[1] Univ Hosp Freiburg, Freiburg, Germany
[2] Deutsch Gesell Muskelkranke eV, Waltershofen, Germany
[3] Parent Project APS, Rome, Italy
[4] Fdn IRCCS Ist Neurol Carlo Besta, Milan, Italy
[5] CHU St Justine, Montreal, PQ, Canada
[6] McMaster Univ, CanChild, Hamilton, ON, Canada
[7] Muscular Dystrophy Canada, Toronto, ON, Canada