The patient voice in research

被引:0
|
作者
Preshaw, Philip
机构
关键词
D O I
10.1038/s41415-025-8342-y
中图分类号
R78 [口腔科学];
学科分类号
1003 ;
摘要
引用
收藏
页码:75 / 75
页数:1
相关论文
共 50 条
  • [31] The UK Facioscapulohumeral Muscular Dystrophy Patient Registry: a powerful tool to support clinical research and patient voice in the translational research pathway
    Walker, H.
    Muni-Lofra, R.
    Orrell, R.
    Graham, A.
    Norwood, F.
    Roberts, M.
    Willis, T.
    Matthews, E.
    Mencias, M.
    Adcock, K.
    Marini-Bettolo, C.
    NEUROMUSCULAR DISORDERS, 2024, 43
  • [32] Patient associations and clinical oncology research: how much does a patient's voice really matter?
    Franchina, Veronica
    Cagnazzo, Celeste
    Di Costanzo, Alessandro
    Arizio, Francesca
    Frazzetto, Angela Maria Elena
    Gori, Stefania
    Cenna, Rosita
    Nicolis, Fabrizio
    Procopio, Giuseppe
    Adamo, Vincenzo
    La Verde, Nicla
    Nanni, Oriana
    EXPERT REVIEW OF PHARMACOECONOMICS & OUTCOMES RESEARCH, 2021, 21 (03) : 433 - 440
  • [33] The Rise of the Patient Voice
    Skinner, Mark W.
    HAEMOPHILIA, 2014, 20 : 179 - 179
  • [34] For PKU by PKU, a pathway to progress: integrating patient voice with research on anxiety and depression
    Bjoraker, K. J.
    Carlson, A.
    Frerking, C.
    Goulart, M. Bernzen
    Hines, L.
    Kasprzyk, S.
    Luttenegger, J.
    Mounger, M.
    Rogers, M.
    Scott, M. Senese
    Smith, S.
    Brown, C.
    MOLECULAR GENETICS AND METABOLISM, 2022, 136 : S21 - S21
  • [35] FOR PKU BY PKU, A PATHWAY TO PROGRESS: INTEGRATING PATIENT VOICE WITH RESEARCH ON ANXIETY AND DEPRESSION
    Bjoraker, Kendra J.
    Carlson, Ann
    Frerking, Caitlin
    Goulart, Melissa Bernzen
    Hines, Laura
    Kasprzyk, Stacy
    Luttenegger, Jessica
    Mounger, Matthew
    Rogers, Meaghan
    Scott, Mia Senese
    Smith, Suzanne
    Swenson, Katrina
    Brown, Christine
    MOLECULAR GENETICS AND METABOLISM, 2022, 135 (04) : 260 - 260
  • [36] The Patient's Voice
    Isaacs, David
    Caldwell, Patrina
    JOURNAL OF PAEDIATRICS AND CHILD HEALTH, 2015, 51 (08) : 832 - 832
  • [37] Listening to the Voice of the Patient
    Pomerantz, Andrew S.
    FAMILIES SYSTEMS & HEALTH, 2014, 32 (04) : 433 - 435
  • [38] The Patient Voice Matters: Outcomes from a Patient Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI)
    Rawson, Nancy E.
    Boateng, Katie
    Schrandt, Suz
    Murphy, Claire
    Nyquist, Gurston
    Trachtman, Jenifer
    Hunter, Stephanie R.
    Silberman, Pamela
    Joseph, Paule V.
    Naimi, Bita
    Garvey, Emily
    Dalton, Pamela H.
    CHEMICAL SENSES, 2023, 48
  • [39] Patient informaticians: Turning patient voice into patient action
    Petersen, Carolyn
    JAMIA OPEN, 2018, 1 (02) : 130 - 135
  • [40] RESEARCH AND THE SINGING VOICE
    ONCLEY, PB
    JOURNAL OF THE ACOUSTICAL SOCIETY OF AMERICA, 1956, 28 (04): : 790 - 790