Exploring patients' views regarding the support and rehabilitation needs of people living with myocardial ischaemia and no obstructive coronary arteries: a qualitative interview study
Objectives This study aimed to generate new qualitative insights to understand the rehabilitation needs of people living with a confirmed or presumed diagnosis of ischaemia with no obstructive coronary arteries (INOCA), explore which aspects of current cardiovascular prevention and rehabilitation programmes could meet the needs of people with INOCA and where adjustments (if any) may be appropriate.Design Semistructured qualitative interview study.Participants Interviews were undertaken (n=17; 88% female, age range 31-69 years) with people with a confirmed or presumed diagnosis of INOCA.Results Findings highlighted concerns around a lack of evidence-based guidance for cardiovascular prevention and rehabilitation programmes for patients with INOCA. Participants expressed a desire for modular cardiovascular prevention and rehabilitation programmes that could be accessed flexibly to accommodate episodic fluctuations in symptoms. Participants suggested that existing cardiovascular prevention and rehabilitation programme content needed adjustment including enhanced psychosocial support, supervised low-impact physical activity and specialist dietary advice and medication reviews. Additional elements specific to INOCA should be made available as appropriate including acute care planning and a module to provide information and support for female-specific issues. The importance of involving INOCA patients in the codesign of future programmes and associated training was emphasised.Conclusions People with INOCA are willing to engage with cardiovascular prevention and rehabilitation programmes and express a desire for more support. This patient group shares some barriers to rehabilitation programme attendance with other cardiac patient groups, but they also have specific concerns about the need for improved professional knowledge and evidence-based guidance regarding the management of INOCA. Cardiovascular rehabilitation programmes need to be delivered flexibly and individually tailored to ensure the relapsing and remitting nature of INOCA and associated support needs are addressed.
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Brighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, EnglandBrighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, England
Alford, K.
Sidat, S.
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Brighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, EnglandBrighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, England
Sidat, S.
Bristowe, K.
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Kings Coll London, Cicely Saunders Inst, London, EnglandBrighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, England
Bristowe, K.
Clair-Sullivan, N. St.
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Brighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, EnglandBrighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, England
Clair-Sullivan, N. St.
Parteger, G.
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Lunch Posit, Brighton, E Sussex, EnglandBrighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, England
Parteger, G.
Maddocks, M.
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Kings Coll London, Cicely Saunders Inst, London, EnglandBrighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, England
Maddocks, M.
Yi, D.
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Kings Coll London, Cicely Saunders Inst, London, EnglandBrighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, England
Yi, D.
Harding, R.
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Kings Coll London, Cicely Saunders Inst, London, EnglandBrighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, England
Harding, R.
Levitt, T.
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Brighton & Sussex Med Sch, Dept Med, Brighton, E Sussex, EnglandBrighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, England
Levitt, T.
Bremner, S.
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Brighton & Sussex Med Sch, Dept Primary Care & Publ Hlth, Brighton, E Sussex, EnglandBrighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, England
Bremner, S.
Vera, J. H.
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Brighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, England
Univ Hosp Sussex NHS Fdn Trust, HIV & Sexual Hlth, Brighton, E Sussex, EnglandBrighton & Sussex Med Sch, Dept Global Hlth & Infect, Brighton, E Sussex, England
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Russian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, RussiaRussian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, Russia
Zavadovsky, Konstantin V.
Vorobyeva, Darya A.
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Russian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, RussiaRussian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, Russia
Vorobyeva, Darya A.
Mochula, Olga V.
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Russian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, RussiaRussian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, Russia
Mochula, Olga V.
Mochula, Andrew V.
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Russian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, RussiaRussian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, Russia
Mochula, Andrew V.
Maltseva, Alina N.
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Russian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, RussiaRussian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, Russia
Maltseva, Alina N.
Bayev, Andrew E.
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Russian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, RussiaRussian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, Russia
Bayev, Andrew E.
Gulya, Marina O.
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Russian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, RussiaRussian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, Russia
Gulya, Marina O.
Gimelli, Alessia
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Fdn Toscana, CNR Gabriele Monasterio, Pisa, ItalyRussian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, Russia
Gimelli, Alessia
Ryabov, Vyacheslav V.
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Russian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, RussiaRussian Acad Sci, Tomsk Natl Res Med Ctr, Cardiol Res Inst, Moscow, Russia
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St Georges Univ London, Div Populat Hlth Sci & Educ, London SW17 0RE, EnglandSt Georges Univ London, Div Populat Hlth Sci & Educ, London SW17 0RE, England
Giatras, Nikoletta
Butler, Gary
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St Georges Univ London, Div Populat Hlth Sci & Educ, London SW17 0RE, EnglandSt Georges Univ London, Div Populat Hlth Sci & Educ, London SW17 0RE, England
Butler, Gary
Cresswell, Amanda
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St Georges Univ London, Div Populat Hlth Sci & Educ, London SW17 0RE, EnglandSt Georges Univ London, Div Populat Hlth Sci & Educ, London SW17 0RE, England
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Univ Bradford, Sch Pharm & Med Sci, Fac Life Sci, Bradford, England
NIHR Yorkshire & Humber Patient Safety Res Collabo, Bradford, England
Univ York, Dept Hlth Sci, York, England
Univ Bradford, Sch Pharm & Med Sci, Bradford BD7 1DP, W Yorkshire, EnglandUniv Bradford, Sch Pharm & Med Sci, Fac Life Sci, Bradford, England
Previdoli, Giorgia
Alldred, David P.
