Validation of Patient-Reported Outcomes Measurement Information System® (PROMIS®) Pediatric Measures for Children with Chronic Nonbacterial Osteomyelitis Using the CHOIR Data

被引:0
|
作者
Eckert, Mary [1 ]
Wu, Eveline [2 ]
Oliver, Melissa [3 ]
Scheck, Joshua [4 ]
Lapidus, Sivia [5 ]
Akca, Ummusen Kaya [6 ]
Yasin, Shima [7 ]
Lenert, Aleksander [8 ]
Stern, Sara [9 ]
Insalaco, Antonella [10 ]
Pardeo, Manuela [10 ]
Simonini, Gabriele [11 ,12 ]
Marrani, Edoardo [13 ]
Wang, Xing [14 ]
Huang, Bin [15 ]
Kovalick, Leonard [16 ]
Rosenwasser, Natalie [17 ]
Balay-Dustrude, Erin [18 ]
Casselman, Gabriel [17 ]
Adriel, Liau [19 ]
Klein, Ava [19 ]
Shao, Yurong [4 ]
Yang, Claire [4 ]
Briggs, Molly [4 ]
Deng, Emily [4 ]
Hamilton, Iris [4 ]
Mueller, Ethan [17 ]
Machrone, Elise [4 ]
Trunnel, Paige [4 ]
Mosa, Doaa [20 ]
Tucker, Lori [21 ]
Girschick, Hermann [22 ]
Laxer, Ronald [23 ]
Tiller, Georgina [24 ]
Akikusa, Jonathan [25 ]
Hedrich, Christian [26 ]
Onel, Karen [27 ]
Dedeoglu, Fatma [28 ]
Twilt, Marinka [29 ]
Ozen, Seza [30 ]
Ferguson, Polly [31 ]
Schanberg, Laura [32 ]
Reeve, Bryce [33 ]
Zhao, Yongdong [34 ]
机构
[1] Seattle Childrens, Mercer Isl, WA USA
[2] Univ N Carolina, Sch Med, Chapel Hill, NC USA
[3] Indiana Univ, Indianapolis, IN USA
[4] Seattle Childrens Hosp, Seattle, WA USA
[5] Hackensack Univ, Med Ctr, Montclair, NJ USA
[6] Hacettepe Univ, Div Pediat Rheumatol, Dept Pediat, Fac Med, Ankara, Turkiye
[7] Univ Iowa, Carver Coll Med, Abu Dhabi, U Arab Emirates
[8] Univ Iowa, Iowa City, IA USA
[9] Univ Utah, Salt Lake City, UT USA
[10] IRCCS Osped Pediat Bambino Gesu, Rome, Italy
[11] Univ Florence, Meyer Children Hosp, IRCCS, Florence, Italy
[12] Univ Florence, NEUROFARBA Dept, Florence, Italy
[13] Univ Florence, Florence, Italy
[14] Seattle Childrens Res Inst, Biostat Epidemiol & Analyt Res, Seattle, WA USA
[15] Univ Cincinnati, Cincinnati Childrens Hosp Med Ctr, Coll Med, Cinciannati, OH USA
[16] UNC Hlth Care, Durham, NC USA
[17] Seattle Childrens Hosp, Seattle, WA USA
[18] Univ Washington, Seattle, WA USA
[19] Univ Washington, Seattle Childrens Res Inst, Seattle, WA USA
[20] Mansoura Univ Hosp, Mansoura, Egypt
[21] BC Childrens Hosp, Vancouver, BC, Canada
[22] Vivantes Clin Friedrichshain, Wurzburg, Germany
[23] SickKids, Toronto, ON, Canada
[24] Univ British Columbia Vancouver, Vancouver, BC, Canada
[25] Royal Childrens Hosp, Parkville, Vic, Australia
[26] Univ Liverpool, Liverpool, England
[27] HSS, New York, NY USA
[28] Boston Childrens Hosp, Boston, MA USA
[29] Alberta Childrens Prov Gen Hosp, Calgary, AB, Canada
[30] Hacettepe Univ, Dept Pediat, Ankara, Turkiye
[31] Univ Iowa, Carver Coll Med, Iowa City, IA USA
[32] Duke Univ, Med Ctr, Durham, NC USA
[33] Duke Univ, Sch Med, Durham, NC USA
[34] Univ Washington, Redmond, WA USA
关键词
D O I
暂无
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
0398
引用
收藏
页码:790 / 793
页数:4
相关论文
共 50 条
  • [1] Validation for pediatric patient-reported outcomes measurement information system (PROMIS) in Asthmatic children: a responsiveness study
    Huang, I-Chan
    Kenzik, Kelly
    Shenkman, Elizabeth
    Gross, Heather
    DeWalt, Darren
    QUALITY OF LIFE RESEARCH, 2013, 22
  • [2] Initial Validation of Patient-Reported Outcomes Measurement Information System (PROMIS®) in Children with Juvenile Myositis
    Ardalan, Kaveh
    Cella, David
    Pachman, Lauren M.
