Validation of Patient-Reported Outcomes Measurement Information System® (PROMIS®) Pediatric Measures for Children with Chronic Nonbacterial Osteomyelitis Using the CHOIR Data

被引:0
|
作者
Eckert, Mary [1 ]
Wu, Eveline [2 ]
Oliver, Melissa [3 ]
Scheck, Joshua [4 ]
Lapidus, Sivia [5 ]
Akca, Ummusen Kaya [6 ]
Yasin, Shima [7 ]
Lenert, Aleksander [8 ]
Stern, Sara [9 ]
Insalaco, Antonella [10 ]
Pardeo, Manuela [10 ]
Simonini, Gabriele [11 ,12 ]
Marrani, Edoardo [13 ]
Wang, Xing [14 ]
Huang, Bin [15 ]
Kovalick, Leonard [16 ]
Rosenwasser, Natalie [17 ]
Balay-Dustrude, Erin [18 ]
Casselman, Gabriel [17 ]
Adriel, Liau [19 ]
Klein, Ava [19 ]
Shao, Yurong [4 ]
Yang, Claire [4 ]
Briggs, Molly [4 ]
Deng, Emily [4 ]
Hamilton, Iris [4 ]
Mueller, Ethan [17 ]
Machrone, Elise [4 ]
Trunnel, Paige [4 ]
Mosa, Doaa [20 ]
Tucker, Lori [21 ]
Girschick, Hermann [22 ]
Laxer, Ronald [23 ]
Tiller, Georgina [24 ]
Akikusa, Jonathan [25 ]
Hedrich, Christian [26 ]
Onel, Karen [27 ]
Dedeoglu, Fatma [28 ]
Twilt, Marinka [29 ]
Ozen, Seza [30 ]
Ferguson, Polly [31 ]
Schanberg, Laura [32 ]
Reeve, Bryce [33 ]
Zhao, Yongdong [34 ]
机构
[1] Seattle Childrens, Mercer Isl, WA USA
[2] Univ N Carolina, Sch Med, Chapel Hill, NC USA
[3] Indiana Univ, Indianapolis, IN USA
[4] Seattle Childrens Hosp, Seattle, WA USA
[5] Hackensack Univ, Med Ctr, Montclair, NJ USA
[6] Hacettepe Univ, Div Pediat Rheumatol, Dept Pediat, Fac Med, Ankara, Turkiye
[7] Univ Iowa, Carver Coll Med, Abu Dhabi, U Arab Emirates
[8] Univ Iowa, Iowa City, IA USA
[9] Univ Utah, Salt Lake City, UT USA
[10] IRCCS Osped Pediat Bambino Gesu, Rome, Italy
[11] Univ Florence, Meyer Children Hosp, IRCCS, Florence, Italy
[12] Univ Florence, NEUROFARBA Dept, Florence, Italy
[13] Univ Florence, Florence, Italy
[14] Seattle Childrens Res Inst, Biostat Epidemiol & Analyt Res, Seattle, WA USA
[15] Univ Cincinnati, Cincinnati Childrens Hosp Med Ctr, Coll Med, Cinciannati, OH USA
[16] UNC Hlth Care, Durham, NC USA
[17] Seattle Childrens Hosp, Seattle, WA USA
[18] Univ Washington, Seattle, WA USA
[19] Univ Washington, Seattle Childrens Res Inst, Seattle, WA USA
[20] Mansoura Univ Hosp, Mansoura, Egypt
[21] BC Childrens Hosp, Vancouver, BC, Canada
[22] Vivantes Clin Friedrichshain, Wurzburg, Germany
[23] SickKids, Toronto, ON, Canada
[24] Univ British Columbia Vancouver, Vancouver, BC, Canada
[25] Royal Childrens Hosp, Parkville, Vic, Australia
[26] Univ Liverpool, Liverpool, England
[27] HSS, New York, NY USA
[28] Boston Childrens Hosp, Boston, MA USA
[29] Alberta Childrens Prov Gen Hosp, Calgary, AB, Canada
[30] Hacettepe Univ, Dept Pediat, Ankara, Turkiye
[31] Univ Iowa, Carver Coll Med, Iowa City, IA USA
[32] Duke Univ, Med Ctr, Durham, NC USA
[33] Duke Univ, Sch Med, Durham, NC USA
[34] Univ Washington, Redmond, WA USA
关键词
D O I
暂无
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
0398
引用
收藏
页码:790 / 793
页数:4
相关论文
共 50 条
  • [31] The expansion and validation of a new upper extremity item bank for the Patient-Reported Outcomes Measurement Information System® (PROMIS)
    Kaat, Aaron J.
