A call from patient-researchers to advance research on long COVID

被引:1
|
作者
Fitzgerald, Megan L. [1 ]
Cohen, Alison K. [1 ,2 ]
Jaudon, Toni Wall [1 ,3 ]
Vogel, Julia Moore [1 ,4 ]
Koppes, Abigail N. [1 ,5 ]
Santos, Lucia [1 ]
Robles, Rachel [1 ,6 ]
Lin, Jerry [1 ]
Davids, J. D. [1 ,7 ]
Mcwilliams, Chris
Redfield, Signe [1 ]
Banks, Kathleen P. [1 ,8 ]
Richardson, Maria [1 ,9 ]
Akintonwa, Teresa T. Tindle [1 ,10 ]
Pollack, Beth [1 ,11 ]
Spier, Ezra [1 ]
Weiss, Aimee [1 ]
Assaf, Gina [1 ]
Davis, Hannah [1 ]
Mccorkell, Lisa
机构
[1] Patient Led Res Collaborat, Washington, DC 20001 USA
[2] Univ Calif San Francisco, San Francisco, CA USA
[3] Univ Arkansas Med Sci, Little Rock, AR USA
[4] Scripps Res, La Jolla, CA USA
[5] Northeastern Univ, Dept Chem Engn, Boston, MA USA
[6] Frauenklin Bern, Bern, Switzerland
[7] Strategies High Impact & Long COVID Justice, Brooklyn, NY USA
[8] Boston Univ, Sch Publ Hlth, Boston, MA USA
[9] Mill Missing Mexico, Mexico City, Mexico
[10] Black COVID19 Survivors Alliance, Marietta, GA USA
[11] MIT, Cambridge, MA USA
关键词
D O I
10.1016/j.cell.2024.09.011
中图分类号
Q5 [生物化学]; Q7 [分子生物学];
学科分类号
071010 ; 081704 ;
摘要
Long COVID is a chronic and often disabling illness with long-term consequences. Although progress has been made in the clinical characterization of long COVID, no approved treatments exist and disconnects between patients and researchers threaten to hinder future progress. Incorporating patients as active collaborators in long COVID research can bridge the gap and accelerate progress toward treatments and cures.
引用
收藏
页码:5490 / 5496
页数:7
相关论文
共 50 条
  • [31] Patient organisation collaboration to advance patient engagement in Parkinson's research
    Ratcliffe, N.
    Schroeder, K.
    MOVEMENT DISORDERS, 2019, 34 : S296 - S296
  • [32] Is there a solution to publication bias? Researchers call for changes in dissemination of clinical research results
    Malicki, Mario
    Marusic, Ana
    JOURNAL OF CLINICAL EPIDEMIOLOGY, 2014, 67 (10) : 1103 - 1110
  • [33] Long COVID: A patient perspective
    Harari, S.
    Ripamonti, L.
    Marveggio, P.
    Mannucci, P. M.
    EUROPEAN JOURNAL OF INTERNAL MEDICINE, 2022, 95 : 104 - 105
  • [34] Patient-Led Research Collaborative: embedding patients in the Long COVID narrative
    McCorkell, Lisa
    Assaf, Gina S.
    Davis, Hannah E.
    Wei, Hannah
    Akrami, Athena
    PAIN REPORTS, 2021, 6 (01)
  • [35] Ocular oncology research: The advance of patient care and science
    Grossniklaus, HE
    Straatsma, BR
    AMERICAN JOURNAL OF OPHTHALMOLOGY, 2002, 133 (01) : 129 - 130
  • [36] Long COVID research: an update from the PHOSP-COVID Scientific Summit
    Brightling, Christopher E.
    Evans, Rachael A.
    Singapuri, Amisha
    Smith, Nikki
    Wain, Louise, V
    LANCET RESPIRATORY MEDICINE, 2023, 11 (11): : E93 - E94
  • [37] Researchers find key to long life: Doing research
    Sanides, S
    SCIENTIST, 2003, 17 (17): : 51 - 51
  • [38] Researchers Seek Answers for Millions with Long COVID-19
    Mertz L.
    IEEE Pulse, 2021, 12 (02) : 17 - 21
  • [39] Long COVID and its cardiovascular implications: a call to action
    Al-Aly, Ziyad
    EUROPEAN HEART JOURNAL, 2023, 44 (47) : 5001 - 5003
  • [40] "Long COVID-19" of Researchers: What to Do Next?
    Gavriilaki, Eleni
    Maiques-Diaz, Alba
    HEMASPHERE, 2022, 6 (01):