    Gray, Elizabeth L.
    Lee, Julia
    Fahey, Kyle
    Wolfe, Madison
    Curran, Megan L.
    Marques, Mariana C.
    Chang, Rowland W.
    ARTHRITIS & RHEUMATOLOGY, 2017, 69
  • [3] Developing the Patient-Reported Outcomes Measurement Information System (PROMIS)
    Ader, Deborah N.
    MEDICAL CARE, 2007, 45 (05) : S1 - S2
  • [4] Clinimetrics: Patient-Reported Outcomes Measurement Information System (PROMIS®)
    Roorda, Leo D.
    Crins, Martine H. P.
    Terwee, Caroline B.
    JOURNAL OF PHYSIOTHERAPY, 2019, 65 (02) : 110 - 110
  • [5] Patient-Reported Outcome Measures for Patients With CKD: The Case for Patient-Reported Outcomes Measurement Information System (PROMIS) Tools
    Tang, Evan
    Yantsis, Alyssa
    Ho, Matthew
    Hussain, Junayd
    Dano, Sumaya
    Aiyegbusi, Olalekan L.
    Peipert, John D.
    Mucsi, Istvan
    AMERICAN JOURNAL OF KIDNEY DISEASES, 2024, 83 (04) : 508 - 518
  • [6] Impact of NIH Patient-Reported Outcome Measurement Information System (PROMIS®): Gastrointestinal Measures on Patient Outcomes
    Almario, Christopher
    Chey, William D.
    Khanna, Dinesh
    Whitman, Cynthia B.
    Fuller, Garth
    Reid, Mark
    Bolus, Roger
    Dennis, Buddy
    Encarnacion, Rey
    Martinez, Bibiana
    Soares, Jennifer
    Modi, Rushaba
    Agarwal, Nikhil
    Lee, Aaron
    Kubomoto, Scott
    Sharma, Gobind
    Bolus, Sally
    Spiegel, Brennan
    AMERICAN JOURNAL OF GASTROENTEROLOGY, 2015, 110 : S944 - S945
  • [7] Validation of the Patient Reported Outcomes Measurement Information System (PROMIS®) anxiety measures in psychiatric patients
    Bazo, Kathryn Sophie
    Vilagut, Gemma
    Olariu, Elena
    Ignacio Castro-Rodriguez, Jose
    Alonso, Jordi
    Forero, Carlos G.
    QUALITY OF LIFE RESEARCH, 2017, 26 (01) : 50 - 51
  • [8] Validation of the pediatric Patient-Reported Outcomes Measurement Information System (PROMIS®) Anger Item bank in the general Dutch population
    van Muilekom, Maud
    Luijten, Michiel
    van Litsenburg, Raphaele
    Haverman, Lotte
    Terwee, Caroline
    Grootenhuis, Martha
    QUALITY OF LIFE RESEARCH, 2020, 29 (SUPPL 1) : S66 - S67
  • [9] PATIENT-REPORTED OUTCOMES MEASUREMENT INFORMATION SYSTEM (PROMIS): USING NEW THEORY AND TECHNOLOGY TO IMPROVE MEASUREMENT OF PATIENT-REPORTED OUTCOMES IN CLINICAL RESEARCH
    Czajkowski, Susan M.
    Cella, David
    Stone, Arthur A.
    Amtmann, Dagmar
    Keefe, Francis
    ANNALS OF BEHAVIORAL MEDICINE, 2010, 39 : 46 - 46
  • [10] PATIENT-REPORTED OUTCOMES MEASUREMENT INFORMATION SYSTEM (PROMIS): USING NEW THEORY AND TECHNOLOGY TO IMPROVE MEASUREMENT OF PATIENT-REPORTED OUTCOMES IN CLINICAL RESEARCH
    Czajkowski, Susan M.
    Riley, William
    Pilkonis, Paul A.
    Weinfurt, Kevin P.
    ANNALS OF BEHAVIORAL MEDICINE, 2011, 41 : S145 - S145