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NIHR Yorkshire & Humber Patient Safety Res Collabo, Bradford, England
Univ Leeds, Sch Healthcare, Fac Med & Hlth, Leeds, EnglandUniv Bradford, Sch Pharm & Med Sci, Fac Life Sci, Bradford, England
Alldred, David P.
Silcock, Jonathan
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Univ Bradford, Sch Pharm & Med Sci, Fac Life Sci, Bradford, EnglandUniv Bradford, Sch Pharm & Med Sci, Fac Life Sci, Bradford, England
Silcock, Jonathan
Tyndale-Biscoe, Savi
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Bradford Teaching Hosp NHS Fdn Trust, Bradford, EnglandUniv Bradford, Sch Pharm & Med Sci, Fac Life Sci, Bradford, England
Tyndale-Biscoe, Savi
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Okeowo, Daniel
Cheong, V-Lin
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Leeds Teaching Hosp NHS Trust, Leeds, EnglandUniv Bradford, Sch Pharm & Med Sci, Fac Life Sci, Bradford, England
Cheong, V-Lin
Fylan, Beth
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Univ Bradford, Sch Pharm & Med Sci, Fac Life Sci, Bradford, England
NIHR Yorkshire & Humber Patient Safety Res Collabo, Bradford, EnglandUniv Bradford, Sch Pharm & Med Sci, Fac Life Sci, Bradford, England
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Univ Hertfordshire, Ctr Res Primary & Community Care, Hatfield, Herts, EnglandUniv Hertfordshire, Ctr Res Primary & Community Care, Hatfield, Herts, England
Bunn, Frances
Burn, Anne-Marie
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Univ Hertfordshire, Ctr Res Primary & Community Care, Hatfield, Herts, EnglandUniv Hertfordshire, Ctr Res Primary & Community Care, Hatfield, Herts, England
Burn, Anne-Marie
Robinson, Louise
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Newcastle Univ, Inst Hlth & Soc, Newcastle Upon Tyne, Tyne & Wear, EnglandUniv Hertfordshire, Ctr Res Primary & Community Care, Hatfield, Herts, England
Robinson, Louise
Poole, Marie
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Newcastle Univ, Inst Hlth & Soc, Newcastle Upon Tyne, Tyne & Wear, EnglandUniv Hertfordshire, Ctr Res Primary & Community Care, Hatfield, Herts, England
Poole, Marie
Rait, Greta
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UCL Med Sch, Res Dept Primary Care & Populat Hlth, Royal Free Campus, London, EnglandUniv Hertfordshire, Ctr Res Primary & Community Care, Hatfield, Herts, England
Rait, Greta
Brayne, Carol
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Univ Cambridge, Dept Publ Hlth & Primary Care, Cambridge, EnglandUniv Hertfordshire, Ctr Res Primary & Community Care, Hatfield, Herts, England
Brayne, Carol
Schoeman, Johan
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Kings Coll London, Inst Psychiat, Dept Psychol, London, EnglandUniv Hertfordshire, Ctr Res Primary & Community Care, Hatfield, Herts, England
Schoeman, Johan
Norton, Sam
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East London Fdn Trust, London, EnglandUniv Hertfordshire, Ctr Res Primary & Community Care, Hatfield, Herts, England
Norton, Sam
Goodman, Claire
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Univ Hertfordshire, Ctr Res Primary & Community Care, Hatfield, Herts, EnglandUniv Hertfordshire, Ctr Res Primary & Community Care, Hatfield, Herts, England
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Yorkshire & Humber Deanery, Leeds, W Yorkshire, EnglandYorkshire & Humber Deanery, Leeds, W Yorkshire, England
Arolker, M.
Barnes, J.
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Yorkshire & Humber Deanery, Leeds, W Yorkshire, EnglandYorkshire & Humber Deanery, Leeds, W Yorkshire, England
Barnes, J.
Gadoud, A.
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Yorkshire & Humber Deanery, Leeds, W Yorkshire, EnglandYorkshire & Humber Deanery, Leeds, W Yorkshire, England
Gadoud, A.
Jones, L.
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Hull York Med Sch, Kingston Upon Hull, N Humberside, EnglandYorkshire & Humber Deanery, Leeds, W Yorkshire, England
Jones, L.
Barnes, L.
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St Catherines Hosp, Scarborough, ON, CanadaYorkshire & Humber Deanery, Leeds, W Yorkshire, England
Barnes, L.
Johnson, M. J.
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机构:
Hull York Med Sch, Kingston Upon Hull, N Humberside, England
St Catherines Hosp, Scarborough, ON, CanadaYorkshire & Humber Deanery, Leeds, W Yorkshire, England