GrowDMD: an international study on transition of youth with Duchenne muscular dystrophy (DMD)

被引:0
|
作者
Friedrich, S. [1 ]
Langer, T. [1 ]
Reeskau, G. [2 ]
Rodger, S. [1 ]
Willems, J. [1 ]
de Angelis, F. [3 ]
Brigladori, B. [4 ]
Guastafierro, E. [4 ]
Leonardi, M. [4 ]
Marcassoli, A. [4 ]
Moroni, I. [4 ]
Nardocci, N. [4 ]
Fournier, A. [5 ]
Frei, J. [6 ]
Rojas, R. Gutierrez [5 ]
De Camargo, O. Kraus [6 ]
Pozniak, K. [6 ]
Swain, A. [6 ]
Gorter, J. [6 ]
Osman, H. [7 ]
机构
[1] Univ Hosp Freiburg, Freiburg, Germany
[2] Deutsch Gesell Muskelkranke eV, Waltershofen, Germany
[3] Parent Project APS, Rome, Italy
[4] Fdn IRCCS Ist Neurol Carlo Besta, Milan, Italy
[5] CHU St Justine, Montreal, PQ, Canada
[6] McMaster Univ, CanChild, Hamilton, ON, Canada
[7] Muscular Dystrophy Canada, Toronto, ON, Canada
关键词
D O I
暂无
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
334P
引用
收藏
页数:1
相关论文
共 50 条
  • [31] Observation cohort study of cause of death in patients with Duchenne muscular dystrophy (DMD)
    Ballard, Emily
    Grey, Natalie
    Jungbluth, Heinz
    Wraige, Elizabeth
    Kapetanakis, Stam
    Davidson, Craig
    Hart, Nicholas
    EUROPEAN RESPIRATORY JOURNAL, 2012, 40
  • [32] DUCHENNE MUSCULAR-DYSTROPHY - FROM THE DMD GENE TO DYSTROPHIN
    CHELLY, J
    KAPLAN, JC
    M S-MEDECINE SCIENCES, 1988, 4 (03): : 141 - 150
  • [33] Nutritional status and admission risk in Duchenne muscular dystrophy (DMD)
    Reddy, Angela
    Weekes, Christine Elizabeth
    Ahmed, Hafez
    Hart, Nicholas
    EUROPEAN RESPIRATORY JOURNAL, 2013, 42
  • [34] THE BUDGET IMPACT OF DEFLAZACORT FOR THE TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY (DMD)
    Carlton, R.
    Regan, T.
    Narayanan, S.
    VALUE IN HEALTH, 2018, 21 : S250 - S250
  • [35] Strategies for Engaging the Duchenne Muscular Dystrophy (DMD) Community in Research
    Bendixen, Roxanna
    Morgenroth, Lauren
    INTERNATIONAL JOURNAL OF QUALITATIVE METHODS, 2016, 15 (01):
  • [36] Fetal Stem Cells in Duchenne's Muscular Dystrophy (DMD)
    Sych, Nataliia S.
    Klunnyk, Mariya O.
    Ivankova, Olena V.
    Matiyaschuk, Iryna G.
    ANNALS OF NEUROLOGY, 2012, 72 : S79 - S79
  • [37] Cumulative Motor Index (CMI) in Duchenne Muscular Dystrophy (DMD)
    Lin, Jenny
    Shah, Durga
    McCracken, Courtney
    Verma, Sumit
    NEUROLOGY, 2018, 90
  • [38] Duchenne Muscular Dystrophy (DMD): Pre-conceptional Counseling
    Nampoothiri, Sheela
    Yesodharan, Dhanya
    Ramachandran, Radhika P.
    France, Leturcq
    JOURNAL OF FETAL MEDICINE, 2016, 3 (01) : 19 - 24
  • [39] POSSIBILITY OF PRENATAL DIAGNOSIS OF DUCHENNE MUSCULAR-DYSTROPHY (DMD)
    HASELTINE, FP
    MAHONEY, MJ
    HOBBINS, JC
    CASKEY, CT
    PEDIATRIC RESEARCH, 1977, 11 (04) : 457 - 457
  • [40] The natural course of lung volumes in Duchenne Muscular Dystrophy (DMD)
    Lomauro, Antonella
    Romei, Marianna
    D'Angelo, Maria Grazia
    Aliverti, Andrea
    EUROPEAN RESPIRATORY JOURNAL, 2017, 50