    Buckenmaier, Chester ''Trip'', III
    Cook, Karon F.
    Rothrock, Nan E.
    Schalet, Benjamin D.
    Gershon, Richard C.
    Vrahas, Mark S.
    JOURNAL OF PATIENT-REPORTED OUTCOMES, 2019, 3 (01)
  • [32] PROMIS GH (Patient-Reported Outcomes Measurement Information System Global Health) Scale in Stroke A Validation Study
    Katzan, Irene L.
    Lapin, Brittany
    STROKE, 2018, 49 (01) : 147 - +
  • [33] The Effects of Lower Extremity Rotational Malalignment on Pediatric Patient-reported Outcomes Measurement and Information System (PROMIS) Scores
    Chandrananth, Janan
    Hannan, Richard
    Bouton, Daniel
    Raney, Ellen
    Sienko, Susan
    Do, Patrick
    Bauer, Jeremy P.
    JOURNAL OF PEDIATRIC ORTHOPAEDICS, 2022, 42 (08) : E889 - E894
  • [34] Validation of The Patient-Reported Outcomes Measurement Information System® (PROMIS®)-16 using a Nationally Representative Probability-based Sample
    Zeng, Chengbo
    Hays, Ron
    Hanmer, Janel
    Rodriguez, Anthony
    Herman, Patricia
    Edelen, Maria
    QUALITY OF LIFE RESEARCH, 2024, 33 : S223 - S223
  • [35] Validation of new patient reported outcome measurement information system (PROMIS) measures in children with sickle cell disease
    Singh, Ashima
    Dasgupta, Mahua
    Simpson, Pippa
    Panepinto, Julie
    QUALITY OF LIFE RESEARCH, 2018, 27 : S146 - S147
  • [36] Patient-Reported Outcomes Measurement Information System (PROMIS) in Left Ventricular Assist Devices
    Ayers, Brian
    Lee, Elizabeth
    Wood, Katherine
    Bruckel, Jeffrey
    Alexis, Jeffrey
    Vidula, Himabindu
    Barrus, Bryan
    Prasad, Sunil
    Gosev, Igor
    ANNALS OF THORACIC SURGERY, 2022, 113 (03): : 859 - 865
  • [37] Using Patient-Reported Outcomes Measurement Information System (PROMIS®) physical functioning items with elderly minorities
    Paz, Sylvia H.
    Jones, Loretta
    Hays, Ron D.
    QUALITY OF LIFE RESEARCH, 2017, 26 (01) : 16 - 16
  • [38] Using the Patient-Reported Outcomes Measurement Information System (PROMIS) to measure symptom burden reported by patients with brain tumors
    Lai, Jin-Shei
    Kupst, Mary Jo
    Beaumont, Jennifer L.
    Manley, Peter E.
    Chang, John Han-Chih
    Hartsell, William F.
    Kwok, Young
    Fisher, Allison Piazza
    Goldman, Stewart
    PEDIATRIC BLOOD & CANCER, 2019, 66 (03)
  • [39] Responsiveness of the Patient-reported Outcomes Measurement Information System (PROMIS) Pediatric Measures to Changes in Disease Status and Quality of Life Among Children and Adolescents With Crohn's Disease
    Brenner, Erica J.
    Long, Millie D.
    Mann, Courtney M.
    Chen, Wenli
    Reyes, Camila
    Lin, Li
    Reeve, Bryce B.
    Kappelman, Michael D.
    INFLAMMATORY BOWEL DISEASES, 2021, 27 (03) : 344 - 351
  • [40] Reporting and utilization of Patient-Reported Outcomes Measurement Information System® (PROMIS®) measures in orthopedic research and practice: a systematic review
    Maggie E. Horn
    Emily K. Reinke
    Logan J. Couce
    Bryce B. Reeve
    Leila Ledbetter
    Steven Z. George
    Journal of Orthopaedic Surgery and Research, 15