planning of visits (10%), communication/closure (12%), and goals/accomplishments (9%) as very important. Discussing the prognosis and its impact is very helpful for the mental health professionals to have open and honest conversations with patients/families to identify, prioritize and adapt treatment to achieve goals prior to death.
引用
收藏
页码:133 / 146
页数:14
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