An easier way to die?-A qualitative interview study on specialist palliative care team members' views on dying under sedation

被引:0
|
作者
Bazata, Jeremias [1 ]
Meesters, Sophie [2 ,3 ]
Bozzaro, Claudia [4 ]
Handtke, Violet [1 ]
Schildmann, Jan [5 ]
Heckel, Maria [3 ,6 ]
Ostgathe, Christoph [3 ,6 ]
Bausewein, Claudia [1 ]
Schildmann, Eva [1 ,2 ,3 ]
SedPall Study Grp
机构
[1] LMU Univ Hosp, Dept Palliat Med, Munich, Germany
[2] Univ Augsburg, Fac Med, Palliat Med, Augsburg, Germany
[3] Comprehens Canc Ctr Alliance WERA CCC WERA, Wurzburg,Erlangen,Regensburg, Augsburg, Germany
[4] Univ Munster, Inst Ethics Hist & Theory Med, Munster, Germany
[5] Martin Luther Univ Halle Wittenberg, Inst Hist & Ethics Med, Med Fac, Interdisciplinary Ctr Hlth Sci, Halle, Germany
[6] Friedrich Alexander Univ Erlangen Nurnberg FAU, Dept Palliat Med, Univ Klin Erlangen, Erlangen, Germany
关键词
Deep sedation; hypnotics and sedatives; palliative care; qualitative research; terminally ill; attitude to death; OF-LIFE CARE; GOOD DEATH; CANCER-PATIENTS; UNTIL DEATH; PHYSICIANS; ATTITUDES; NURSES;
D O I
10.1177/02692163251321320
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Professionals' personal perceptions of sedated patients in the context of palliative care may influence their opinion on sedation as treatment option. However, little is known of palliative care professionals' perception of patients dying under sedation.Aim: To explore German specialist palliative care team members' views on and perception of the dying process under sedation.Design: Qualitative phenomenological study using semi-structured interviews (n = 59). Interviews took place in-person after recruitment via a contact person and were transcribed verbatim. Framework Analysis was used for analysis.Setting/participants: Physicians, nurses, psychologists, physical therapists, chaplains, and social workers from 10 palliative care units and 7 specialist palliative homecare teams across 12 German cities.Results: Participants' views on patients dying under sedation can be grouped into: (i) those who perceived an influence of sedation on the dying process with and without positive and/or negative connotations and (ii) those who saw no difference between dying with or without sedation. Positive connotations referred to the perception of sedation providing an easier path. Concerns were mainly related to the deprivation of patients regarding a conscious dying. The metaphorical description of sedation as "sleep" was common among participants.Conclusions: The wide range of perceptions of patients dying under sedation may be rooted in different judgements regarding aspects of a good death. Clarifying ideals of a good death with professionals, patients, and relatives before sedation may support transparent decision-making and help avoid conflicts or moral distress.
引用
收藏
页码:517 / 526
页数:10
相关论文
共 32 条
  • [21] "It's pretty much flying blind in the home care setting": A qualitative study on the influence of home care specific circumstances on sedation in specialist palliative home care
    Meesters, Sophie
    Bazata, Jeremias
    Handtke, Violet
    Gehrmann, Jan
    Kurkowski, Sandra
    Klein, Carsten
    Bausewein, Claudia
    Schildmann, Eva
    SedPall Study Grp
    PALLIATIVE MEDICINE, 2023, 37 (01) : 140 - 148
  • [22] The Lived Experiences of Healthcare Professionals with Inpatient Specialist Palliative Care During the COVID-19 Pandemic: A Qualitative Interview Study
    Robinson, Lilian
    Robinson, Shahar Geva
    Kurahashi, Allison
    Siemens, Isaac
    Pozzar, Rachel A.
    Leiter, Richard E.
    Mahtani, Ramona
    Jia, Zhimeng
    JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2023, 65 (05) : E614 - E615
  • [23] Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview study
    Guo, Ping
    Pinto, Cathryn
    Edwards, Beth
    Pask, Sophie
    Firth, Alice
    O'Brien, Suzanne
    Murtagh, Fliss E. M.
    PALLIATIVE MEDICINE, 2022, 36 (01) : 124 - 134
  • [24] Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: A qualitative interview study
    Clark, Joseph
    Salins, Naveen
    Daniel, Sunitha
    Currow, David C.
    Jones, Lesley
    Pearson, Mark
    Bunton, Robin
    Mankel, Joseph
    Braithwaite, Christopher
    Gilchrist, Marianne M.
    Johnson, Miriam J.
    PLOS GLOBAL PUBLIC HEALTH, 2023, 3 (09):
  • [25] Improving patients', carers' and primary care healthcare professionals' experiences of discharge communication from specialist palliative care to community settings: a protocol for a qualitative interview study
    Weetman, Katharine
    MacArtney, John I.
    Grimley, Catherine
    Bailey, Cara
    Dale, Jeremy
    BMC PALLIATIVE CARE, 2024, 23 (01):
  • [26] Using normalization process theory to evaluate the use of patient-centred outcome measures in specialist palliative home care—a qualitative interview study
    Eva Lehmann-Emele
    Maximiliane Jansky
    Sabina Clapham
    Susanne de Wolf-Linder
    Claudia Bausewein
    Farina Hodiamont
    BMC Palliative Care, 23
  • [27] Using normalization process theory to evaluate the use of patient-centred outcome measures in specialist palliative home care-a qualitative interview study
    Lehmann-Emele, Eva
    Jansky, Maximiliane
    Clapham, Sabina
    de Wolf-Linder, Susanne
    Bausewein, Claudia
    Hodiamont, Farina
    BMC PALLIATIVE CARE, 2024, 23 (01)
  • [28] How Do Patients and Caregivers in Advanced Illness Support One Another in Decision-Making for Patient Care? A Qualitative Interview Study of Patient and Caregiver Dyads in Specialist Palliative Care
    Fagan, Norah
    Davies, Andrew
    Foley, Geraldine
    PALLIATIVE MEDICINE REPORTS, 2024, 5 (01): : 417 - 424
  • [29] Is it acceptable to video-record palliative care consultations for research and training purposes? A qualitative interview study exploring the views of hospice patients, carers and clinical staff
    Pino, Marco
    Parry, Ruth
    Feathers, Luke
    Faull, Christina
    PALLIATIVE MEDICINE, 2017, 31 (08) : 707 - 715
  • [30] A bad time to die? Exploring bereaved families/wha-nau experiences of end-of-life care under COVID-19 restrictions: a qualitative interview study
    Morgan, Tessa
    Gott, Merryn
    Williams, Lisa
    Naden, Joe
    Wang, Yingmin
    Smith, Brianna
    Fanueli, Elizabeth
    Setyawati, Martyarini Budi
    Morgan, Kathryn
    Robinson, Jackie
    Anderson, Natalie
    Carey, Melissa
    Moeke-Maxwell, Tess
    PALLIATIVE CARE & SOCIAL PRACTICE, 2023, 17